The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study

Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver Ausführliche Beschreibung

Gespeichert in:

Autor*in:	Abebe A [verfasserIn] Arba A [verfasserIn] Paulos K [verfasserIn] Abera W [verfasserIn] Sidamo T [verfasserIn] Shiferaw S [verfasserIn] Abraham Z [verfasserIn] Baza D [verfasserIn] Nega B [verfasserIn] Woldeyohannes S [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2022

Schlagwörter:	caregiver hemodialysis lived experience patient primary family caregiver.

Übergeordnetes Werk:	In: International Journal of Nephrology and Renovascular Disease - Dove Medical Press, 2009, (2022), Seite 41-52
Übergeordnetes Werk:	year:2022 ; pages:41-52

Links:	Link aufrufen Link aufrufen Journal toc

Katalog-ID:	DOAJ013820214

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allfields	(DE-627)DOAJ013820214 (DE-599)DOAJ9723e75dee3348d69035a92fcdf4c028 DE-627 ger DE-627 rakwb eng RC870-923 Abebe A verfasserin aut The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver caregiver hemodialysis lived experience patient primary family caregiver. Diseases of the genitourinary system. Urology Arba A verfasserin aut Paulos K verfasserin aut Abera W verfasserin aut Sidamo T verfasserin aut Shiferaw S verfasserin aut Abraham Z verfasserin aut Baza D verfasserin aut Nega B verfasserin aut Woldeyohannes S verfasserin aut In International Journal of Nephrology and Renovascular Disease Dove Medical Press, 2009 (2022), Seite 41-52 (DE-627)606031928 (DE-600)2508160-3 11787058 nnns year:2022 pages:41-52 https://doaj.org/article/9723e75dee3348d69035a92fcdf4c028 kostenfrei https://www.dovepress.com/the-lived-experience-of-primary-family-caregivers-of-patients-on-hemod-peer-reviewed-fulltext-article-IJNRD kostenfrei https://doaj.org/toc/1178-7058 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2022 41-52
spelling	(DE-627)DOAJ013820214 (DE-599)DOAJ9723e75dee3348d69035a92fcdf4c028 DE-627 ger DE-627 rakwb eng RC870-923 Abebe A verfasserin aut The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver caregiver hemodialysis lived experience patient primary family caregiver. Diseases of the genitourinary system. Urology Arba A verfasserin aut Paulos K verfasserin aut Abera W verfasserin aut Sidamo T verfasserin aut Shiferaw S verfasserin aut Abraham Z verfasserin aut Baza D verfasserin aut Nega B verfasserin aut Woldeyohannes S verfasserin aut In International Journal of Nephrology and Renovascular Disease Dove Medical Press, 2009 (2022), Seite 41-52 (DE-627)606031928 (DE-600)2508160-3 11787058 nnns year:2022 pages:41-52 https://doaj.org/article/9723e75dee3348d69035a92fcdf4c028 kostenfrei https://www.dovepress.com/the-lived-experience-of-primary-family-caregivers-of-patients-on-hemod-peer-reviewed-fulltext-article-IJNRD kostenfrei https://doaj.org/toc/1178-7058 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2022 41-52
allfields_unstemmed	(DE-627)DOAJ013820214 (DE-599)DOAJ9723e75dee3348d69035a92fcdf4c028 DE-627 ger DE-627 rakwb eng RC870-923 Abebe A verfasserin aut The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver caregiver hemodialysis lived experience patient primary family caregiver. Diseases of the genitourinary system. Urology Arba A verfasserin aut Paulos K verfasserin aut Abera W verfasserin aut Sidamo T verfasserin aut Shiferaw S verfasserin aut Abraham Z verfasserin aut Baza D verfasserin aut Nega B verfasserin aut Woldeyohannes S verfasserin aut In International Journal of Nephrology and Renovascular Disease Dove Medical Press, 2009 (2022), Seite 41-52 (DE-627)606031928 (DE-600)2508160-3 11787058 nnns year:2022 pages:41-52 https://doaj.org/article/9723e75dee3348d69035a92fcdf4c028 kostenfrei https://www.dovepress.com/the-lived-experience-of-primary-family-caregivers-of-patients-on-hemod-peer-reviewed-fulltext-article-IJNRD kostenfrei https://doaj.org/toc/1178-7058 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2022 41-52
allfieldsGer	(DE-627)DOAJ013820214 (DE-599)DOAJ9723e75dee3348d69035a92fcdf4c028 DE-627 ger DE-627 rakwb eng RC870-923 Abebe A verfasserin aut The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver caregiver hemodialysis lived experience patient primary family caregiver. Diseases of the genitourinary system. Urology Arba A verfasserin aut Paulos K verfasserin aut Abera W verfasserin aut Sidamo T verfasserin aut Shiferaw S verfasserin aut Abraham Z verfasserin aut Baza D verfasserin aut Nega B verfasserin aut Woldeyohannes S verfasserin aut In International Journal of Nephrology and Renovascular Disease Dove Medical Press, 2009 (2022), Seite 41-52 (DE-627)606031928 (DE-600)2508160-3 11787058 nnns year:2022 pages:41-52 https://doaj.org/article/9723e75dee3348d69035a92fcdf4c028 kostenfrei https://www.dovepress.com/the-lived-experience-of-primary-family-caregivers-of-patients-on-hemod-peer-reviewed-fulltext-article-IJNRD kostenfrei https://doaj.org/toc/1178-7058 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2022 41-52
allfieldsSound	(DE-627)DOAJ013820214 (DE-599)DOAJ9723e75dee3348d69035a92fcdf4c028 DE-627 ger DE-627 rakwb eng RC870-923 Abebe A verfasserin aut The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver caregiver hemodialysis lived experience patient primary family caregiver. Diseases of the genitourinary system. Urology Arba A verfasserin aut Paulos K verfasserin aut Abera W verfasserin aut Sidamo T verfasserin aut Shiferaw S verfasserin aut Abraham Z verfasserin aut Baza D verfasserin aut Nega B verfasserin aut Woldeyohannes S verfasserin aut In International Journal of Nephrology and Renovascular Disease Dove Medical Press, 2009 (2022), Seite 41-52 (DE-627)606031928 (DE-600)2508160-3 11787058 nnns year:2022 pages:41-52 https://doaj.org/article/9723e75dee3348d69035a92fcdf4c028 kostenfrei https://www.dovepress.com/the-lived-experience-of-primary-family-caregivers-of-patients-on-hemod-peer-reviewed-fulltext-article-IJNRD kostenfrei https://doaj.org/toc/1178-7058 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2022 41-52
