The ethical and legal regulation of human tissue and biobank research in Europe : Proceedings of the Tiss.EU Project

Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across co...
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Autor*in:	Beier, Katharina [verfasserIn] Schnorrer, Silvia [herausgeberIn] Hoppe, Nils [herausgeberIn] Lenk, Christian [herausgeberIn]

Format:	E-Book
Sprache:	Englisch

Erschienen:	Erscheinungsort nicht ermittelbar: Universitätsverlag Göttingen ; 2011

Rechteinformationen:	Open Access Creative Commons ; by-nd/3.0/de

Schlagwörter:	Medicine Ethical issues: scientific & technological developments Medical ethics & professional conduct Medicine and Nursing Ethical issues: scientific, technological and medical developments Medical ethics and professional conduct

Umfang:	1 Online-Ressource

Links:	Link aufrufen Link aufrufen Link aufrufen

Katalog-ID:	1836421397

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However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. 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The volume is completed by a final presentation of project’s results Creative Commons by-nd/3.0/de cc English Medicine Ethical issues: scientific & technological developments Medical ethics & professional conduct Medicine and Nursing Ethical issues: scientific, technological and medical developments Medical ethics and professional conduct Schnorrer, Silvia herausgeberin edt Hoppe, Nils herausgeberin edt Lenk, Christian herausgeberin edt https://library.oapen.org/bitstream/id/9290c29a-df98-4cf4-b471-64cb662b09d8/tiss_eu_book.pdf X:OAPEN Verlag OAPEN Library: download the publication kostenfrei http://library.oapen.org/handle/20.500.12657/36999 X:OAPEN Verlag OAPEN Library: description of the publication kostenfrei ZDB-94-OAL GBV_ILN_22 ISIL_DE-18 SYSFLAG_1 GBV_KXP GBV_ILN_23 ISIL_DE-830 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_95 ISIL_DE-542 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_161 ISIL_DE-960 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_283 ISIL_DE-Ha163 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_808 GBV_ILN_2403 ISIL_DE-LFER BO 22 01 0018 4280080089 OLR-ZDB-94-OAL OAPEN Library zu 01-03-23 23 01 0830 4280631913 OLR-OAPEN f z 01-03-23 30 01 0104 4280992126 GBV-OAPEN z 01-03-23 31 01 0027 4280274800 z 01-03-23 34 01 3551 4278830351 OLR-OAPEN zi002 01-03-23 39 01 0547 4281182721 GBV-OAPEN ke 01-03-23 40 01 0007 4279898855 OLR-OAPEN xsn 01-03-23 63 01 3401 4281562966 E-Books LF GBV-OAPEN z 01-03-23 65 01 0003 4281802460 OLR-OAPEN z 01-03-23 70 01 0089 4280453012 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 72 01 0035 427864910X OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 95 01 3095 4343178390 OLR-OAL Vervielfältigungen (z.B. 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spelling	(DE-627)1836421397 (DE-599)KEP06215088X (OCoLC)1286421157 (OAPEN)36999 (EBP)06215088X DE-627 eng DE-627 rda eng JFMG bicssc M bicssc MBDC bicssc JBFV5 bicssc Beier, Katharina verfasserin aut The ethical and legal regulation of human tissue and biobank research in Europe Proceedings of the Tiss.EU Project [Erscheinungsort nicht ermittelbar] Universitätsverlag Göttingen 2011 1 Online-Ressource Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Open Access Unrestricted online access star Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results Creative Commons by-nd/3.0/de cc English Medicine Ethical issues: scientific & technological developments Medical ethics & professional conduct Medicine and Nursing Ethical issues: scientific, technological and medical developments Medical ethics and professional conduct Schnorrer, Silvia herausgeberin