Chapter 9 Which Patient Takes Centre Stage? : Placing Patient Voices in Animal Research
The growth of personalised medicine and patient partnerships in biomedical research are reshaping both the emotional and material intersections between human patients and animal research. Through tracing the creative work of patients, publics, scientists, clinicians, artists, film-makers, and campai...
Ausführliche Beschreibung
Autor*in: |
Davies, Gail [verfasserIn] |
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Format: |
E-Book |
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Sprache: |
Englisch |
Erschienen: |
Erscheinungsort nicht ermittelbar: Springer Nature ; 2020 |
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Rechteinformationen: |
Open Access Creative Commons ; https://creativecommons.org/licenses/by/4.0 |
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Schlagwörter: |
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Umfang: |
1 Online-Ressource (15 p.) |
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Links: | |
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ISBN: |
978-3-030-21406-7 |
Katalog-ID: |
1836483007 |
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9783030214067 9 978-3-030-21406-7 978 (DE-627)1836483007 (DE-599)KEP077611055 (OCoLC)1286311071 (OAPEN)47368 (EBP)077611055 DE-627 eng DE-627 rda eng MQW bicssc Davies, Gail verfasserin aut Chapter 9 Which Patient Takes Centre Stage? Placing Patient Voices in Animal Research [Erscheinungsort nicht ermittelbar] Springer Nature 2020 1 Online-Ressource (15 p.) Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Open Access Unrestricted online access star The growth of personalised medicine and patient partnerships in biomedical research are reshaping both the emotional and material intersections between human patients and animal research. Through tracing the creative work of patients, publics, scientists, clinicians, artists, film-makers, and campaigning groups this chapter explores how ‘patient voices’ are being rearticulated and represented around animal research. The figure of ‘the patient’ has been a powerful actor in arguments around animal research, mostly ‘spoken for’ by formal organisations, especially in publicity material making ethical justifications for the need and funding of medical research. Here, patient voices make corporeal needs legible, gather expectations and resources, and provide the horizon for embodying future hopes. However, the accessibility of digital media, alongside local institutional experiments in openness, is creating alternative spaces for voicing patient interfaces with animal research. On research establishment websites, and elsewhere, patients’ perspectives are emerging in short films, taking up positions as narrators, tour guides, and commentators, inviting the public to follow them into these previously inaccessible spaces. The embodied experience of patients, sometimes severely affected by the current absences in biomedical research, are used to authorise their presence in these places, and allow them to ask questions of animal researchers. The films are powerful and emotional vehicles for voicing patient experiences and opening up animal research. They also refigure the affective responsibilities around animal research, resituating a public debate around ethics within the body of the patient. The future expectations personified in the abstract figure of the patient, are rendered turbulent in the ambiguous corporeal encounter between human and animals undergoing similar experiences of suffering Creative Commons https://creativecommons.org/licenses/by/4.0 