language	English
source	In International Journal of Nephrology and Renovascular Disease (2022), Seite 41-52 year:2022 pages:41-52
sourceStr	In International Journal of Nephrology and Renovascular Disease (2022), Seite 41-52 year:2022 pages:41-52
format_phy_str_mv	Article
institution	findex.gbv.de
topic_facet	caregiver hemodialysis lived experience patient primary family caregiver. Diseases of the genitourinary system. Urology
isfreeaccess_bool	true
container_title	International Journal of Nephrology and Renovascular Disease
authorswithroles_txt_mv	Abebe A @@aut@@ Arba A @@aut@@ Paulos K @@aut@@ Abera W @@aut@@ Sidamo T @@aut@@ Shiferaw S @@aut@@ Abraham Z @@aut@@ Baza D @@aut@@ Nega B @@aut@@ Woldeyohannes S @@aut@@
publishDateDaySort_date	2022-01-01T00:00:00Z
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spellingShingle	Abebe A misc RC870-923 misc caregiver misc hemodialysis misc lived experience misc patient misc primary family caregiver. misc Diseases of the genitourinary system. Urology The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study
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topic_title	RC870-923 The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study caregiver hemodialysis lived experience patient primary family caregiver
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title	The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study
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title_full	The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study
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author_browse	Abebe A Arba A Paulos K Abera W Sidamo T Shiferaw S Abraham Z Baza D Nega B Woldeyohannes S
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title_sort	lived experience of primary family caregivers of patients on hemodialysis treatment in southern ethiopia: a phenomenological study
callnumber	RC870-923
title_auth	The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study
abstract	Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver
abstractGer	Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver
abstract_unstemmed	Amene Abebe,1 Aseb Arba,2 Kebreab Paulos,3 Wogayehu Abera,4 Temesgen Sidamo,5 Shimelis Shiferaw,6 Zinabu Abraham,7 Daniel Baza,2 Banchialem Nega,3 Selamawit Woldeyohannes1 1Department of Public Health, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 2Department of Nursing, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 3Department of Midwifery, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 4Department of Anaesthesia, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 5Department of Pharmacy, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 6Department of Medical Laboratory Science, Wolaita Sodo University, Wolaita Sodo, Ethiopia; 7Department of Surgery, Wolaita Sodo University, Wolaita Sodo, EthiopiaCorrespondence: Amene Abebe, Email ameneabegmail.comBackground: Primary family caregivers of hemodialysis patients are the “hidden patients” who shoulder extraordinary care burdens. However, there is a dearth of studies in Ethiopia. The purpose of this study was to explore the lived experience of primary family caregivers of hemodialysis patients in Southern Ethiopia.Methods: Qualitative phenomenological study design was employed in February 2021. A homogeneous purposive sampling technique was applied to select study participants. An in-depth interview using an interview guide and field notes were used to collect the required data. All interviews were recorded using a digital audio recorder. Data coding was assisted by Open code software version 4.03. Inductive thematic analysis was used to develop the emerged themes and sub-themes using Colaizzi’s 1978 seven-step phenomenological analysis method. The themes and sub-themes are described in detail in the respective heading and sub-headings.Results: A total of twelve participants were involved in the present study. Bio-psychological experience, socio-economic impact, and healthcare provider-primary family caregiver relationships are the major themes that emerged from the data. The emotional responses, coping mechanisms, consequences on the family caregivers’ health, care fatigue, lifestyle change, economic burden, impact on social responsibility, social support, the role of the primary family caregiver, and trust and confidence in the service providers are the sub-themes defining primary family caregivers caring experience.Conclusion: In this study, emotional instabilities and reactions, care fatigue, distortion of caregiver’s health, multiple economic and social damages are the major challenges faced by primary family caregivers.Keywords: caregiver, hemodialysis, lived experience, patient, primary family caregiver
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title_short	The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study
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The Lived Experience of Primary Family Caregivers of Patients on Hemodialysis Treatment in Southern Ethiopia: A Phenomenological Study

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