edt Hoppe, Nils herausgeberin edt Lenk, Christian herausgeberin edt https://library.oapen.org/bitstream/id/9290c29a-df98-4cf4-b471-64cb662b09d8/tiss_eu_book.pdf X:OAPEN Verlag OAPEN Library: download the publication kostenfrei http://library.oapen.org/handle/20.500.12657/36999 X:OAPEN Verlag OAPEN Library: description of the publication kostenfrei ZDB-94-OAL GBV_ILN_22 ISIL_DE-18 SYSFLAG_1 GBV_KXP GBV_ILN_23 ISIL_DE-830 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_95 ISIL_DE-542 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_161 ISIL_DE-960 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_283 ISIL_DE-Ha163 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_808 GBV_ILN_2403 ISIL_DE-LFER BO 22 01 0018 4280080089 OLR-ZDB-94-OAL OAPEN Library zu 01-03-23 23 01 0830 4280631913 OLR-OAPEN f z 01-03-23 30 01 0104 4280992126 GBV-OAPEN z 01-03-23 31 01 0027 4280274800 z 01-03-23 34 01 3551 4278830351 OLR-OAPEN zi002 01-03-23 39 01 0547 4281182721 GBV-OAPEN ke 01-03-23 40 01 0007 4279898855 OLR-OAPEN xsn 01-03-23 63 01 3401 4281562966 E-Books LF GBV-OAPEN z 01-03-23 65 01 0003 4281802460 OLR-OAPEN z 01-03-23 70 01 0089 4280453012 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 72 01 0035 427864910X OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 95 01 3095 4343178390 OLR-OAL Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 24-06-23 110 01 3110 4281367519 OLR-GBV-OAPEN Open Access z 01-03-23 136 01 3526 4279539928 OLR-OAPEN z 01-03-23 147 01 3528 4282011262 OLR-OAPEN frei verfügbar für Europa-Universität Flensburg, Hochschule Flensburg und Zentrale Hochschulbibliothek Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 01-03-23 161 01 0960 4278086539 OLR-OAPEN OAPEN Online Library Open Access eBook z 28-02-23 187 01 3520 4278471521 JSTOR Open Access eBook z 28-02-23 213 01 0551 4279185530 OLR-OAPEN OAPEN Online Library Open Access eBook z 01-03-23 230 01 0552 4279362718 OLR-OAPEN OAPEN Online Library Open Access eBook z 01-03-23 283 01 3283 4279721629 OLR-OAL z 01-03-23 293 01 3293 4278265743 OLR-OAPEN OAPEN Online Library Open Access eBook z 28-02-23 370 01 4370 4279008108 OLR-FREE Kostenloser Zugriff z 01-03-23 603 01 4603 4277908691 OLR-OAPEN Bitte beachten Sie die Nutzungsbedingungen und Copyright-Bestimmungen des Verlages/Herausgebers. z 28-02-23 808 01 4808 4280810842 OLR-OAPEN OAPEN Library zg 01-03-23 2403 01 DE-LFER 4307494725 00 --%%-- --%%-- n --%%-- l01 11-04-23 22 01 0018 Volltextzugang http://library.oapen.org/handle/20.500.12657/36999 23 01 0830 http://library.oapen.org/handle/20.500.12657/36999 30 01 0104 Open Access http://library.oapen.org/handle/20.500.12657/36999 31 01 0027 eBook GBV-OAPEN http://library.oapen.org/handle/20.500.12657/36999 34 01 3551 OpenAccess http://library.oapen.org/handle/20.500.12657/36999 40 01 0007 Volltext, Open Access http://library.oapen.org/handle/20.500.12657/36999 63 01 3401 E-Book http://library.oapen.org/handle/20.500.12657/36999 65 01 0003 Open Access http://library.oapen.org/handle/20.500.12657/36999 65 01 0003 Dieser Titel ist Teil einer Datenbank http://www.bibliothek.uni-regensburg.de/dbinfo/detail.php?titel_id=10728&bib_id=ulb_hal 70 01 0089 http://library.oapen.org/handle/20.500.12657/36999 LF 72 01 0035 http://library.oapen.org/handle/20.500.12657/36999 95 01 3095 http://library.oapen.org/handle/20.500.12657/36999 110 01 3110 Open Access http://library.oapen.org/handle/20.500.12657/36999 136 01 3526 Open Access http://library.oapen.org/handle/20.500.12657/36999 147 01 3528 http://library.oapen.org/handle/20.500.12657/36999 161 01 0960 http://library.oapen.org/handle/20.500.12657/36999 LF 187 01 3520 http://library.oapen.org/handle/20.500.12657/36999 