Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness

Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with...
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Autor*in:	Meltem Dinleyici [verfasserIn] Kürşat Bora Çarman [verfasserIn] Canan Özdemir [verfasserIn] Koray Harmancı [verfasserIn] Makbule Eren [verfasserIn] Birgül Kirel [verfasserIn] Enver Şimşek [verfasserIn] Coşkun Yarar [verfasserIn] Aysu Duyan Çamurdan [verfasserIn] Figen Şahin Dağlı [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2020

Schlagwörter:	children chronic disease quality of life sibling

Übergeordnetes Werk:	In: Balkan Medical Journal - Galenos Publishing House, 2017, 37(2020), 1, Seite 34-42
Übergeordnetes Werk:	volume:37 ; year:2020 ; number:1 ; pages:34-42

Links:	Link aufrufen Link aufrufen Link aufrufen Journal toc Journal toc

DOI / URN:	10.4274/balkanmedj.galenos.2019.2019.7.142

Katalog-ID:	DOAJ003723658

Internformat


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allfields	10.4274/balkanmedj.galenos.2019.2019.7.142 doi (DE-627)DOAJ003723658 (DE-599)DOAJ124dbc923ffa471f88221233254b2363 DE-627 ger DE-627 rakwb eng Meltem Dinleyici verfasserin aut Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.Results:This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).Conclusion:Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases. children chronic disease quality of life sibling Medicine R Kürşat Bora Çarman verfasserin aut Canan Özdemir verfasserin aut Koray Harmancı verfasserin aut Makbule Eren verfasserin aut Birgül Kirel verfasserin aut Enver Şimşek verfasserin aut Coşkun Yarar verfasserin aut Aysu Duyan Çamurdan verfasserin aut Figen Şahin Dağlı verfasserin aut In Balkan Medical Journal Galenos Publishing House, 2017 37(2020), 1, Seite 34-42 (DE-627)662166043 (DE-600)2612982-6 21463131 nnns volume:37 year:2020 number:1 pages:34-42 https://doi.org/10.4274/balkanmedj.galenos.2019.2019.7.142 kostenfrei https://doaj.org/article/124dbc923ffa471f88221233254b2363 kostenfrei http://balkanmedicaljournal.org/text.php?lang=en&id=2154 kostenfrei https://doaj.org/toc/2146-3123 Journal toc kostenfrei https://doaj.org/toc/2146-3131 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 37 2020 1 34-42
spelling	10.4274/balkanmedj.galenos.2019.2019.7.142 doi (DE-627)DOAJ003723658 (DE-599)DOAJ124dbc923ffa471f88221233254b2363 DE-627 ger DE-627 rakwb eng Meltem Dinleyici verfasserin aut Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.Results:This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).Conclusion:Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases. children chronic disease quality of life sibling Medicine R Kürşat Bora Çarman verfasserin aut Canan Özdemir verfasserin aut Koray Harmancı verfasserin aut Makbule Eren verfasserin aut Birgül Kirel verfasserin aut Enver Şimşek verfasserin aut Coşkun Yarar verfasserin aut Aysu Duyan Çamurdan verfasserin aut Figen Şahin Dağlı verfasserin aut In Balkan Medical Journal Galenos Publishing House, 2017 37(2020), 1, Seite 34-42 (DE-627)662166043 (DE-600)2612982-6 21463131 nnns volume:37 year:2020 number:1 pages:34-42 https://doi.org/10.4274/balkanmedj.galenos.2019.2019.7.142 kostenfrei https://doaj.org/article/124dbc923ffa471f88221233254b2363 kostenfrei http://balkanmedicaljournal.org/text.php?lang=en&id=2154 kostenfrei https://doaj.org/toc/2146-3123 Journal toc kostenfrei https://doaj.org/toc/2146-3131 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 37 2020 1 34-42
allfields_unstemmed	10.4274/balkanmedj.galenos.2019.2019.7.142 doi (DE-627)DOAJ003723658 (DE-599)DOAJ124dbc923ffa471f88221233254b2363 DE-627 ger DE-627 rakwb eng Meltem Dinleyici verfasserin aut Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.Results:This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).Conclusion:Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases. children chronic disease quality of life sibling Medicine R Kürşat Bora Çarman verfasserin aut Canan Özdemir verfasserin aut Koray Harmancı verfasserin aut Makbule Eren verfasserin aut Birgül Kirel verfasserin aut Enver Şimşek verfasserin aut Coşkun Yarar verfasserin aut Aysu Duyan Çamurdan verfasserin aut Figen Şahin Dağlı verfasserin aut In Balkan Medical Journal Galenos Publishing House, 2017 37(2020), 1, Seite 34-42 (DE-627)662166043 (DE-600)2612982-6 21463131 nnns volume:37 year:2020 number:1 pages:34-42 https://doi.org/10.4274/balkanmedj.galenos.2019.2019.7.142 kostenfrei https://doaj.org/article/124dbc923ffa471f88221233254b2363 kostenfrei http://balkanmedicaljournal.org/text.php?lang=en&id=2154 kostenfrei https://doaj.org/toc/2146-3123 Journal toc kostenfrei https://doaj.org/toc/2146-3131 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 37 2020 1 34-42
