Pioneering Ethics in a Longitudinal Study : The Early Development of the ALSPAC Ethics and Law Committee
Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated...
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| Autor*in: |
Birmingham, Karen [verfasserIn] Birmingham, Karen [mitwirkender] Golding, Jean [mitwirkender] |
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| Format: |
E-Book |
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| Sprache: |
Englisch |
| Erschienen: |
Bristol: Policy Press ; 2018 ©2018 |
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| Rechteinformationen: |
Open Access Namensnennung - Nicht-kommerziell 4.0 International ; CC BY-NC 4.0 |
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| Schlagwörter: |
Families, Research, Moral and ethical aspects Longitudinal method, Moral and ethical aspects |
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| Umfang: |
1 Online-Ressource (136 p.) |
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| Links: | |
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| ISBN: |
978-1-4473-4042-3 |
| DOI / URN: |
10.56687/9781447340423 |
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| Katalog-ID: |
1833329201 |
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| 100 | 1 | |a Birmingham, Karen |e verfasserin |4 aut | |
| 245 | 1 | 0 | |a Pioneering Ethics in a Longitudinal Study |b The Early Development of the ALSPAC Ethics and Law Committee |c Karen Birmingham |
| 264 | 1 | |a Bristol |b Policy Press |c 2018 | |
| 264 | 4 | |c ©2018 | |
| 300 | |a 1 Online-Ressource (136 p.) | ||
| 336 | |a Text |b txt |2 rdacontent | ||
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| 505 | 8 | 0 | |t Front Matter |
| 505 | 8 | 0 | |t Contents |
| 505 | 8 | 0 | |t List of figures and photographs |
| 505 | 8 | 0 | |t List of abbreviations |
| 505 | 8 | 0 | |t Authors and contributors, with current positions |
| 505 | 8 | 0 | |t Acknowledgements |
| 505 | 8 | 0 | |t Foreword |
| 505 | 8 | 0 | |t Preface |
| 505 | 8 | 0 | |t Introduction |
| 505 | 8 | 0 | |t ALSPAC Ethics and Law Committee: a new concept |
| 505 | 8 | 0 | |t Preliminaries and pioneers: framing the questions |
| 505 | 8 | 0 | |t Informal or casual: an unusual style |
| 505 | 8 | 0 | |t Advisory to independent: a missed opportunity |
| 505 | 8 | 0 | |t Bureaucratic battles: liaison with Local Research Ethics Committees |
| 505 | 8 | 0 | |t Policy development: a case of case law |
| 505 | 8 | 0 | |t Confidentiality and anonymity: a rod for their own backs |
| 505 | 8 | 0 | |t Informed consent: too much information |
| 505 | 8 | 0 | |t Child protection: an observational study? |
| 505 | 8 | 0 | |t Disclosure of individual results: foreseen feedback and incidental findings |
| 505 | 8 | 0 | |t Disclosure of individual results: participants' requests |
| 505 | 8 | 0 | |t Participants' problems: people not policies |
| 505 | 8 | 0 | |t External databases: anonymous linkage |
| 505 | 8 | 0 | |t Beyond policy: a broad remit |
| 505 | 8 | 0 | |t Retention of the Cohort: incentives or inducements |
| 505 | 8 | 0 | |t Commercial collaborations: selling our souls |
| 505 | 8 | 0 | |t Comprehensive oversight: undocumented and unacknowledged |
| 505 | 8 | 0 | |t Influence beyond ALSPAC: extension of expertise |
| 505 | 8 | 0 | |t Conclusions |
| 505 | 8 | 0 | |t Postscript |
| 505 | 8 | 0 | |t Notes |
| 505 | 8 | 0 | |t References |
| 505 | 8 | 0 | |t ALSPAC Steering Committee: founding members |
| 505 | 8 | 0 | |t ALSPAC Ethics and Law Committee members: appointed 1990-2005 |
| 505 | 8 | 0 | |t Letter to participants: further information concerning confidentiality |
| 505 | 8 | 0 | |t Young Mothers paper by Elizabeth Mumford |
| 505 | 8 | 0 | |t The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies |
| 505 | 8 | 0 | |t Index |
| 506 | 0 | |a Open Access |e Controlled Vocabulary for Access Rights |u https://purl.org/coar/access_right/c_abf2 |f unrestricted online access |2 star | |
| 520 | |a Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed | ||
| 540 | |a Namensnennung - Nicht-kommerziell 4.0 International |f CC BY-NC 4.0 |2 cc |u https://creativecommons.org/licenses/by-nc/4.0/ | ||
| 546 | |a In English | ||
| 650 | 0 | |a Social sciences (General) | |
| 650 | 0 | |a Families |x Research |x Moral and ethical aspects | |
| 650 | 0 | |a Longitudinal method |x Moral and ethical aspects | |
| 650 | 0 | |a Research |x Moral and ethical aspects | |
| 650 | 4 | |a SOCIAL SCIENCE / Research | |
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| 700 | 1 | |a Golding, Jean |e mitwirkender |4 ctb | |
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9781447340423 978-1-4473-4042-3 10.56687/9781447340423 doi (DE-627)1833329201 (DE-599)KEP086234722 (OCoLC)1135345173 (DE-B1597)646829 (EBP)086234722 DE-627 eng DE-627 rda eng XA-GB SOC024000 bisacsh Birmingham, Karen verfasserin aut Pioneering Ethics in a Longitudinal Study The Early Development of the ALSPAC Ethics and Law Committee Karen Birmingham Bristol Policy Press 2018 ©2018 1 Online-Ressource (136 p.) Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Front Matter Contents List of figures and photographs List of abbreviations Authors and contributors, with current positions Acknowledgements Foreword Preface Introduction ALSPAC Ethics and Law Committee: a new concept Preliminaries and pioneers: framing the questions Informal or casual: an unusual style Advisory to independent: a missed opportunity Bureaucratic battles: liaison with Local Research Ethics Committees Policy development: a case of case law Confidentiality and anonymity: a rod for their own backs Informed consent: too much information Child protection: an observational study? Disclosure of individual results: foreseen feedback and incidental findings Disclosure of individual results: participants' requests Participants' problems: people not policies External databases: anonymous linkage Beyond policy: a broad remit Retention of the Cohort: incentives or inducements Commercial collaborations: selling our souls Comprehensive oversight: undocumented and unacknowledged Influence beyond ALSPAC: extension of expertise Conclusions Postscript Notes References ALSPAC Steering Committee: founding members ALSPAC Ethics and Law Committee members: appointed 1990-2005 Letter to participants: further information concerning confidentiality Young Mothers paper by Elizabeth Mumford The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies Index Open Access Controlled Vocabulary for Access Rights https://purl.org/coar/access_right/c_abf2 unrestricted online access star Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed Namensnennung - Nicht-kommerziell 4.0 International CC BY-NC 4.0 cc https://creativecommons.org/licenses/by-nc/4.0/ In English Social sciences (General) Families Research Moral and ethical aspects Longitudinal method Moral and ethical aspects Research Moral and ethical aspects SOCIAL SCIENCE / Research Birmingham, Karen mitwirkender ctb Golding, Jean mitwirkender ctb 9781447340386 : print Erscheint auch als print 9781447340386 https://www.degruyter.com/isbn/9781447340423 X:GRUY Verlag kostenfrei https://doi.org/10.56687/9781447340423?locatt=mode:legacy X:GRUY Resolving-System kostenfrei https://www.degruyter.com/document/cover/isbn/9781447340423/original X:GRUY Verlag Cover GBV-deGruyter-alles ZDB-23-GOA GBV_ILN_11 ISIL_DE-1a SYSFLAG_1 GBV_KXP SSG-OLC-PHA GBV_ILN_22 ISIL_DE-18 GBV_ILN_23 ISIL_DE-830 GBV_ILN_24 ISIL_DE-8 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_50 ISIL_DE-23 GBV_ILN_60 ISIL_DE-705 GBV_ILN_62 ISIL_DE-28 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_69 ISIL_DE-9 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_90 ISIL_DE-Hil2 GBV_ILN_91 ISIL_DE-HIL3 GBV_ILN_92 ISIL_DE-33 GBV_ILN_100 ISIL_DE-Ma9 GBV_ILN_101 ISIL_DE-Ma14 GBV_ILN_105 ISIL_DE-841 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_120 ISIL_DE-715 GBV_ILN_122 ISIL_DE-897 GBV_ILN_130 ISIL_DE-700 GBV_ILN_131 ISIL_DE-Va1 GBV_ILN_132 ISIL_DE-959 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_140 ISIL_DE-839 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_151 ISIL_DE-546 GBV_ILN_161 ISIL_DE-960 GBV_ILN_164 ISIL_DE-916 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_206 ISIL_DE-Brg3 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_250 ISIL_DE-Ga20 GBV_ILN_264 ISIL_DE-897-1 GBV_ILN_285 ISIL_DE-517 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_496 ISIL_DE-Y9 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_635 ISIL_DE-B2138 GBV_ILN_2007 ISIL_DE-352E GBV_ILN_2009 ISIL_DE-180 GBV_ILN_2010 ISIL_DE-15 GBV_ILN_2011 ISIL_DE-16 GBV_ILN_2015 ISIL_DE-93 GBV_ILN_2021 ISIL_DE-289 GBV_ILN_2034 ISIL_DE-Rt2 GBV_ILN_2037 ISIL_DE-747 GBV_ILN_2039 ISIL_DE-He76 GBV_ILN_2044 ISIL_DE-751 GBV_ILN_2045 ISIL_DE-Mit1 GBV_ILN_2050 ISIL_DE-Zi4 GBV_ILN_2059 ISIL_DE-Kon4 GBV_ILN_2063 ISIL_DE-951 GBV_ILN_2064 ISIL_DE-953 GBV_ILN_2065 ISIL_DE-958 GBV_ILN_2068 ISIL_DE-Fn1 GBV_ILN_2089 ISIL_DE-540 GBV_ILN_2111 ISIL_DE-944 GBV_ILN_2112 ISIL_DE-1033 GBV_ILN_2118 ISIL_DE-Mh35 GBV_ILN_2119 ISIL_DE-943 GBV_ILN_2143 ISIL_DE-Rav1 GBV_ILN_2152 ISIL_DE-941 GBV_ILN_2153 ISIL_DE-Hed2 GBV_ILN_2159 ISIL_DE-984 GBV_ILN_2161 ISIL_DE-D117 GBV_ILN_2206 ISIL_DE-1141 GBV_ILN_2403 ISIL_DE-LFER BO 045F 174 11 01 0001 4272617036 00 5:LIZFREI --%%-- --%%-- --%%-- k 15-02-23 22 01 0018 4272620940 OLR-ZDB-23-GOA De Gruyter Open Access zu 15-02-23 23 01 0830 4272624725 olr-degruyter-oa f z 15-02-23 24 01 0008 4272628372 olr-dgoafrei z 15-02-23 30 01 0104 4272629654 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 31 01 0027 4272633082 OLR-FREE z 15-02-23 34 01 3551 4272636871 OLR-DG-OA De Gruyter Open Access z 15-02-23 39 01 0547 4272638149 OLR-ZDB-23-GOA ke 15-02-23 40 01 0007 4272639382 OLR-deGruyter-OA xsn 15-02-23 50 01 0023 4272640607 EBOA21 Das Werk ist lizenzfrei im Web zugänglich k 15-02-23 60 01 0705 4272642367 Olr-dggoa z 15-02-23 62 01 0028 4272644025 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 63 01 3401 4272645218 E-Books LF z 15-02-23 65 01 0003 4272646532 03 --%%-- ebook --%%-- --%%-- OLR-GBV-deGruyter-OA DeGruyter Open Access Titel z 15-02-23 69 01 0009 4272650289 OLR-DGGOA De Gruyter Open Access Vervielfältigungen (z.B. 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| spelling |