cc English Biomedical engineering Gorman, Richard oth Crudgington, Bentley oth https://library.oapen.org/bitstream/id/dd6d938a-b5b0-436f-8288-eb37ad0bd0d8/Bookshelf_NBK550914.pdf X:OAPEN Verlag kostenfrei https://library.oapen.org/handle/20.500.12657/47368 X:OAPEN Verlag kostenfrei ZDB-94-OAL GBV_ILN_22 ISIL_DE-18 SYSFLAG_1 GBV_KXP GBV_ILN_23 ISIL_DE-830 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_95 ISIL_DE-542 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_161 ISIL_DE-960 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_283 ISIL_DE-Ha163 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_808 GBV_ILN_2403 ISIL_DE-LFER BO 22 01 0018 4280139180 OLR-ZDB-94-OAL OAPEN Library zu 01-03-23 23 01 0830 4280691355 OLR-OAPEN f z 01-03-23 30 01 0104 4281052143 GBV-OAPEN z 01-03-23 31 01 0027 4280333947 z 01-03-23 34 01 3551 4278889461 OLR-OAPEN zi002 01-03-23 39 01 0547 4281243321 GBV-OAPEN ke 01-03-23 40 01 0007 4279957959 OLR-OAPEN xsn 01-03-23 63 01 3401 4281625666 E-Books LF GBV-OAPEN z 01-03-23 65 01 0003 4281875158 OLR-OAPEN z 01-03-23 70 01 0089 4280512329 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 72 01 0035 4278712073 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 95 01 3095 4343239853 OLR-OAL Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 24-06-23 110 01 3110 4281428410 OLR-GBV-OAPEN Open Access z 01-03-23 136 01 3526 4279602255 OLR-OAPEN z 01-03-23 147 01 3528 4282074019 OLR-OAPEN frei verfügbar für Europa-Universität Flensburg, Hochschule Flensburg und Zentrale Hochschulbibliothek Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 01-03-23 161 01 0960 4278145896 OLR-OAPEN OAPEN Online Library Open Access eBook z 28-02-23 187 01 3520 4278530625 JSTOR Open Access eBook z 28-02-23 213 01 0551 4279244634 OLR-OAPEN OAPEN Online Library Open Access eBook z 01-03-23 230 01 0552 4279421811 OLR-OAPEN OAPEN Online Library Open Access eBook z 01-03-23 283 01 3283 4279780722 OLR-OAL z 01-03-23 293 01 3293 4278324871 OLR-OAPEN OAPEN Online Library Open Access eBook z 28-02-23 370 01 4370 4279067201 OLR-FREE Kostenloser Zugriff z 01-03-23 603 01 4603 4277967884 OLR-OAPEN Bitte beachten Sie die Nutzungsbedingungen und Copyright-Bestimmungen des Verlages/Herausgebers. z 28-02-23 808 01 4808 4280870322 OLR-OAPEN OAPEN Library zg 01-03-23 2403 01 DE-LFER 4307822021 00 --%%-- --%%-- n --%%-- l01 12-04-23 22 01 0018 Volltextzugang https://library.oapen.org/handle/20.500.12657/47368 23 01 0830 https://library.oapen.org/handle/20.500.12657/47368 30 01 0104 Open Access https://library.oapen.org/handle/20.500.12657/47368 31 01 0027 eBook GBV-OAPEN https://library.oapen.org/handle/20.500.12657/47368 34 01 3551 OpenAccess https://library.oapen.org/handle/20.500.12657/47368 40 01 0007 Volltext, Open Access https://library.oapen.org/handle/20.500.12657/47368 63 01 3401 E-Book https://library.oapen.org/handle/20.500.12657/47368 65 01 0003 Open Access https://library.oapen.org/handle/20.500.12657/47368 65 01 0003 Dieser Titel ist Teil einer Datenbank http://www.bibliothek.uni-regensburg.de/dbinfo/detail.php?titel_id=10728&bib_id=ulb_hal 70 01 0089 https://library.oapen.org/handle/20.500.12657/47368 LF 72 01 0035 https://library.oapen.org/handle/20.500.12657/47368 95 01 3095 https://library.oapen.org/handle/20.500.12657/47368 110 01 3110 Open Access https://library.oapen.org/handle/20.500.12657/47368 136 01 3526 Open Access https://library.oapen.org/handle/20.500.12657/47368 147 01 3528 https://library.oapen.org/handle/20.500.12657/47368 161 01 0960 https://library.oapen.org/handle/20.500.12657/47368 LF 187 01 3520 https://library.oapen.org/handle/20.500.12657/47368 