213 01 0551 http://library.oapen.org/handle/20.500.12657/36999 230 01 0552 http://library.oapen.org/handle/20.500.12657/36999 283 01 3283 http://library.oapen.org/handle/20.500.12657/36999 293 01 3293 http://library.oapen.org/handle/20.500.12657/36999 LF 370 01 4370 http://library.oapen.org/handle/20.500.12657/36999 603 01 4603 http://library.oapen.org/handle/20.500.12657/36999 808 01 4808 Volltextzugang http://library.oapen.org/handle/20.500.12657/36999 2403 01 DE-LFER https://library.oapen.org/bitstream/id/9290c29a-df98-4cf4-b471-64cb662b09d8/tiss_eu_book.pdf 31 01 0027 00 eBook GBV-OAPEN 22 01 0018 OLR-ZDB-94-OAL 23 01 0830 OLR-OAPEN 30 01 0104 GBV-OAPEN 34 01 3551 OLR-OAPEN 39 01 0547 GBV-OAPEN 39 01 0547 LF 40 01 0007 OLR-OAPEN 63 01 3401 E-Books LF GBV-OAPEN 65 01 0003 OLR-OAPEN 70 01 0089 OLR-OAPEN-OA 72 01 0035 OLR-OAPEN-OA 95 01 3095 OLR-OAL 110 01 3110 OLR-GBV-OAPEN 136 01 3526 OLR-OAPEN 147 01 3528 OLR-OAPEN 161 01 0960 OLR-OAPEN 213 01 0551 OLR-OAPEN 230 01 0552 OLR-OAPEN 283 01 3283 OLR-OAL 293 01 3293 OLR-OAPEN 370 01 4370 OLR-FREE 370 01 4370 olr-ebook GBV-OAPEN 603 01 4603 OLR-OAPEN 808 01 4808 OLR-OAPEN
allfields_unstemmed	(DE-627)1836421397 (DE-599)KEP06215088X (OCoLC)1286421157 (OAPEN)36999 (EBP)06215088X DE-627 eng DE-627 rda eng JFMG bicssc M bicssc MBDC bicssc JBFV5 bicssc Beier, Katharina verfasserin aut The ethical and legal regulation of human tissue and biobank research in Europe Proceedings of the Tiss.EU Project [Erscheinungsort nicht ermittelbar] Universitätsverlag Göttingen 2011 1 Online-Ressource Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Open Access Unrestricted online access star Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results Creative Commons by-nd/3.0/de cc English Medicine Ethical issues: scientific & technological developments Medical ethics & professional conduct Medicine and Nursing Ethical issues: scientific, technological and medical developments Medical ethics and professional conduct Schnorrer, Silvia herausgeberin edt Hoppe, Nils herausgeberin edt Lenk, Christian herausgeberin edt https://library.oapen.org/bitstream/id/9290c29a-df98-4cf4-b471-64cb662b09d8/tiss_eu_book.pdf X:OAPEN Verlag OAPEN Library: download the publication kostenfrei http://library.oapen.org/handle/20.500.12657/36999 X:OAPEN Verlag OAPEN Library: description of the publication kostenfrei ZDB-94-OAL GBV_ILN_22 ISIL_DE-18 SYSFLAG_1 GBV_KXP GBV_ILN_23 ISIL_DE-830 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_95 ISIL_DE-542 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_161 ISIL_DE-960 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_283 ISIL_DE-Ha163 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_808 GBV_ILN_2403 ISIL_DE-LFER BO 22 01 0018 4280080089 OLR-ZDB-94-OAL OAPEN Library zu 01-03-23 23 01 0830 4280631913 OLR-OAPEN f z 01-03-23 30 01 0104 4280992126 GBV-OAPEN z 01-03-23 31 01 0027 4280274800 z 01-03-23 34 01 3551 4278830351 OLR-OAPEN zi002 01-03-23 39 01 0547 4281182721 GBV-OAPEN ke 01-03-23 40 01 0007 4279898855 OLR-OAPEN xsn 01-03-23 63 01 3401 4281562966 E-Books LF GBV-OAPEN z 01-03-23 65 01 0003 4281802460 OLR-OAPEN z 01-03-23 70 01 0089 4280453012 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 72 01 0035 427864910X OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 95 01 3095 4343178390 OLR-OAL Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 24-06-23 110 01 3110 4281367519 OLR-GBV-OAPEN Open Access z 01-03-23 136 01 3526 4279539928 OLR-OAPEN z 01-03-23 147 01 3528 4282011262 OLR-OAPEN frei verfügbar für Europa-Universität Flensburg, Hochschule Flensburg und Zentrale Hochschulbibliothek Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 01-03-23 