9781447340423 978-1-4473-4042-3 10.56687/9781447340423 doi (DE-627)1833329201 (DE-599)KEP086234722 (OCoLC)1135345173 (DE-B1597)646829 (EBP)086234722 DE-627 eng DE-627 rda eng XA-GB SOC024000 bisacsh Birmingham, Karen verfasserin aut Pioneering Ethics in a Longitudinal Study The Early Development of the ALSPAC Ethics and Law Committee Karen Birmingham Bristol Policy Press 2018 ©2018 1 Online-Ressource (136 p.) Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Front Matter Contents List of figures and photographs List of abbreviations Authors and contributors, with current positions Acknowledgements Foreword Preface Introduction ALSPAC Ethics and Law Committee: a new concept Preliminaries and pioneers: framing the questions Informal or casual: an unusual style Advisory to independent: a missed opportunity Bureaucratic battles: liaison with Local Research Ethics Committees Policy development: a case of case law Confidentiality and anonymity: a rod for their own backs Informed consent: too much information Child protection: an observational study? Disclosure of individual results: foreseen feedback and incidental findings Disclosure of individual results: participants' requests Participants' problems: people not policies External databases: anonymous linkage Beyond policy: a broad remit Retention of the Cohort: incentives or inducements Commercial collaborations: selling our souls Comprehensive oversight: undocumented and unacknowledged Influence beyond ALSPAC: extension of expertise Conclusions Postscript Notes References ALSPAC Steering Committee: founding members ALSPAC Ethics and Law Committee members: appointed 1990-2005 Letter to participants: further information concerning confidentiality Young Mothers paper by Elizabeth Mumford The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies Index Open Access Controlled Vocabulary for Access Rights https://purl.org/coar/access_right/c_abf2 unrestricted online access star Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed Namensnennung - Nicht-kommerziell 4.0 International CC BY-NC 4.0 cc https://creativecommons.org/licenses/by-nc/4.0/ In English Social sciences (General) Families Research Moral and ethical aspects Longitudinal method Moral and ethical aspects Research Moral and ethical aspects SOCIAL SCIENCE / Research Birmingham, Karen mitwirkender ctb Golding, Jean mitwirkender ctb 9781447340386 : print Erscheint auch als print 9781447340386 https://www.degruyter.com/isbn/9781447340423 X:GRUY Verlag kostenfrei https://doi.org/10.56687/9781447340423?locatt=mode:legacy X:GRUY Resolving-System kostenfrei https://www.degruyter.com/document/cover/isbn/9781447340423/original X:GRUY Verlag Cover GBV-deGruyter-alles ZDB-23-GOA GBV_ILN_11 ISIL_DE-1a SYSFLAG_1 GBV_KXP SSG-OLC-PHA GBV_ILN_22 ISIL_DE-18 GBV_ILN_23 ISIL_DE-830 GBV_ILN_24 ISIL_DE-8 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_50 ISIL_DE-23 GBV_ILN_60 ISIL_DE-705 GBV_ILN_62 ISIL_DE-28 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_69 ISIL_DE-9 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_90 ISIL_DE-Hil2 GBV_ILN_91 ISIL_DE-HIL3 GBV_ILN_92 ISIL_DE-33 GBV_ILN_100 ISIL_DE-Ma9 GBV_ILN_101 ISIL_DE-Ma14 GBV_ILN_105 ISIL_DE-841 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_120 ISIL_DE-715 GBV_ILN_122 ISIL_DE-897 GBV_ILN_130 ISIL_DE-700 GBV_ILN_131 ISIL_DE-Va1 GBV_ILN_132 ISIL_DE-959 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_140 ISIL_DE-839 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_151 ISIL_DE-546 GBV_ILN_161 ISIL_DE-960 GBV_ILN_164 ISIL_DE-916 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_206 ISIL_DE-Brg3 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_250 ISIL_DE-Ga20 GBV_ILN_264 ISIL_DE-897-1 GBV_ILN_285 ISIL_DE-517 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_496 ISIL_DE-Y9 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_635 ISIL_DE-B2138 GBV_ILN_2007 ISIL_DE-352E GBV_ILN_2009 ISIL_DE-180 GBV_ILN_2010 ISIL_DE-15 GBV_ILN_2011 ISIL_DE-16 GBV_ILN_2015 ISIL_DE-93 GBV_ILN_2021 ISIL_DE-289 GBV_ILN_2034 ISIL_DE-Rt2 GBV_ILN_2037 ISIL_DE-747 GBV_ILN_2039 ISIL_DE-He76 GBV_ILN_2044 ISIL_DE-751 GBV_ILN_2045 ISIL_DE-Mit1 GBV_ILN_2050 ISIL_DE-Zi4 GBV_ILN_2059 ISIL_DE-Kon4 GBV_ILN_2063 ISIL_DE-951 GBV_ILN_2064 ISIL_DE-953 GBV_ILN_2065 ISIL_DE-958 GBV_ILN_2068 ISIL_DE-Fn1 GBV_ILN_2089 ISIL_DE-540 GBV_ILN_2111 ISIL_DE-944 GBV_ILN_2112 ISIL_DE-1033 GBV_ILN_2118 ISIL_DE-Mh35 GBV_ILN_2119 ISIL_DE-943 GBV_ILN_2143 ISIL_DE-Rav1 GBV_ILN_2152 ISIL_DE-941 GBV_ILN_2153 ISIL_DE-Hed2 GBV_ILN_2159 ISIL_DE-984 GBV_ILN_2161 ISIL_DE-D117 GBV_ILN_2206 ISIL_DE-1141 GBV_ILN_2403 ISIL_DE-LFER BO 045F 174 11 01 0001 4272617036 00 5:LIZFREI --%%-- --%%-- --%%-- k 15-02-23 22 01 0018 4272620940 OLR-ZDB-23-GOA De Gruyter Open Access zu 15-02-23 23 01 0830 4272624725 olr-degruyter-oa f z 15-02-23 24 01 0008 4272628372 olr-dgoafrei z 15-02-23 30 01 0104 4272629654 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 31 01 0027 4272633082 OLR-FREE z 15-02-23 34 01 3551 4272636871 OLR-DG-OA De Gruyter Open Access z 15-02-23 39 01 0547 4272638149 OLR-ZDB-23-GOA ke 15-02-23 40 01 0007 4272639382 OLR-deGruyter-OA xsn 15-02-23 50 01 0023 4272640607 EBOA21 Das Werk ist lizenzfrei im Web zugänglich k 15-02-23 60 01 0705 4272642367 Olr-dggoa z 15-02-23 62 01 0028 4272644025 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 63 01 3401 4272645218 E-Books LF z 15-02-23 65 01 0003 4272646532 03 --%%-- ebook --%%-- --%%-- OLR-GBV-deGruyter-OA DeGruyter Open Access Titel z 15-02-23 69 01 0009 4272650289 OLR-DGGOA De Gruyter Open Access Vervielfältigungen (z.B. 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9781447340423 978-1-4473-4042-3 10.56687/9781447340423 doi (DE-627)1833329201 (DE-599)KEP086234722 (OCoLC)1135345173 (DE-B1597)646829 (EBP)086234722 DE-627 eng DE-627 rda eng XA-GB SOC024000 bisacsh Birmingham, Karen verfasserin aut Pioneering Ethics in a Longitudinal Study The Early Development of the ALSPAC Ethics and Law Committee Karen Birmingham Bristol Policy Press 2018 ©2018 1 Online-Ressource (136 p.) Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Front Matter Contents List of figures and photographs List of abbreviations Authors and contributors, with current positions Acknowledgements Foreword Preface Introduction ALSPAC Ethics and Law Committee: a new concept Preliminaries and pioneers: framing the questions Informal or casual: an unusual style Advisory to independent: a missed opportunity Bureaucratic battles: liaison with Local Research Ethics Committees Policy development: a case of case law Confidentiality and anonymity: a rod for their own backs Informed consent: too much information Child protection: an observational study? Disclosure of individual results: foreseen feedback and incidental findings Disclosure of individual results: participants' requests Participants' problems: people not policies External databases: anonymous linkage Beyond policy: a broad remit Retention of the Cohort: incentives or inducements Commercial collaborations: selling our souls Comprehensive oversight: undocumented and unacknowledged Influence beyond ALSPAC: extension of expertise Conclusions Postscript Notes References ALSPAC Steering Committee: founding members ALSPAC Ethics and Law Committee members: appointed 1990-2005 Letter to participants: further information concerning confidentiality Young Mothers paper by Elizabeth Mumford The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies Index Open Access Controlled Vocabulary for Access Rights https://purl.org/coar/access_right/c_abf2 unrestricted online access star Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed Namensnennung - Nicht-kommerziell 4.0 International CC BY-NC 4.0 cc https://creativecommons.org/licenses/by-nc/4.0/ In English Social sciences (General) Families Research Moral and ethical aspects Longitudinal method Moral and ethical aspects Research Moral and ethical aspects SOCIAL SCIENCE / Research Birmingham, Karen