213 01 0551 https://library.oapen.org/handle/20.500.12657/47368 230 01 0552 https://library.oapen.org/handle/20.500.12657/47368 283 01 3283 https://library.oapen.org/handle/20.500.12657/47368 293 01 3293 https://library.oapen.org/handle/20.500.12657/47368 LF 370 01 4370 https://library.oapen.org/handle/20.500.12657/47368 603 01 4603 https://library.oapen.org/handle/20.500.12657/47368 808 01 4808 Volltextzugang https://library.oapen.org/handle/20.500.12657/47368 2403 01 DE-LFER https://library.oapen.org/bitstream/id/dd6d938a-b5b0-436f-8288-eb37ad0bd0d8/Bookshelf_NBK550914.pdf 31 01 0027 00 eBook GBV-OAPEN 22 01 0018 OLR-ZDB-94-OAL 23 01 0830 OLR-OAPEN 30 01 0104 GBV-OAPEN 34 01 3551 OLR-OAPEN 39 01 0547 GBV-OAPEN 39 01 0547 LF 40 01 0007 OLR-OAPEN 63 01 3401 E-Books LF GBV-OAPEN 65 01 0003 OLR-OAPEN 70 01 0089 OLR-OAPEN-OA 72 01 0035 OLR-OAPEN-OA 95 01 3095 OLR-OAL 110 01 3110 OLR-GBV-OAPEN 136 01 3526 OLR-OAPEN 147 01 3528 OLR-OAPEN 161 01 0960 OLR-OAPEN 213 01 0551 OLR-OAPEN 230 01 0552 OLR-OAPEN 283 01 3283 OLR-OAL 293 01 3293 OLR-OAPEN 370 01 4370 OLR-FREE 370 01 4370 olr-ebook GBV-OAPEN 603 01 4603 OLR-OAPEN 808 01 4808 OLR-OAPEN |
allfields_unstemmed |
9783030214067 9 978-3-030-21406-7 978 (DE-627)1836483007 (DE-599)KEP077611055 (OCoLC)1286311071 (OAPEN)47368 (EBP)077611055 DE-627 eng DE-627 rda eng MQW bicssc Davies, Gail verfasserin aut Chapter 9 Which Patient Takes Centre Stage? Placing Patient Voices in Animal Research [Erscheinungsort nicht ermittelbar] Springer Nature 2020 1 Online-Ressource (15 p.) Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Open Access Unrestricted online access star The growth of personalised medicine and patient partnerships in biomedical research are reshaping both the emotional and material intersections between human patients and animal research. Through tracing the creative work of patients, publics, scientists, clinicians, artists, film-makers, and campaigning groups this chapter explores how ‘patient voices’ are being rearticulated and represented around animal research. The figure of ‘the patient’ has been a powerful actor in arguments around animal research, mostly ‘spoken for’ by formal organisations, especially in publicity material making ethical justifications for the need and funding of medical research. Here, patient voices make corporeal needs legible, gather expectations and resources, and provide the horizon for embodying future hopes. However, the accessibility of digital media, alongside local institutional experiments in openness, is creating alternative spaces for voicing patient interfaces with animal research. On research establishment websites, and elsewhere, patients’ perspectives are emerging in short films, taking up positions as narrators, tour guides, and commentators, inviting the public to follow them into these previously inaccessible spaces. The embodied experience of patients, sometimes severely affected by the current absences in biomedical research, are used to authorise their presence in these places, and allow them to ask questions of animal researchers. The films are powerful and emotional vehicles for voicing patient experiences and opening up animal research. They also refigure the affective responsibilities around animal research, resituating a public debate around ethics within the body of the patient. The future expectations personified in the abstract figure of the patient, are rendered turbulent in the ambiguous corporeal encounter between human and animals undergoing similar experiences of suffering Creative Commons https://creativecommons.org/licenses/by/4.0 cc English Biomedical engineering