allfieldsGer	10.4274/balkanmedj.galenos.2019.2019.7.142 doi (DE-627)DOAJ003723658 (DE-599)DOAJ124dbc923ffa471f88221233254b2363 DE-627 ger DE-627 rakwb eng Meltem Dinleyici verfasserin aut Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.Results:This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).Conclusion:Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases. children chronic disease quality of life sibling Medicine R Kürşat Bora Çarman verfasserin aut Canan Özdemir verfasserin aut Koray Harmancı verfasserin aut Makbule Eren verfasserin aut Birgül Kirel verfasserin aut Enver Şimşek verfasserin aut Coşkun Yarar verfasserin aut Aysu Duyan Çamurdan verfasserin aut Figen Şahin Dağlı verfasserin aut In Balkan Medical Journal Galenos Publishing House, 2017 37(2020), 1, Seite 34-42 (DE-627)662166043 (DE-600)2612982-6 21463131 nnns volume:37 year:2020 number:1 pages:34-42 https://doi.org/10.4274/balkanmedj.galenos.2019.2019.7.142 kostenfrei https://doaj.org/article/124dbc923ffa471f88221233254b2363 kostenfrei http://balkanmedicaljournal.org/text.php?lang=en&id=2154 kostenfrei https://doaj.org/toc/2146-3123 Journal toc kostenfrei https://doaj.org/toc/2146-3131 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 37 2020 1 34-42
allfieldsSound	10.4274/balkanmedj.galenos.2019.2019.7.142 doi (DE-627)DOAJ003723658 (DE-599)DOAJ124dbc923ffa471f88221233254b2363 DE-627 ger DE-627 rakwb eng Meltem Dinleyici verfasserin aut Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.Results:This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).Conclusion:Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases. children chronic disease quality of life sibling Medicine R Kürşat Bora Çarman verfasserin aut Canan Özdemir verfasserin aut Koray Harmancı verfasserin aut Makbule Eren verfasserin aut Birgül Kirel verfasserin aut Enver Şimşek verfasserin aut Coşkun Yarar verfasserin aut Aysu Duyan Çamurdan verfasserin aut Figen Şahin Dağlı verfasserin aut In Balkan Medical Journal Galenos Publishing House, 2017 37(2020), 1, Seite 34-42 (DE-627)662166043 (DE-600)2612982-6 21463131 nnns volume:37 year:2020 number:1 pages:34-42 https://doi.org/10.4274/balkanmedj.galenos.2019.2019.7.142 kostenfrei https://doaj.org/article/124dbc923ffa471f88221233254b2363 kostenfrei http://balkanmedicaljournal.org/text.php?lang=en&id=2154 kostenfrei https://doaj.org/toc/2146-3123 Journal toc kostenfrei https://doaj.org/toc/2146-3131 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 37 2020 1 34-42
language	English
source	In Balkan Medical Journal 37(2020), 1, Seite 34-42 volume:37 year:2020 number:1 pages:34-42
sourceStr	In Balkan Medical Journal 37(2020), 1, Seite 34-42 volume:37 year:2020 number:1 pages:34-42
format_phy_str_mv	Article
institution	findex.gbv.de
topic_facet	children chronic disease quality of life sibling Medicine R
isfreeaccess_bool	true
container_title	Balkan Medical Journal
authorswithroles_txt_mv	Meltem Dinleyici @@aut@@ Kürşat Bora Çarman @@aut@@ Canan Özdemir @@aut@@ Koray Harmancı @@aut@@ Makbule Eren @@aut@@ Birgül Kirel @@aut@@ Enver Şimşek @@aut@@ Coşkun Yarar @@aut@@ Aysu Duyan Çamurdan @@aut@@ Figen Şahin Dağlı @@aut@@
publishDateDaySort_date	2020-01-01T00:00:00Z
hierarchy_top_id	662166043
id	DOAJ003723658
language_de	englisch
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author	Meltem Dinleyici
spellingShingle	Meltem Dinleyici misc children misc chronic disease misc quality of life misc sibling misc Medicine misc R Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness
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topic_title	Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness children chronic disease quality of life sibling