mitwirkender ctb Golding, Jean mitwirkender ctb 9781447340386 : print Erscheint auch als print 9781447340386 https://www.degruyter.com/isbn/9781447340423 X:GRUY Verlag kostenfrei https://doi.org/10.56687/9781447340423?locatt=mode:legacy X:GRUY Resolving-System kostenfrei https://www.degruyter.com/document/cover/isbn/9781447340423/original X:GRUY Verlag Cover GBV-deGruyter-alles ZDB-23-GOA GBV_ILN_11 ISIL_DE-1a SYSFLAG_1 GBV_KXP SSG-OLC-PHA GBV_ILN_22 ISIL_DE-18 GBV_ILN_23 ISIL_DE-830 GBV_ILN_24 ISIL_DE-8 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_50 ISIL_DE-23 GBV_ILN_60 ISIL_DE-705 GBV_ILN_62 ISIL_DE-28 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_69 ISIL_DE-9 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_90 ISIL_DE-Hil2 GBV_ILN_91 ISIL_DE-HIL3 GBV_ILN_92 ISIL_DE-33 GBV_ILN_100 ISIL_DE-Ma9 GBV_ILN_101 ISIL_DE-Ma14 GBV_ILN_105 ISIL_DE-841 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_120 ISIL_DE-715 GBV_ILN_122 ISIL_DE-897 GBV_ILN_130 ISIL_DE-700 GBV_ILN_131 ISIL_DE-Va1 GBV_ILN_132 ISIL_DE-959 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_140 ISIL_DE-839 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_151 ISIL_DE-546 GBV_ILN_161 ISIL_DE-960 GBV_ILN_164 ISIL_DE-916 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_206 ISIL_DE-Brg3 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_250 ISIL_DE-Ga20 GBV_ILN_264 ISIL_DE-897-1 GBV_ILN_285 ISIL_DE-517 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_496 ISIL_DE-Y9 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_635 ISIL_DE-B2138 GBV_ILN_2007 ISIL_DE-352E GBV_ILN_2009 ISIL_DE-180 GBV_ILN_2010 ISIL_DE-15 GBV_ILN_2011 ISIL_DE-16 GBV_ILN_2015 ISIL_DE-93 GBV_ILN_2021 ISIL_DE-289 GBV_ILN_2034 ISIL_DE-Rt2 GBV_ILN_2037 ISIL_DE-747 GBV_ILN_2039 ISIL_DE-He76 GBV_ILN_2044 ISIL_DE-751 GBV_ILN_2045 ISIL_DE-Mit1 GBV_ILN_2050 ISIL_DE-Zi4 GBV_ILN_2059 ISIL_DE-Kon4 GBV_ILN_2063 ISIL_DE-951 GBV_ILN_2064 ISIL_DE-953 GBV_ILN_2065 ISIL_DE-958 GBV_ILN_2068 ISIL_DE-Fn1 GBV_ILN_2089 ISIL_DE-540 GBV_ILN_2111 ISIL_DE-944 GBV_ILN_2112 ISIL_DE-1033 GBV_ILN_2118 ISIL_DE-Mh35 GBV_ILN_2119 ISIL_DE-943 GBV_ILN_2143 ISIL_DE-Rav1 GBV_ILN_2152 ISIL_DE-941 GBV_ILN_2153 ISIL_DE-Hed2 GBV_ILN_2159 ISIL_DE-984 GBV_ILN_2161 ISIL_DE-D117 GBV_ILN_2206 ISIL_DE-1141 GBV_ILN_2403 ISIL_DE-LFER BO 045F 174 11 01 0001 4272617036 00 5:LIZFREI --%%-- --%%-- --%%-- k 15-02-23 22 01 0018 4272620940 OLR-ZDB-23-GOA De Gruyter Open Access zu 15-02-23 23 01 0830 4272624725 olr-degruyter-oa f z 15-02-23 24 01 0008 4272628372 olr-dgoafrei z 15-02-23 30 01 0104 4272629654 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 31 01 0027 4272633082 OLR-FREE z 15-02-23 34 01 3551 4272636871 OLR-DG-OA De Gruyter Open Access z 15-02-23 39 01 0547 4272638149 OLR-ZDB-23-GOA ke 15-02-23 40 01 0007 4272639382 OLR-deGruyter-OA xsn 15-02-23 50 01 0023 4272640607 EBOA21 Das Werk ist lizenzfrei im Web zugänglich k 15-02-23 60 01 0705 4272642367 Olr-dggoa z 15-02-23 62 01 0028 4272644025 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 63 01 3401 4272645218 E-Books LF z 15-02-23 65 01 0003 4272646532 03 --%%-- ebook --%%-- --%%-- OLR-GBV-deGruyter-OA DeGruyter Open Access Titel z 15-02-23 69 01 0009 4272650289 OLR-DGGOA De Gruyter Open Access Vervielfältigungen (z.B. 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9781447340423 978-1-4473-4042-3 10.56687/9781447340423 doi (DE-627)1833329201 (DE-599)KEP086234722 (OCoLC)1135345173 (DE-B1597)646829 (EBP)086234722 DE-627 eng DE-627 rda eng XA-GB SOC024000 bisacsh Birmingham, Karen verfasserin aut Pioneering Ethics in a Longitudinal Study The Early Development of the ALSPAC Ethics and Law Committee Karen Birmingham Bristol Policy Press 2018 ©2018 1 Online-Ressource (136 p.) Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Front Matter Contents List of figures and photographs List of abbreviations Authors and contributors, with current positions Acknowledgements Foreword Preface Introduction ALSPAC Ethics and Law Committee: a new concept Preliminaries and pioneers: framing the questions Informal or casual: an unusual style Advisory to independent: a missed opportunity Bureaucratic battles: liaison with Local Research Ethics Committees Policy development: a case of case law Confidentiality and anonymity: a rod for their own backs Informed consent: too much information Child protection: an observational study? Disclosure of individual results: foreseen feedback and incidental findings Disclosure of individual results: participants' requests Participants' problems: people not policies External databases: anonymous linkage Beyond policy: a broad remit Retention of the Cohort: incentives or inducements Commercial collaborations: selling our souls Comprehensive oversight: undocumented and unacknowledged Influence beyond ALSPAC: extension of expertise Conclusions Postscript Notes References ALSPAC Steering Committee: founding members ALSPAC Ethics and Law Committee members: appointed 1990-2005 Letter to participants: further information concerning confidentiality Young Mothers paper by Elizabeth Mumford The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies Index Open Access Controlled Vocabulary for Access Rights https://purl.org/coar/access_right/c_abf2 unrestricted online access star Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed Namensnennung - Nicht-kommerziell 4.0 International CC BY-NC 4.0 cc https://creativecommons.org/licenses/by-nc/4.0/ In English Social sciences (General) Families Research Moral and ethical aspects Longitudinal method Moral and ethical aspects Research Moral and ethical aspects SOCIAL SCIENCE / Research Birmingham, Karen mitwirkender ctb Golding, Jean mitwirkender ctb 9781447340386 : print Erscheint auch als print 9781447340386 https://www.degruyter.com/isbn/9781447340423 X:GRUY Verlag kostenfrei https://doi.org/10.56687/9781447340423?locatt=mode:legacy X:GRUY Resolving-System kostenfrei https://www.degruyter.com/document/cover/isbn/9781447340423/original X:GRUY Verlag Cover GBV-deGruyter-alles ZDB-23-GOA GBV_ILN_11 ISIL_DE-1a SYSFLAG_1 GBV_KXP SSG-OLC-PHA GBV_ILN_22 ISIL_DE-18 GBV_ILN_23 ISIL_DE-830 GBV_ILN_24 ISIL_DE-8 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_50 ISIL_DE-23 GBV_ILN_60 ISIL_DE-705 GBV_ILN_62 ISIL_DE-28 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_69 ISIL_DE-9 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_90 ISIL_DE-Hil2 GBV_ILN_91 ISIL_DE-HIL3 GBV_ILN_92 ISIL_DE-33 GBV_ILN_100 ISIL_DE-Ma9 GBV_ILN_101 ISIL_DE-Ma14 GBV_ILN_105 ISIL_DE-841 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_120 ISIL_DE-715 GBV_ILN_122 ISIL_DE-897 GBV_ILN_130 ISIL_DE-700 GBV_ILN_131 ISIL_DE-Va1 GBV_ILN_132 ISIL_DE-959 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_140 ISIL_DE-839 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_151 ISIL_DE-546 GBV_ILN_161 ISIL_DE-960 GBV_ILN_164 ISIL_DE-916 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_206 ISIL_DE-Brg3 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_250 ISIL_DE-Ga20 GBV_ILN_264 ISIL_DE-897-1 GBV_ILN_285 ISIL_DE-517 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_496 ISIL_DE-Y9 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_635 ISIL_DE-B2138 GBV_ILN_2007 ISIL_DE-352E GBV_ILN_2009 ISIL_DE-180 GBV_ILN_2010 ISIL_DE-15 GBV_ILN_2011 ISIL_DE-16 GBV_ILN_2015 ISIL_DE-93 GBV_ILN_2021 ISIL_DE-289 GBV_ILN_2034 ISIL_DE-Rt2 GBV_ILN_2037 ISIL_DE-747 GBV_ILN_2039 ISIL_DE-He76 GBV_ILN_2044 ISIL_DE-751 GBV_ILN_2045 ISIL_DE-Mit1 GBV_ILN_2050 ISIL_DE-Zi4 GBV_ILN_2059 ISIL_DE-Kon4 GBV_ILN_2063 ISIL_DE-951 GBV_ILN_2064 ISIL_DE-953 GBV_ILN_2065 ISIL_DE-958 GBV_ILN_2068 ISIL_DE-Fn1 GBV_ILN_2089 ISIL_DE-540 GBV_ILN_2111 ISIL_DE-944 GBV_ILN_2112 ISIL_DE-1033 GBV_ILN_2118 ISIL_DE-Mh35 GBV_ILN_2119 ISIL_DE-943 GBV_ILN_2143 ISIL_DE-Rav1 GBV_ILN_2152 ISIL_DE-941 GBV_ILN_2153 ISIL_DE-Hed2 GBV_ILN_2159 ISIL_DE-984 GBV_ILN_2161 ISIL_DE-D117 GBV_ILN_2206 ISIL_DE-1141 GBV_ILN_2403 ISIL_DE-LFER BO 045F 174 11 01 0001 4272617036 00 5:LIZFREI --%%-- --%%-- --%%-- k 15-02-23 22 01 0018 4272620940 OLR-ZDB-23-GOA De Gruyter Open Access zu 15-02-23 23 01 0830 4272624725 olr-degruyter-oa f z 15-02-23 24 01 0008 4272628372 olr-dgoafrei z 15-02-23 30 01 0104 4272629654 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 31 01 0027 4272633082 OLR-FREE z 15-02-23 34 01 3551 4272636871 OLR-DG-OA De Gruyter Open Access z 15-02-23 39 01 0547 4272638149 OLR-ZDB-23-GOA ke 15-02-23 40 01 0007 4272639382 OLR-deGruyter-OA xsn 15-02-23 50 01 0023 4272640607 EBOA21 Das Werk ist lizenzfrei im Web zugänglich k 15-02-23 60 01 0705 4272642367 Olr-dggoa z 15-02-23 62 01 0028 4272644025 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 63 01 3401 4272645218 E-Books LF z 15-02-23 65 01 0003 4272646532 03 --%%-- ebook --%%-- --%%-- OLR-GBV-deGruyter-OA DeGruyter Open Access Titel z 15-02-23 69 01 0009 4272650289 OLR-DGGOA De Gruyter Open Access Vervielfältigungen (z.B. 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9781447340423 978-1-4473-4042-3 10.56687/9781447340423 doi (DE-627)1833329201 (DE-599)KEP086234722 (OCoLC)1135345173 (DE-B1597)646829 (EBP)086234722 DE-627 eng DE-627 rda eng XA-GB SOC024000 bisacsh Birmingham, Karen verfasserin aut Pioneering Ethics in a Longitudinal Study The Early Development of the ALSPAC Ethics and Law Committee Karen Birmingham Bristol Policy Press 2018 ©2018 1 Online-Ressource (136 p.) Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Front Matter Contents List of figures and photographs List of abbreviations Authors and contributors, with current positions Acknowledgements Foreword Preface Introduction ALSPAC Ethics and Law Committee: a new concept Preliminaries and pioneers: framing the questions Informal or casual: an unusual style Advisory to independent: a missed opportunity Bureaucratic battles: liaison with Local Research Ethics Committees Policy development: a case of case law Confidentiality and anonymity: a rod for their own backs Informed consent: too much information Child protection: an observational study? Disclosure of individual results: foreseen feedback and incidental findings Disclosure of individual results: participants' requests Participants' problems: people not policies External databases: anonymous linkage Beyond policy: a broad remit Retention of the Cohort: incentives or inducements Commercial collaborations: selling our souls Comprehensive oversight: undocumented and unacknowledged Influence beyond ALSPAC: extension of expertise Conclusions Postscript Notes References ALSPAC Steering Committee: founding members ALSPAC Ethics and Law Committee members: appointed 1990-2005 Letter to participants: further information concerning confidentiality Young Mothers paper by Elizabeth Mumford The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies Index Open Access Controlled Vocabulary for Access Rights https://purl.org/coar/access_right/c_abf2 unrestricted online access star Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed Namensnennung - Nicht-kommerziell 4.0 International CC BY-NC 4.0 cc https://creativecommons.org/licenses/by-nc/4.0/ In English Social sciences (General) Families Research Moral and ethical aspects Longitudinal method Moral and ethical aspects Research Moral and ethical aspects SOCIAL SCIENCE / Research Birmingham, Karen mitwirkender ctb Golding, Jean mitwirkender ctb 9781447340386 : print Erscheint auch als print 9781447340386 https://www.degruyter.com/isbn/9781447340423 X:GRUY Verlag kostenfrei https://doi.org/10.56687/9781447340423?locatt=mode:legacy X:GRUY Resolving-System kostenfrei https://www.degruyter.com/document/cover/isbn/9781447340423/original X:GRUY Verlag Cover GBV-deGruyter-alles ZDB-23-GOA GBV_ILN_11 ISIL_DE-1a SYSFLAG_1 GBV_KXP SSG-OLC-PHA GBV_ILN_22 ISIL_DE-18 GBV_ILN_23 ISIL_DE-830 GBV_ILN_24 ISIL_DE-8 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_50 ISIL_DE-23 GBV_ILN_60 ISIL_DE-705 GBV_ILN_62 ISIL_DE-28 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_69 ISIL_DE-9 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_90 ISIL_DE-Hil2 GBV_ILN_91 ISIL_DE-HIL3 GBV_ILN_92 ISIL_DE-33 GBV_ILN_100 ISIL_DE-Ma9 GBV_ILN_101 ISIL_DE-Ma14 GBV_ILN_105 ISIL_DE-841 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_120 ISIL_DE-715 GBV_ILN_122 ISIL_DE-897 GBV_ILN_130 ISIL_DE-700 GBV_ILN_131 ISIL_DE-Va1 GBV_ILN_132 ISIL_DE-959 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_140 ISIL_DE-839 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_151 ISIL_DE-546 GBV_ILN_161 ISIL_DE-960 GBV_ILN_164 ISIL_DE-916 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_206 ISIL_DE-Brg3 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_250 ISIL_DE-Ga20 GBV_ILN_264 ISIL_DE-897-1 GBV_ILN_285 ISIL_DE-517 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_496 ISIL_DE-Y9 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_635 ISIL_DE-B2138 GBV_ILN_2007 ISIL_DE-352E GBV_ILN_2009 ISIL_DE-180 GBV_ILN_2010 ISIL_DE-15 GBV_ILN_2011 ISIL_DE-16 GBV_ILN_2015 ISIL_DE-93 GBV_ILN_2021 ISIL_DE-289 GBV_ILN_2034 ISIL_DE-Rt2 GBV_ILN_2037 ISIL_DE-747 GBV_ILN_2039 ISIL_DE-He76 GBV_ILN_2044 ISIL_DE-751 GBV_ILN_2045 ISIL_DE-Mit1 GBV_ILN_2050 ISIL_DE-Zi4 GBV_ILN_2059 ISIL_DE-Kon4 GBV_ILN_2063 ISIL_DE-951 GBV_ILN_2064 ISIL_DE-953 GBV_ILN_2065 ISIL_DE-958 GBV_ILN_2068 ISIL_DE-Fn1 GBV_ILN_2089 ISIL_DE-540 GBV_ILN_2111 ISIL_DE-944 GBV_ILN_2112 ISIL_DE-1033 GBV_ILN_2118 ISIL_DE-Mh35 GBV_ILN_2119 ISIL_DE-943 GBV_ILN_2143 ISIL_DE-Rav1 GBV_ILN_2152 ISIL_DE-941 GBV_ILN_2153 ISIL_DE-Hed2 GBV_ILN_2159 ISIL_DE-984 GBV_ILN_2161 ISIL_DE-D117 GBV_ILN_2206 ISIL_DE-1141 GBV_ILN_2403 ISIL_DE-LFER BO 045F 174 11 01 0001 4272617036 00 5:LIZFREI --%%-- --%%-- --%%-- k 15-02-23 22 01 0018 4272620940 OLR-ZDB-23-GOA De Gruyter Open Access zu 15-02-23 23 01 0830 4272624725 olr-degruyter-oa f z 15-02-23 24 01 0008 4272628372 olr-dgoafrei z 15-02-23 30 01 0104 4272629654 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 31 01 0027 4272633082 OLR-FREE z 15-02-23 34 01 3551 4272636871 OLR-DG-OA De Gruyter Open Access z 15-02-23 39 01 0547 4272638149 OLR-ZDB-23-GOA ke 15-02-23 40 01 0007 4272639382 OLR-deGruyter-OA xsn 15-02-23 50 01 0023 4272640607 EBOA21 Das Werk ist lizenzfrei im Web zugänglich k 15-02-23 60 01 0705 4272642367 Olr-dggoa z 15-02-23 62 01 0028 4272644025 OLR-DGGOA DeGruyter Open Access Titel z 15-02-23 63 01 3401 4272645218 E-Books LF z 15-02-23 65 01 0003 4272646532 03 --%%-- ebook --%%-- --%%-- OLR-GBV-deGruyter-OA DeGruyter Open Access Titel z 15-02-23 69 01 0009 4272650289 OLR-DGGOA De Gruyter Open Access Vervielfältigungen (z.B. 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code="t">Front Matter</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Contents</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">List of figures and photographs</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">List of abbreviations</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Authors and contributors, with current positions</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Acknowledgements</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Foreword</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Preface</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Introduction</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">ALSPAC Ethics and Law Committee: a new concept</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Preliminaries and pioneers: framing the questions</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Informal or casual: an unusual style</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Advisory to independent: a missed opportunity</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Bureaucratic battles: liaison with Local Research Ethics Committees</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Policy development: a case of case law</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Confidentiality and anonymity: a rod for their own backs</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Informed consent: too much information</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Child protection: an observational study?</subfield></datafield><datafield 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unacknowledged</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Influence beyond ALSPAC: extension of expertise</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Conclusions</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Postscript</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Notes</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">References</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">ALSPAC Steering Committee: founding members</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">ALSPAC Ethics and Law Committee members: appointed 1990-2005</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield code="t">Letter to participants: further information concerning confidentiality</subfield></datafield><datafield tag="505" ind1="8" ind2="0"><subfield 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ind2=" "><subfield code="a">ISIL_DE-943</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">GBV_ILN_2143</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ISIL_DE-Rav1</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">GBV_ILN_2152</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ISIL_DE-941</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">GBV_ILN_2153</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ISIL_DE-Hed2</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">GBV_ILN_2159</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ISIL_DE-984</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">GBV_ILN_2161</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ISIL_DE-D117</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">GBV_ILN_2206</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ISIL_DE-1141</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">GBV_ILN_2403</subfield></datafield><datafield tag="912" ind1=" " ind2=" "><subfield code="a">ISIL_DE-LFER</subfield></datafield><datafield tag="951" ind1=" " ind2=" "><subfield code="a">BO</subfield></datafield><datafield tag="953" ind1=" " ind2=" "><subfield code="2">045F</subfield><subfield