Gorman, Richard oth Crudgington, Bentley oth https://library.oapen.org/bitstream/id/dd6d938a-b5b0-436f-8288-eb37ad0bd0d8/Bookshelf_NBK550914.pdf X:OAPEN Verlag kostenfrei https://library.oapen.org/handle/20.500.12657/47368 X:OAPEN Verlag kostenfrei ZDB-94-OAL GBV_ILN_22 ISIL_DE-18 SYSFLAG_1 GBV_KXP GBV_ILN_23 ISIL_DE-830 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_95 ISIL_DE-542 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_161 ISIL_DE-960 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_283 ISIL_DE-Ha163 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_808 GBV_ILN_2403 ISIL_DE-LFER BO 22 01 0018 4280139180 OLR-ZDB-94-OAL OAPEN Library zu 01-03-23 23 01 0830 4280691355 OLR-OAPEN f z 01-03-23 30 01 0104 4281052143 GBV-OAPEN z 01-03-23 31 01 0027 4280333947 z 01-03-23 34 01 3551 4278889461 OLR-OAPEN zi002 01-03-23 39 01 0547 4281243321 GBV-OAPEN ke 01-03-23 40 01 0007 4279957959 OLR-OAPEN xsn 01-03-23 63 01 3401 4281625666 E-Books LF GBV-OAPEN z 01-03-23 65 01 0003 4281875158 OLR-OAPEN z 01-03-23 70 01 0089 4280512329 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 72 01 0035 4278712073 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 95 01 3095 4343239853 OLR-OAL Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 24-06-23 110 01 3110 4281428410 OLR-GBV-OAPEN Open Access z 01-03-23 136 01 3526 4279602255 OLR-OAPEN z 01-03-23 147 01 3528 4282074019 OLR-OAPEN frei verfügbar für Europa-Universität Flensburg, Hochschule Flensburg und Zentrale Hochschulbibliothek Vervielfältigungen (z.B. Kopien, Downloads) sind nur von einzelnen Kapiteln oder Seiten und nur zum eigenen wissenschaftlichen Gebrauch erlaubt. Die Weitergabe an Dritte sowie systematisches Downloaden sind untersagt. z 01-03-23 161 01 0960 4278145896 OLR-OAPEN OAPEN Online Library Open Access eBook z 28-02-23 187 01 3520 4278530625 JSTOR Open Access eBook z 28-02-23 213 01 0551 4279244634 OLR-OAPEN OAPEN Online Library Open Access eBook z 01-03-23 230 01 0552 4279421811 OLR-OAPEN OAPEN Online Library Open Access eBook z 01-03-23 283 01 3283 4279780722 OLR-OAL z 01-03-23 293 01 3293 4278324871 OLR-OAPEN OAPEN Online Library Open Access eBook z 28-02-23 370 01 4370 4279067201 OLR-FREE Kostenloser Zugriff z 01-03-23 603 01 4603 4277967884 OLR-OAPEN Bitte beachten Sie die Nutzungsbedingungen und Copyright-Bestimmungen des Verlages/Herausgebers. z 28-02-23 808 01 4808 4280870322 OLR-OAPEN OAPEN Library zg 01-03-23 2403 01 DE-LFER 4307822021 00 --%%-- --%%-- n --%%-- l01 12-04-23 22 01 0018 Volltextzugang https://library.oapen.org/handle/20.500.12657/47368 23 01 0830 https://library.oapen.org/handle/20.500.12657/47368 30 01 0104 Open Access https://library.oapen.org/handle/20.500.12657/47368 31 01 0027 eBook GBV-OAPEN https://library.oapen.org/handle/20.500.12657/47368 34 01 3551 OpenAccess https://library.oapen.org/handle/20.500.12657/47368 40 01 0007 Volltext, Open Access https://library.oapen.org/handle/20.500.12657/47368 63 01 3401 E-Book https://library.oapen.org/handle/20.500.12657/47368 65 01 0003 Open Access https://library.oapen.org/handle/20.500.12657/47368 65 01 0003 Dieser Titel ist Teil einer Datenbank http://www.bibliothek.uni-regensburg.de/dbinfo/detail.php?titel_id=10728&bib_id=ulb_hal 70 01 0089 https://library.oapen.org/handle/20.500.12657/47368 LF 72 01 0035 https://library.oapen.org/handle/20.500.12657/47368 95 01 3095 https://library.oapen.org/handle/20.500.12657/47368 110 01 3110 Open Access https://library.oapen.org/handle/20.500.12657/47368 136 01 3526 Open Access https://library.oapen.org/handle/20.500.12657/47368 147 01 3528 https://library.oapen.org/handle/20.500.12657/47368 161 01 