161 01 0960 4278086539 OLR-OAPEN OAPEN Online Library Open Access eBook z 28-02-23 187 01 3520 4278471521 JSTOR Open Access eBook z 28-02-23 213 01 0551 4279185530 OLR-OAPEN OAPEN Online Library Open Access eBook z 01-03-23 230 01 0552 4279362718 OLR-OAPEN OAPEN Online Library Open Access eBook z 01-03-23 283 01 3283 4279721629 OLR-OAL z 01-03-23 293 01 3293 4278265743 OLR-OAPEN OAPEN Online Library Open Access eBook z 28-02-23 370 01 4370 4279008108 OLR-FREE Kostenloser Zugriff z 01-03-23 603 01 4603 4277908691 OLR-OAPEN Bitte beachten Sie die Nutzungsbedingungen und Copyright-Bestimmungen des Verlages/Herausgebers. z 28-02-23 808 01 4808 4280810842 OLR-OAPEN OAPEN Library zg 01-03-23 2403 01 DE-LFER 4307494725 00 --%%-- --%%-- n --%%-- l01 11-04-23 22 01 0018 Volltextzugang http://library.oapen.org/handle/20.500.12657/36999 23 01 0830 http://library.oapen.org/handle/20.500.12657/36999 30 01 0104 Open Access http://library.oapen.org/handle/20.500.12657/36999 31 01 0027 eBook GBV-OAPEN http://library.oapen.org/handle/20.500.12657/36999 34 01 3551 OpenAccess http://library.oapen.org/handle/20.500.12657/36999 40 01 0007 Volltext, Open Access http://library.oapen.org/handle/20.500.12657/36999 63 01 3401 E-Book http://library.oapen.org/handle/20.500.12657/36999 65 01 0003 Open Access http://library.oapen.org/handle/20.500.12657/36999 65 01 0003 Dieser Titel ist Teil einer Datenbank http://www.bibliothek.uni-regensburg.de/dbinfo/detail.php?titel_id=10728&bib_id=ulb_hal 70 01 0089 http://library.oapen.org/handle/20.500.12657/36999 LF 72 01 0035 http://library.oapen.org/handle/20.500.12657/36999 95 01 3095 http://library.oapen.org/handle/20.500.12657/36999 110 01 3110 Open Access http://library.oapen.org/handle/20.500.12657/36999 136 01 3526 Open Access http://library.oapen.org/handle/20.500.12657/36999 147 01 3528 http://library.oapen.org/handle/20.500.12657/36999 161 01 0960 http://library.oapen.org/handle/20.500.12657/36999 LF 187 01 3520 http://library.oapen.org/handle/20.500.12657/36999 213 01 0551 http://library.oapen.org/handle/20.500.12657/36999 230 01 0552 http://library.oapen.org/handle/20.500.12657/36999 283 01 3283 http://library.oapen.org/handle/20.500.12657/36999 293 01 3293 http://library.oapen.org/handle/20.500.12657/36999 LF 370 01 4370 http://library.oapen.org/handle/20.500.12657/36999 603 01 4603 http://library.oapen.org/handle/20.500.12657/36999 808 01 4808 Volltextzugang http://library.oapen.org/handle/20.500.12657/36999 2403 01 DE-LFER https://library.oapen.org/bitstream/id/9290c29a-df98-4cf4-b471-64cb662b09d8/tiss_eu_book.pdf 31 01 0027 00 eBook GBV-OAPEN 22 01 0018 OLR-ZDB-94-OAL 23 01 0830 OLR-OAPEN 30 01 0104 GBV-OAPEN 34 01 3551 OLR-OAPEN 39 01 0547 GBV-OAPEN 39 01 0547 LF 40 01 0007 OLR-OAPEN 63 01 3401 E-Books LF GBV-OAPEN 65 01 0003 OLR-OAPEN 70 01 0089 OLR-OAPEN-OA 72 01 0035 OLR-OAPEN-OA 95 01 3095 OLR-OAL 110 01 3110 OLR-GBV-OAPEN 136 01 3526 OLR-OAPEN 147 01 3528 OLR-OAPEN 161 01 0960 OLR-OAPEN 213 01 0551 OLR-OAPEN 230 01 0552 OLR-OAPEN 283 01 3283 OLR-OAL 293 01 3293 OLR-OAPEN 370 01 4370 OLR-FREE 370 01 4370 olr-ebook GBV-OAPEN 603 01 4603 OLR-OAPEN 808 01 4808 OLR-OAPEN