code="a">174</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">11</subfield><subfield code="1">01</subfield><subfield code="x">0001</subfield><subfield code="b">4272617036</subfield><subfield code="c">00</subfield><subfield code="f">5:LIZFREI</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="y">k</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">22</subfield><subfield code="1">01</subfield><subfield code="x">0018</subfield><subfield code="b">4272620940</subfield><subfield code="h">OLR-ZDB-23-GOA</subfield><subfield code="k">De Gruyter Open Access</subfield><subfield code="y">zu</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">23</subfield><subfield code="1">01</subfield><subfield code="x">0830</subfield><subfield code="b">4272624725</subfield><subfield code="h">olr-degruyter-oa</subfield><subfield code="u">f</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">24</subfield><subfield code="1">01</subfield><subfield code="x">0008</subfield><subfield code="b">4272628372</subfield><subfield code="h">olr-dgoafrei</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">30</subfield><subfield code="1">01</subfield><subfield code="x">0104</subfield><subfield code="b">4272629654</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">DeGruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">31</subfield><subfield code="1">01</subfield><subfield code="x">0027</subfield><subfield code="b">4272633082</subfield><subfield code="h">OLR-FREE</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">34</subfield><subfield code="1">01</subfield><subfield code="x">3551</subfield><subfield code="b">4272636871</subfield><subfield code="h">OLR-DG-OA</subfield><subfield code="k">De Gruyter Open Access</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">39</subfield><subfield code="1">01</subfield><subfield code="x">0547</subfield><subfield code="b">4272638149</subfield><subfield code="h">OLR-ZDB-23-GOA</subfield><subfield code="y">ke</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">40</subfield><subfield code="1">01</subfield><subfield code="x">0007</subfield><subfield code="b">4272639382</subfield><subfield code="h">OLR-deGruyter-OA</subfield><subfield code="y">xsn</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">50</subfield><subfield code="1">01</subfield><subfield code="x">0023</subfield><subfield code="b">4272640607</subfield><subfield code="h">EBOA21</subfield><subfield code="k">Das Werk ist lizenzfrei im Web zugänglich</subfield><subfield code="y">k</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">60</subfield><subfield code="1">01</subfield><subfield code="x">0705</subfield><subfield code="b">4272642367</subfield><subfield code="h">Olr-dggoa</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">62</subfield><subfield code="1">01</subfield><subfield code="x">0028</subfield><subfield code="b">4272644025</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">DeGruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">63</subfield><subfield code="1">01</subfield><subfield code="x">3401</subfield><subfield code="b">4272645218</subfield><subfield code="h">E-Books LF</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">65</subfield><subfield code="1">01</subfield><subfield code="x">0003</subfield><subfield code="b">4272646532</subfield><subfield code="c">03</subfield><subfield code="f">--%%--</subfield><subfield code="d">ebook</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-GBV-deGruyter-OA</subfield><subfield code="k">DeGruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">69</subfield><subfield code="1">01</subfield><subfield code="x">0009</subfield><subfield code="b">4272650289</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">De Gruyter Open Access</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Keine Weitergabe an Dritte. Kein systematisches Downloaden.</subfield><subfield code="y">x</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">70</subfield><subfield code="1">01</subfield><subfield code="x">0089</subfield><subfield code="b">427265151X</subfield><subfield code="h">OLR-DG-OA</subfield><subfield code="k">De Gruyter Open Access eBook</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">72</subfield><subfield code="1">01</subfield><subfield code="x">0035</subfield><subfield code="b">4272652923</subfield><subfield code="h">OLR-ZDB-23-GOA</subfield><subfield code="k">De Gruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">90</subfield><subfield code="1">01</subfield><subfield code="x">3090</subfield><subfield code="b">4272656619</subfield><subfield code="h">OLR-HILdegruyter</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">91</subfield><subfield code="1">01</subfield><subfield code="x">3091</subfield><subfield code="b">4272657895</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">92</subfield><subfield code="1">01</subfield><subfield code="x">0033</subfield><subfield code="b">4272659189</subfield><subfield code="h">OLR-DGOA</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. Das Ebook ist frei zugänglich.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">100</subfield><subfield code="1">01</subfield><subfield code="x">3100</subfield><subfield code="b">4272662848</subfield><subfield code="c">09</subfield><subfield code="f">--%%--</subfield><subfield code="d">ebook deGruyter open access</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">101</subfield><subfield code="1">01</subfield><subfield code="x">3101</subfield><subfield code="b">4272664123</subfield><subfield code="c">09</subfield><subfield code="f">--%%--</subfield><subfield code="d">ebook deGruyter open access</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">105</subfield><subfield code="1">01</subfield><subfield code="x">0841</subfield><subfield code="b">4272665405</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">DeGruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">110</subfield><subfield code="1">01</subfield><subfield code="x">3110</subfield><subfield code="b">4272669141</subfield><subfield code="h">OLR-OA-DEGRUYTER</subfield><subfield code="k">Kostenloser Zugriff</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">120</subfield><subfield code="1">01</subfield><subfield code="x">0715</subfield><subfield code="b">4275135881</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">g</subfield><subfield code="j">--%%--</subfield><subfield code="h">alma</subfield><subfield code="y">z</subfield><subfield code="z">21-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">122</subfield><subfield code="1">01</subfield><subfield code="x">0897</subfield><subfield code="b">4272672932</subfield><subfield code="h">OLR-OA-deGruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">130</subfield><subfield code="1">01</subfield><subfield code="x">0700</subfield><subfield code="b">4272676571</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">Kostenloser Zugriff</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">131</subfield><subfield code="1">01</subfield><subfield code="x">3131</subfield><subfield code="b">4272677780</subfield><subfield code="h">OLR-OA-DeGruyter</subfield><subfield code="k">Bitte beachten Sie die Nutzungsbedingungen und Copyright-Bestimmungen des Verlages/Herausgebers</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">132</subfield><subfield code="1">01</subfield><subfield code="x">0959</subfield><subfield code="b">427267904X</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="u">Open Access</subfield><subfield code="y">x</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">136</subfield><subfield code="1">01</subfield><subfield code="x">3526</subfield><subfield code="b">4272680323</subfield><subfield code="h">OLR-degruyter-oa</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">140</subfield><subfield code="1">01</subfield><subfield code="x">0839</subfield><subfield code="b">4272684094</subfield><subfield code="h">OLR-OA-deGruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">147</subfield><subfield code="1">01</subfield><subfield code="x">3528</subfield><subfield code="b">4272687867</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">frei verfügbar für Europa-Universität Flensburg, Hochschule Flensburg und Zentrale Hochschulbibliothek</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">151</subfield><subfield code="1">01</subfield><subfield code="x">0546</subfield><subfield code="b">4272689142</subfield><subfield code="h">OLR-ZDB-23-GOA</subfield><subfield code="k">De Gruyter Open Access</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">161</subfield><subfield code="1">01</subfield><subfield code="x">0960</subfield><subfield code="b">4272690426</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">164</subfield><subfield code="1">01</subfield><subfield code="x">0916</subfield><subfield code="b">430309613X</subfield><subfield code="h">OLR-OA-DEGRUYTER</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">05-04-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">187</subfield><subfield code="1">01</subfield><subfield code="x">3520</subfield><subfield code="b">4272691716</subfield><subfield