0960 https://library.oapen.org/handle/20.500.12657/47368 LF 187 01 3520 https://library.oapen.org/handle/20.500.12657/47368 213 01 0551 https://library.oapen.org/handle/20.500.12657/47368 230 01 0552 https://library.oapen.org/handle/20.500.12657/47368 283 01 3283 https://library.oapen.org/handle/20.500.12657/47368 293 01 3293 https://library.oapen.org/handle/20.500.12657/47368 LF 370 01 4370 https://library.oapen.org/handle/20.500.12657/47368 603 01 4603 https://library.oapen.org/handle/20.500.12657/47368 808 01 4808 Volltextzugang https://library.oapen.org/handle/20.500.12657/47368 2403 01 DE-LFER https://library.oapen.org/bitstream/id/dd6d938a-b5b0-436f-8288-eb37ad0bd0d8/Bookshelf_NBK550914.pdf 31 01 0027 00 eBook GBV-OAPEN 22 01 0018 OLR-ZDB-94-OAL 23 01 0830 OLR-OAPEN 30 01 0104 GBV-OAPEN 34 01 3551 OLR-OAPEN 39 01 0547 GBV-OAPEN 39 01 0547 LF 40 01 0007 OLR-OAPEN 63 01 3401 E-Books LF GBV-OAPEN 65 01 0003 OLR-OAPEN 70 01 0089 OLR-OAPEN-OA 72 01 0035 OLR-OAPEN-OA 95 01 3095 OLR-OAL 110 01 3110 OLR-GBV-OAPEN 136 01 3526 OLR-OAPEN 147 01 3528 OLR-OAPEN 161 01 0960 OLR-OAPEN 213 01 0551 OLR-OAPEN 230 01 0552 OLR-OAPEN 283 01 3283 OLR-OAL 293 01 3293 OLR-OAPEN 370 01 4370 OLR-FREE 370 01 4370 olr-ebook GBV-OAPEN 603 01 4603 OLR-OAPEN 808 01 4808 OLR-OAPEN |
allfieldsGer |
9783030214067 9 978-3-030-21406-7 978 (DE-627)1836483007 (DE-599)KEP077611055 (OCoLC)1286311071 (OAPEN)47368 (EBP)077611055 DE-627 eng DE-627 rda eng MQW bicssc Davies, Gail verfasserin aut Chapter 9 Which Patient Takes Centre Stage? Placing Patient Voices in Animal Research [Erscheinungsort nicht ermittelbar] Springer Nature 2020 1 Online-Ressource (15 p.) Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Open Access Unrestricted online access star The growth of personalised medicine and patient partnerships in biomedical research are reshaping both the emotional and material intersections between human patients and animal research. Through tracing the creative work of patients, publics, scientists, clinicians, artists, film-makers, and campaigning groups this chapter explores how ‘patient voices’ are being rearticulated and represented around animal research. The figure of ‘the patient’ has been a powerful actor in arguments around animal research, mostly ‘spoken for’ by formal organisations, especially in publicity material making ethical justifications for the need and funding of medical research. Here, patient voices make corporeal needs legible, gather expectations and resources, and provide the horizon for embodying future hopes. However, the accessibility of digital media, alongside local institutional experiments in openness, is creating alternative spaces for voicing patient interfaces with animal research. On research establishment websites, and elsewhere, patients’ perspectives are emerging in short films, taking up positions as narrators, tour guides, and commentators, inviting the public to follow them into these previously inaccessible spaces. The embodied experience of patients, sometimes severely affected by the current absences in biomedical research, are used to authorise their presence in these places, and allow them to ask questions of animal researchers. The films are powerful and emotional vehicles for voicing patient experiences and opening up animal research. They also refigure the affective responsibilities around animal research, resituating a public debate around ethics within the body of the patient. The future expectations personified in the abstract figure of the patient, are rendered turbulent in the ambiguous corporeal encounter between human and animals undergoing similar experiences