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title	Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness
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title_full	Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness
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author_browse	Meltem Dinleyici Kürşat Bora Çarman Canan Özdemir Koray Harmancı Makbule Eren Birgül Kirel Enver Şimşek Coşkun Yarar Aysu Duyan Çamurdan Figen Şahin Dağlı
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author-letter	Meltem Dinleyici
doi_str_mv	10.4274/balkanmedj.galenos.2019.2019.7.142
author2-role	verfasserin
title_sort	quality-of-life evaluation of healthy siblings of children with chronic illness
title_auth	Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness
abstract	Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.Results:This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).Conclusion:Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases.
abstractGer	Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.Results:This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).Conclusion:Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases.
abstract_unstemmed	Background:Chronic disease of children can cause changes in the health-related quality of life (HrQoL) of the family members.Aims:To evaluate the HrQoL of healthy siblings of children with chronic disease.Study Design:Cross-sectional study.Methods:The study included healthy sibling of children with chronic disease (cerebral palsy, epilepsy, diabetes, celiac disease, hematologic/oncologic disease, or asthma) and healthy sibling of healthy children to evaluate the quality of life. We used the Pediatric Quality of Life Inventory questionnaire; the physical health and psychosocial health scores were calculated using the responses of the sibling and parent. The primary endpoint was the comparison of HrQoL scores of healthy siblings of children with chronic disease and that of healthy siblings of healthy children.Results:This study included a respective healthy sibling of 191 children with chronic disease and healthy sibling of 100 healthy children. The physical health, psychosocial health, and total health scores of healthy siblings of children with chronic disease were significantly lower than that of healthy siblings of healthy children (p<0.001). Among the healthy siblings of children with chronic disease, the lowest psychosocial health score was found in the siblings of children with cerebral palsy, hematologic/oncologic disease, and asthma (p<0.001). The global impact on the quality of life for healthy siblings of children with chronic disease was significantly higher in the self-report of the children than that of the parents (30.4% versus 15.1%, p<0.05).Conclusion:Most healthy siblings of children with chronic disease are physically and psychosocially affected and there is low parental awareness of this condition. This can increase the risk of emotional neglect and abuse of these children. Therefore, special support programs are needed for the families of children with chronic diseases.
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title_short	Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness
url	https://doi.org/10.4274/balkanmedj.galenos.2019.2019.7.142 https://doaj.org/article/124dbc923ffa471f88221233254b2363 http://balkanmedicaljournal.org/text.php?lang=en&id=2154 https://doaj.org/toc/2146-3123 https://doaj.org/toc/2146-3131
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author2	Kürşat Bora Çarman Canan Özdemir Koray Harmancı Makbule Eren Birgül Kirel Enver Şimşek Coşkun Yarar Aysu Duyan Çamurdan Figen Şahin Dağlı
author2Str	Kürşat Bora Çarman Canan Özdemir Koray Harmancı Makbule Eren Birgül Kirel Enver Şimşek Coşkun Yarar Aysu Duyan Çamurdan Figen Şahin Dağlı
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doi_str	10.4274/balkanmedj.galenos.2019.2019.7.142
up_date	2024-07-03T19:42:36.365Z
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Quality-of-life Evaluation of Healthy Siblings of Children with Chronic Illness

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