code="k">De Gruyter Open Access eBook</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">206</subfield><subfield code="1">01</subfield><subfield code="x">3350</subfield><subfield code="b">427269300X</subfield><subfield code="h">OLR-OA-DG</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">213</subfield><subfield code="1">01</subfield><subfield code="x">0551</subfield><subfield code="b">4272694294</subfield><subfield code="h">OLR-OA-Degruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">230</subfield><subfield code="1">01</subfield><subfield code="x">0552</subfield><subfield code="b">4272695576</subfield><subfield code="h">OLR-OA-Degruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">250</subfield><subfield code="1">01</subfield><subfield code="x">3250</subfield><subfield code="b">4272696858</subfield><subfield code="h">OLR-DEG</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">264</subfield><subfield code="1">01</subfield><subfield code="x">3264</subfield><subfield code="b">4272700642</subfield><subfield code="h">OLR-OA-deGruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">285</subfield><subfield code="1">01</subfield><subfield code="x">0517</subfield><subfield code="b">4272703099</subfield><subfield code="h">OLR-GRUY-OA</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">293</subfield><subfield code="1">01</subfield><subfield code="x">3293</subfield><subfield code="b">4272701940</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="y">xf</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">370</subfield><subfield code="1">01</subfield><subfield code="x">4370</subfield><subfield code="b">427270687X</subfield><subfield code="h">OLR-FREE</subfield><subfield code="k">Kostenloser Zugriff</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">496</subfield><subfield code="1">01</subfield><subfield code="x">3496</subfield><subfield code="b">4323219954</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">Online</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-EBC</subfield><subfield code="k">Open Access</subfield><subfield code="y">z</subfield><subfield code="z">17-05-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">603</subfield><subfield code="1">01</subfield><subfield code="x">4603</subfield><subfield code="b">4272708147</subfield><subfield code="c">00</subfield><subfield code="f">Online-Publikation</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-deGruyter-OA</subfield><subfield code="k">Bitte beachten Sie die Nutzungsbedingungen und Copyright-Bestimmungen des Verlages/Herausgebers!</subfield><subfield code="k">Elektronischer Volltext, Link anklicken</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">635</subfield><subfield code="1">01</subfield><subfield code="x">3635</subfield><subfield code="b">4509333641</subfield><subfield code="h">OLR-GOA</subfield><subfield code="k">Open Access. Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">09-04-24</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2007</subfield><subfield code="1">01</subfield><subfield code="x">DE-352E</subfield><subfield code="b">4473951790</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">n</subfield><subfield code="j">--%%--</subfield><subfield code="k">Open Access</subfield><subfield code="y">l01</subfield><subfield code="z">02-02-24</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2009</subfield><subfield code="1">01</subfield><subfield code="x">DE-180</subfield><subfield code="b">4268220399</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2009</subfield><subfield code="1">02</subfield><subfield code="x">DE-180</subfield><subfield code="b">4291230346</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="y">l02</subfield><subfield code="z">16-03-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2010</subfield><subfield code="1">01</subfield><subfield code="x">DE-15</subfield><subfield code="b">4268220402</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2011</subfield><subfield code="1">01</subfield><subfield code="x">DE-16</subfield><subfield code="b">4268193286</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2015</subfield><subfield code="1">01</subfield><subfield code="x">DE-93</subfield><subfield code="b">4268220410</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">p</subfield><subfield code="j">--%%--</subfield><subfield code="k">lizenzfrei</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2021</subfield><subfield code="1">01</subfield><subfield code="x">DE-289</subfield><subfield code="b">4268193294</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Open Access</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2034</subfield><subfield code="1">01</subfield><subfield code="x">DE-Rt2</subfield><subfield code="b">4268193308</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook</subfield><subfield code="e">n</subfield><subfield code="j">n</subfield><subfield code="k">frei zugänglich</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2037</subfield><subfield code="1">01</subfield><subfield code="x">DE-747</subfield><subfield code="b">4268193316</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook DeGruyter OpenAccess</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Im Internet frei verfügbar</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2039</subfield><subfield code="1">01</subfield><subfield code="x">DE-He76</subfield><subfield code="b">4433162396</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">E-Book OA</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext</subfield><subfield code="y">l01</subfield><subfield code="z">12-12-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2044</subfield><subfield code="1">01</subfield><subfield code="x">DE-751</subfield><subfield code="b">4268193324</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook de Gruyter</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Bitte beachten Sie auch die Nutzungshinweise auf unserer Homepage</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2045</subfield><subfield code="1">01</subfield><subfield code="x">DE-Mit1</subfield><subfield code="b">4268220429</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2050</subfield><subfield code="1">01</subfield><subfield code="x">DE-Zi4</subfield><subfield code="b">4268220437</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2059</subfield><subfield code="1">01</subfield><subfield code="x">DE-Kon4</subfield><subfield code="b">4268193332</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook deGruyter</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Zugang über WWW</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2063</subfield><subfield code="1">01</subfield><subfield code="x">DE-951</subfield><subfield code="b">4268193340</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">De Gruyter (Open Access)</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2064</subfield><subfield code="1">01</subfield><subfield code="x">DE-953</subfield><subfield code="b">4268193367</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook OA</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Open Access</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2065</subfield><subfield code="1">01</subfield><subfield code="x">DE-958</subfield><subfield code="b">4268193375</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook DeGruyter</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2068</subfield><subfield code="1">01</subfield><subfield code="x">DE-Fn1</subfield><subfield code="b">4268193383</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook DeGruyter</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2089</subfield><subfield code="1">01</subfield><subfield code="x">DE-540</subfield><subfield code="b">4268220445</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">p</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Open Access</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2111</subfield><subfield code="1">01</subfield><subfield code="x">DE-944</subfield><subfield code="b">4268193391</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">E-Book De Gruyter</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2112</subfield><subfield code="1">01</subfield><subfield code="x">DE-1033</subfield><subfield code="b">4352157082</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">deGruyter OA</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="y">l01</subfield><subfield code="z">11-07-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2118</subfield><subfield code="1">01</subfield><subfield code="x">DE-Mh35</subfield><subfield code="b">4268193405</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2119</subfield><subfield code="1">01</subfield><subfield code="x">DE-943</subfield><subfield code="b">4340096075</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook DeGruyter Oldenbourg</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">17-06-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2143</subfield><subfield code="1">01</subfield><subfield code="x">DE-Rav1</subfield><subfield code="b">4268193413</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">E-Book OA</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2152</subfield><subfield code="1">01</subfield><subfield code="x">DE-941</subfield><subfield code="b">4268193421</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">E-Book deGruyter</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2153</subfield><subfield code="1">01</subfield><subfield code="x">DE-Hed2</subfield><subfield code="b">426819343X</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">e-Book De Gruyter OA</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Open Access</subfield><subfield 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Birmingham, Karen |