of suffering Creative Commons https://creativecommons.org/licenses/by/4.0 cc English Biomedical engineering Gorman, Richard oth Crudgington, Bentley oth https://library.oapen.org/bitstream/id/dd6d938a-b5b0-436f-8288-eb37ad0bd0d8/Bookshelf_NBK550914.pdf X:OAPEN Verlag kostenfrei https://library.oapen.org/handle/20.500.12657/47368 X:OAPEN Verlag kostenfrei ZDB-94-OAL GBV_ILN_22 ISIL_DE-18 SYSFLAG_1 GBV_KXP GBV_ILN_23 ISIL_DE-830 GBV_ILN_30 ISIL_DE-104 GBV_ILN_31 ISIL_DE-27 GBV_ILN_34 ISIL_DE-18-302 GBV_ILN_39 ISIL_DE-547 GBV_ILN_40 ISIL_DE-7 GBV_ILN_63 ISIL_DE-Wim2 GBV_ILN_65 ISIL_DE-3 GBV_ILN_70 ISIL_DE-89 GBV_ILN_72 ISIL_DE-35 GBV_ILN_95 ISIL_DE-542 GBV_ILN_110 ISIL_DE-Luen4 GBV_ILN_136 ISIL_DE-Wis1 GBV_ILN_147 ISIL_DE-Fl3 GBV_ILN_161 ISIL_DE-960 GBV_ILN_187 ISIL_DE-Ki95 GBV_ILN_213 ISIL_DE-551 GBV_ILN_230 ISIL_DE-552 GBV_ILN_283 ISIL_DE-Ha163 GBV_ILN_293 ISIL_DE-960-3 GBV_ILN_370 ISIL_DE-1373 GBV_ILN_603 ISIL_DE-B1556 GBV_ILN_808 GBV_ILN_2403 ISIL_DE-LFER BO 22 01 0018 4280139180 OLR-ZDB-94-OAL OAPEN Library zu 01-03-23 23 01 0830 4280691355 OLR-OAPEN f z 01-03-23 30 01 0104 4281052143 GBV-OAPEN z 01-03-23 31 01 0027 4280333947 z 01-03-23 34 01 3551 4278889461 OLR-OAPEN zi002 01-03-23 39 01 0547 4281243321 GBV-OAPEN ke 01-03-23 40 01 0007 4279957959 OLR-OAPEN xsn 01-03-23 63 01 3401 4281625666 E-Books LF GBV-OAPEN z 01-03-23 65 01 0003 4281875158 OLR-OAPEN z 01-03-23 70 01 0089 4280512329 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 72 01 0035 4278712073 OLR-OAPEN-OA OAPEN Online Library Open Access eBook z 01-03-23 95 01 3095 4343239853 OLR-OAL Vervielfältigungen (z.B. 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The growth of personalised medicine and patient partnerships in biomedical research are reshaping both the emotional and material intersections between human patients and animal research. Through tracing the creative work of patients, publics, scientists, clinicians, artists, film-makers, and campaigning groups this chapter explores how ‘patient voices’ are being rearticulated and represented around animal research. The figure of ‘the patient’ has been a powerful actor in arguments around animal research, mostly ‘spoken for’ by formal organisations, especially in publicity material making ethical justifications for the need and funding of medical research. Here, patient voices make corporeal needs legible, gather expectations and resources, and provide the horizon for embodying future hopes. However, the accessibility of digital media, alongside local institutional experiments in openness, is creating alternative spaces for voicing patient interfaces with animal research. On research establishment websites, and elsewhere, patients’ perspectives are emerging in short films, taking up positions as narrators, tour guides, and commentators, inviting the public to follow them into these previously inaccessible spaces. The embodied experience of patients, sometimes severely affected by the current absences in biomedical research, are used to authorise their presence in these places, and allow them to ask questions of animal researchers. The films are powerful and emotional vehicles for voicing patient experiences and opening up animal research. They also refigure the affective responsibilities around animal research, resituating a public debate around ethics within the body of the patient. The future expectations personified in the abstract figure of the patient, are rendered turbulent in the ambiguous corporeal encounter between human and animals undergoing similar experiences of suffering |
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score |
7.0144587 |