allfieldsGer	(DE-627)1836421397 (DE-599)KEP06215088X (OCoLC)1286421157 (OAPEN)36999 (EBP)06215088X DE-627 eng DE-627 rda eng JFMG bicssc M bicssc MBDC bicssc JBFV5 bicssc Beier, Katharina verfasserin aut The ethical and legal regulation of human tissue and biobank research in Europe Proceedings of the Tiss.EU Project [Erscheinungsort nicht ermittelbar] Universitätsverlag Göttingen 2011 1 Online-Ressource Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Open Access Unrestricted online access star Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. 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allfieldsSound	(DE-627)1836421397 (DE-599)KEP06215088X (OCoLC)1286421157 (OAPEN)36999 (EBP)06215088X DE-627 eng DE-627 rda eng JFMG bicssc M bicssc MBDC bicssc JBFV5 bicssc Beier, Katharina verfasserin aut The ethical and legal regulation of human tissue and biobank research in Europe Proceedings of the Tiss.EU Project [Erscheinungsort nicht ermittelbar] Universitätsverlag Göttingen 2011 1 Online-Ressource Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Open Access Unrestricted online access star Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. 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The volume is completed by a final presentation of project’s results Creative Commons by-nd/3.0/de cc English Medicine Ethical issues: scientific & technological developments Medical ethics & professional conduct Medicine and Nursing Ethical issues: scientific, technological and medical developments Medical ethics and professional conduct Schnorrer, Silvia herausgeberin edt Hoppe, Nils herausgeberin edt Lenk, Christian herausgeberin edt https://library.oapen.org/bitstream/id/9290c29a-df98-4cf4-b471-64cb662b09d8/tiss_eu_book.pdf X:OAPEN Verlag OAPEN Library: download the publication kostenfrei http://library.oapen.org/handle/20.500.12657/36999 X:OAPEN Verlag OAPEN Library: description of the publication kostenfrei ZDB-94-OAL GBV_ILN_22 ISIL_DE-18 SYSFLAG_1 GBV_KXP GBV_ILN_23 ISIL_DE-830 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_95 ISIL_DE-542 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_161 ISIL_DE-960 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_283 ISIL_DE-Ha163 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_808 GBV_ILN_2403 ISIL_DE-LFER BO 22 01 0018 4280080089 OLR-ZDB-94-OAL OAPEN Library zu 01-03-23 23 01 0830 4280631913 OLR-OAPEN f z 01-03-23 30 01 0104 4280992126 GBV-OAPEN z 01-03-23 31 01 0027 4280274800 z 01-03-23 34 01 3551 4278830351 OLR-OAPEN zi002 01-03-23 39 01 0547 4281182721 GBV-OAPEN ke 01-03-23 40 01 0007 4279898855 OLR-OAPEN xsn 01-03-23 63 01 3401 4281562966 E-Books LF GBV-OAPEN z 01-03-23 65 01 0003 4281802460 OLR-OAPEN z 01-03-23 70 01 0089 4280453012 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 72 01 0035 427864910X OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 95 01 3095 4343178390 OLR-OAL Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 24-06-23 110 01 3110 4281367519 OLR-GBV-OAPEN Open Access z 01-03-23 136 01 3526 4279539928 OLR-OAPEN z 01-03-23 147 01 3528 4282011262 OLR-OAPEN frei verfügbar für Europa-Universität Flensburg, Hochschule Flensburg und Zentrale Hochschulbibliothek Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. 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title	The ethical and legal regulation of human tissue and biobank research in Europe Proceedings of the Tiss.EU Project
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title_full	The ethical and legal regulation of human tissue and biobank research in Europe Proceedings of the Tiss.EU Project
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title_auth	The ethical and legal regulation of human tissue and biobank research in Europe Proceedings of the Tiss.EU Project
abstract	Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results
abstractGer	Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results
abstract_unstemmed	Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results
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The ethical and legal regulation of human tissue and biobank research in Europe : Proceedings of the Tiss.EU Project

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