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Birmingham, Karen Front Matter Contents List of figures and photographs List of abbreviations Authors and contributors, with current positions Acknowledgements Foreword Preface Introduction ALSPAC Ethics and Law Committee: a new concept Preliminaries and pioneers: framing the questions Informal or casual: an unusual style Advisory to independent: a missed opportunity Bureaucratic battles: liaison with Local Research Ethics Committees Policy development: a case of case law Confidentiality and anonymity: a rod for their own backs Informed consent: too much information Child protection: an observational study? Disclosure of individual results: foreseen feedback and incidental findings Disclosure of individual results: participants' requests Participants' problems: people not policies External databases: anonymous linkage Beyond policy: a broad remit Retention of the Cohort: incentives or inducements Commercial collaborations: selling our souls Comprehensive oversight: undocumented and unacknowledged Influence beyond ALSPAC: extension of expertise Conclusions Postscript Notes References ALSPAC Steering Committee: founding members ALSPAC Ethics and Law Committee members: appointed 1990-2005 Letter to participants: further information concerning confidentiality Young Mothers paper by Elizabeth Mumford The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies Index misc Social sciences (General) misc Families misc Longitudinal method misc Research misc SOCIAL SCIENCE / Research 31 e-book DeGruyter 122 Open Access 132 EBooks DeGruyter Open Access 140 Open Access 264 Open Access Pioneering Ethics in a Longitudinal Study The Early Development of the ALSPAC Ethics and Law Committee |
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Front Matter Contents List of figures and photographs List of abbreviations Authors and contributors, with current positions Acknowledgements Foreword Preface Introduction ALSPAC Ethics and Law Committee: a new concept Preliminaries and pioneers: framing the questions Informal or casual: an unusual style Advisory to independent: a missed opportunity Bureaucratic battles: liaison with Local Research Ethics Committees Policy development: a case of case law Confidentiality and anonymity: a rod for their own backs Informed consent: too much information Child protection: an observational study? Disclosure of individual results: foreseen feedback and incidental findings Disclosure of individual results: participants' requests Participants' problems: people not policies External databases: anonymous linkage Beyond policy: a broad remit Retention of the Cohort: incentives or inducements Commercial collaborations: selling our souls Comprehensive oversight: undocumented and unacknowledged Influence beyond ALSPAC: extension of expertise Conclusions Postscript Notes References ALSPAC Steering Committee: founding members ALSPAC Ethics and Law Committee members: appointed 1990-2005 Letter to participants: further information concerning confidentiality Young Mothers paper by Elizabeth Mumford The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies Index |
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Pioneering Ethics in a Longitudinal Study The Early Development of the ALSPAC Ethics and Law Committee |
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Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed |
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Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed |
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Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed |
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The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. 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code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">60</subfield><subfield code="1">01</subfield><subfield code="x">0705</subfield><subfield code="b">4272642367</subfield><subfield code="h">Olr-dggoa</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">62</subfield><subfield code="1">01</subfield><subfield code="x">0028</subfield><subfield code="b">4272644025</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">DeGruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">63</subfield><subfield code="1">01</subfield><subfield code="x">3401</subfield><subfield code="b">4272645218</subfield><subfield code="h">E-Books LF</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">65</subfield><subfield code="1">01</subfield><subfield code="x">0003</subfield><subfield code="b">4272646532</subfield><subfield code="c">03</subfield><subfield code="f">--%%--</subfield><subfield code="d">ebook</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-GBV-deGruyter-OA</subfield><subfield code="k">DeGruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">69</subfield><subfield code="1">01</subfield><subfield code="x">0009</subfield><subfield code="b">4272650289</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">De Gruyter Open Access</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Keine Weitergabe an Dritte. Kein systematisches Downloaden.</subfield><subfield code="y">x</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">70</subfield><subfield code="1">01</subfield><subfield code="x">0089</subfield><subfield code="b">427265151X</subfield><subfield code="h">OLR-DG-OA</subfield><subfield code="k">De Gruyter Open Access eBook</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">72</subfield><subfield code="1">01</subfield><subfield code="x">0035</subfield><subfield code="b">4272652923</subfield><subfield code="h">OLR-ZDB-23-GOA</subfield><subfield code="k">De Gruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">90</subfield><subfield code="1">01</subfield><subfield code="x">3090</subfield><subfield code="b">4272656619</subfield><subfield code="h">OLR-HILdegruyter</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">91</subfield><subfield code="1">01</subfield><subfield code="x">3091</subfield><subfield code="b">4272657895</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">92</subfield><subfield code="1">01</subfield><subfield code="x">0033</subfield><subfield code="b">4272659189</subfield><subfield code="h">OLR-DGOA</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. Das Ebook ist frei zugänglich.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">100</subfield><subfield code="1">01</subfield><subfield code="x">3100</subfield><subfield code="b">4272662848</subfield><subfield code="c">09</subfield><subfield code="f">--%%--</subfield><subfield code="d">ebook deGruyter open access</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">101</subfield><subfield code="1">01</subfield><subfield code="x">3101</subfield><subfield code="b">4272664123</subfield><subfield code="c">09</subfield><subfield code="f">--%%--</subfield><subfield code="d">ebook deGruyter open access</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">105</subfield><subfield code="1">01</subfield><subfield code="x">0841</subfield><subfield code="b">4272665405</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">DeGruyter Open Access Titel</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">110</subfield><subfield code="1">01</subfield><subfield code="x">3110</subfield><subfield code="b">4272669141</subfield><subfield code="h">OLR-OA-DEGRUYTER</subfield><subfield code="k">Kostenloser Zugriff</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">120</subfield><subfield code="1">01</subfield><subfield code="x">0715</subfield><subfield code="b">4275135881</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">g</subfield><subfield code="j">--%%--</subfield><subfield code="h">alma</subfield><subfield code="y">z</subfield><subfield code="z">21-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">122</subfield><subfield code="1">01</subfield><subfield code="x">0897</subfield><subfield code="b">4272672932</subfield><subfield code="h">OLR-OA-deGruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">130</subfield><subfield code="1">01</subfield><subfield code="x">0700</subfield><subfield code="b">4272676571</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">Kostenloser Zugriff</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">131</subfield><subfield code="1">01</subfield><subfield code="x">3131</subfield><subfield code="b">4272677780</subfield><subfield code="h">OLR-OA-DeGruyter</subfield><subfield code="k">Bitte beachten Sie die Nutzungsbedingungen und Copyright-Bestimmungen des Verlages/Herausgebers</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">132</subfield><subfield code="1">01</subfield><subfield code="x">0959</subfield><subfield code="b">427267904X</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="u">Open Access</subfield><subfield code="y">x</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">136</subfield><subfield code="1">01</subfield><subfield code="x">3526</subfield><subfield code="b">4272680323</subfield><subfield code="h">OLR-degruyter-oa</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">140</subfield><subfield code="1">01</subfield><subfield code="x">0839</subfield><subfield code="b">4272684094</subfield><subfield code="h">OLR-OA-deGruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">147</subfield><subfield code="1">01</subfield><subfield code="x">3528</subfield><subfield code="b">4272687867</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="k">frei verfügbar für Europa-Universität Flensburg, Hochschule Flensburg und Zentrale Hochschulbibliothek</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">151</subfield><subfield code="1">01</subfield><subfield code="x">0546</subfield><subfield code="b">4272689142</subfield><subfield code="h">OLR-ZDB-23-GOA</subfield><subfield code="k">De Gruyter Open Access</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">161</subfield><subfield code="1">01</subfield><subfield code="x">0960</subfield><subfield code="b">4272690426</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">164</subfield><subfield code="1">01</subfield><subfield code="x">0916</subfield><subfield code="b">430309613X</subfield><subfield code="h">OLR-OA-DEGRUYTER</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">05-04-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">187</subfield><subfield code="1">01</subfield><subfield code="x">3520</subfield><subfield code="b">4272691716</subfield><subfield code="k">De Gruyter Open Access eBook</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">206</subfield><subfield code="1">01</subfield><subfield code="x">3350</subfield><subfield code="b">427269300X</subfield><subfield code="h">OLR-OA-DG</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">213</subfield><subfield code="1">01</subfield><subfield code="x">0551</subfield><subfield code="b">4272694294</subfield><subfield code="h">OLR-OA-Degruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">230</subfield><subfield code="1">01</subfield><subfield code="x">0552</subfield><subfield code="b">4272695576</subfield><subfield code="h">OLR-OA-Degruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">250</subfield><subfield code="1">01</subfield><subfield code="x">3250</subfield><subfield code="b">4272696858</subfield><subfield code="h">OLR-DEG</subfield><subfield code="k">Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">264</subfield><subfield code="1">01</subfield><subfield code="x">3264</subfield><subfield code="b">4272700642</subfield><subfield code="h">OLR-OA-deGruyter</subfield><subfield code="k">Dieser Volltext ist kostenlos und unbeschränkt zur wissenschaftlichen Information im Internet zugänglich</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">285</subfield><subfield code="1">01</subfield><subfield code="x">0517</subfield><subfield code="b">4272703099</subfield><subfield code="h">OLR-GRUY-OA</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">293</subfield><subfield code="1">01</subfield><subfield code="x">3293</subfield><subfield code="b">4272701940</subfield><subfield code="h">OLR-DGGOA</subfield><subfield code="y">xf</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">370</subfield><subfield code="1">01</subfield><subfield code="x">4370</subfield><subfield code="b">427270687X</subfield><subfield code="h">OLR-FREE</subfield><subfield code="k">Kostenloser Zugriff</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">496</subfield><subfield code="1">01</subfield><subfield code="x">3496</subfield><subfield code="b">4323219954</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">Online</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-EBC</subfield><subfield code="k">Open Access</subfield><subfield code="y">z</subfield><subfield code="z">17-05-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">603</subfield><subfield code="1">01</subfield><subfield code="x">4603</subfield><subfield code="b">4272708147</subfield><subfield code="c">00</subfield><subfield code="f">Online-Publikation</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="h">OLR-deGruyter-OA</subfield><subfield code="k">Bitte beachten Sie die Nutzungsbedingungen und Copyright-Bestimmungen des Verlages/Herausgebers!</subfield><subfield code="k">Elektronischer Volltext, Link anklicken</subfield><subfield code="y">z</subfield><subfield code="z">15-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">635</subfield><subfield code="1">01</subfield><subfield code="x">3635</subfield><subfield code="b">4509333641</subfield><subfield code="h">OLR-GOA</subfield><subfield code="k">Open Access. Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt.</subfield><subfield code="y">z</subfield><subfield code="z">09-04-24</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2007</subfield><subfield code="1">01</subfield><subfield code="x">DE-352E</subfield><subfield code="b">4473951790</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">n</subfield><subfield code="j">--%%--</subfield><subfield code="k">Open Access</subfield><subfield code="y">l01</subfield><subfield code="z">02-02-24</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2009</subfield><subfield code="1">01</subfield><subfield code="x">DE-180</subfield><subfield code="b">4268220399</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2009</subfield><subfield code="1">02</subfield><subfield code="x">DE-180</subfield><subfield code="b">4291230346</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="y">l02</subfield><subfield code="z">16-03-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2010</subfield><subfield code="1">01</subfield><subfield code="x">DE-15</subfield><subfield code="b">4268220402</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Campuslizenz</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2011</subfield><subfield code="1">01</subfield><subfield code="x">DE-16</subfield><subfield code="b">4268193286</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">--%%--</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2015</subfield><subfield code="1">01</subfield><subfield code="x">DE-93</subfield><subfield code="b">4268220410</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">p</subfield><subfield code="j">--%%--</subfield><subfield code="k">lizenzfrei</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2021</subfield><subfield code="1">01</subfield><subfield code="x">DE-289</subfield><subfield code="b">4268193294</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Open Access</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2034</subfield><subfield code="1">01</subfield><subfield code="x">DE-Rt2</subfield><subfield code="b">4268193308</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook</subfield><subfield code="e">n</subfield><subfield code="j">n</subfield><subfield code="k">frei zugänglich</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2037</subfield><subfield code="1">01</subfield><subfield code="x">DE-747</subfield><subfield code="b">4268193316</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">eBook DeGruyter OpenAccess</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Im Internet frei verfügbar</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2039</subfield><subfield code="1">01</subfield><subfield code="x">DE-He76</subfield><subfield code="b">4433162396</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">E-Book OA</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext</subfield><subfield code="y">l01</subfield><subfield code="z">12-12-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" 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code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2089</subfield><subfield code="1">01</subfield><subfield code="x">DE-540</subfield><subfield code="b">4268220445</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">--%%--</subfield><subfield code="e">p</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - Open Access</subfield><subfield code="y">l01</subfield><subfield code="z">07-02-23</subfield></datafield><datafield tag="980" ind1=" " ind2=" "><subfield code="2">2111</subfield><subfield code="1">01</subfield><subfield code="x">DE-944</subfield><subfield code="b">4268193391</subfield><subfield code="c">00</subfield><subfield code="f">--%%--</subfield><subfield code="d">E-Book De Gruyter</subfield><subfield code="e">--%%--</subfield><subfield code="j">n</subfield><subfield code="k">Elektronischer Volltext - 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