Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation

<p<Abstract</p< <p<Background</p< <p<Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre.</p< <p<Method</p< <p<This project will include a process and an outcome evaluation of the LIFEspan Model. The <it<process evaluation</it< will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative interviews with LIFEspan staff. The <it<outcome evaluation</it< will measure the effect of the model on: 1) maintaining continuity within the health care system from pediatric to adult care; and 2) secondary outcomes related to health, well-being, social participation, transition readiness, and health care utilization of youth with cerebral palsy and acquired brain injury. Standardized instruments will include Health Utilities Inventory, Assessment of Life Habits, Arc’s Self-Determination, Assessment of Health-Related Quality of Life, Partners in Health Questionnaire, Social Support Questionnaire, and Self-Efficacy for Managing Chronic Disease.</p< <p<Discussion</p< <p<The LETS study will be original in its undertaking of a prospective examination of outcomes 1-year post-transition, use of multiple comparison groups, and absence of disability-related exclusion criteria ensuring that the transition experiences of varied populations of young people and their families will be represented.</p< <p<Trial registration</p< <p<<url<http://www.clinicaltrials.gov</url<, ID NCT00975338</p< Ausführliche Beschreibung

Gespeichert in:

Autor*in:	Tsybina Irina [verfasserIn] Kingsnorth Shauna [verfasserIn] Maxwell Joanne [verfasserIn] Bayley Mark [verfasserIn] Lindsay Sally [verfasserIn] McKeever Patricia [verfasserIn] Colantonio Angela [verfasserIn] Hamdani Yani [verfasserIn] Healy Helen [verfasserIn] Macarthur Colin [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2012

Schlagwörter:	Transitions Youth Complex chronic conditions Disability Rehabilitation Study protocol Research methods

Übergeordnetes Werk:	In: BMC Pediatrics - BMC, 2003, 12(2012), 1, p 51
Übergeordnetes Werk:	volume:12 ; year:2012 ; number:1, p 51

Links:	Link aufrufen Link aufrufen Link aufrufen Journal toc

DOI / URN:	10.1186/1471-2431-12-51

Katalog-ID:	DOAJ023896396

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spelling	10.1186/1471-2431-12-51 doi (DE-627)DOAJ023896396 (DE-599)DOAJ849b39b15b9c4146a52b8c3fb3643e3b DE-627 ger DE-627 rakwb eng RJ1-570 Tsybina Irina verfasserin aut Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation 2012 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier <p<Abstract</p< <p<Background</p< <p<Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre.</p< <p<Method</p< <p<This project will include a process and an outcome evaluation of the LIFEspan Model. The <it<process evaluation</it< will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative interviews with LIFEspan staff. The <it<outcome evaluation</it< will measure the effect of the model on: 1) maintaining continuity within the health care system from pediatric to adult care; and 2) secondary outcomes related to health, well-being, social participation, transition readiness, and health care utilization of youth with cerebral palsy and acquired brain injury. Standardized instruments will include Health Utilities Inventory, Assessment of Life Habits, Arc’s Self-Determination, Assessment of Health-Related Quality of Life, Partners in Health Questionnaire, Social Support Questionnaire, and Self-Efficacy for Managing Chronic Disease.</p< <p<Discussion</p< <p<The LETS study will be original in its undertaking of a prospective examination of outcomes 1-year post-transition, use of multiple comparison groups, and absence of disability-related exclusion criteria ensuring that the transition experiences of varied populations of young people and their families will be represented.</p< <p<Trial registration</p< <p<<url<http://www.clinicaltrials.gov</url<, ID NCT00975338</p< Transitions Youth Complex chronic conditions Disability Rehabilitation Study protocol Research methods Pediatrics Kingsnorth Shauna verfasserin aut Maxwell Joanne verfasserin aut Bayley Mark verfasserin aut Lindsay Sally verfasserin aut McKeever Patricia verfasserin aut Colantonio Angela verfasserin aut Hamdani Yani verfasserin aut Healy Helen verfasserin aut Macarthur Colin verfasserin aut In BMC Pediatrics BMC, 2003 12(2012), 1, p 51 (DE-627)326643621 (DE-600)2041342-7 14712431 nnns volume:12 year:2012 number:1, p 51 https://doi.org/10.1186/1471-2431-12-51 kostenfrei https://doaj.org/article/849b39b15b9c4146a52b8c3fb3643e3b kostenfrei http://www.biomedcentral.com/1471-2431/12/51 kostenfrei https://doaj.org/toc/1471-2431 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2012 1, p 51
allfields_unstemmed	10.1186/1471-2431-12-51 doi (DE-627)DOAJ023896396 (DE-599)DOAJ849b39b15b9c4146a52b8c3fb3643e3b DE-627 ger DE-627 rakwb eng RJ1-570 Tsybina Irina verfasserin aut Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation 2012 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier <p<Abstract</p< <p<Background</p< <p<Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre.</p< <p<Method</p< <p<This project will include a process and an outcome evaluation of the LIFEspan Model. The <it<process evaluation</it< will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative interviews with LIFEspan staff. The <it<outcome evaluation</it< will measure the effect of the model on: 1) maintaining continuity within the health care system from pediatric to adult care; and 2) secondary outcomes related to health, well-being, social participation, transition readiness, and health care utilization of youth with cerebral palsy and acquired brain injury. Standardized instruments will include Health Utilities Inventory, Assessment of Life Habits, Arc’s Self-Determination, Assessment of Health-Related Quality of Life, Partners in Health Questionnaire, Social Support Questionnaire, and Self-Efficacy for Managing Chronic Disease.</p< <p<Discussion</p< <p<The LETS study will be original in its undertaking of a prospective examination of outcomes 1-year post-transition, use of multiple comparison groups, and absence of disability-related exclusion criteria ensuring that the transition experiences of varied populations of young people and their families will be represented.</p< <p<Trial registration</p< <p<<url<http://www.clinicaltrials.gov</url<, ID NCT00975338</p< Transitions Youth Complex chronic conditions Disability Rehabilitation Study protocol Research methods Pediatrics Kingsnorth Shauna verfasserin aut Maxwell Joanne verfasserin aut Bayley Mark verfasserin aut Lindsay Sally verfasserin aut McKeever Patricia verfasserin aut Colantonio Angela verfasserin aut Hamdani Yani verfasserin aut Healy Helen verfasserin aut Macarthur Colin verfasserin aut In BMC Pediatrics BMC, 2003 12(2012), 1, p 51 (DE-627)326643621 (DE-600)2041342-7 14712431 nnns volume:12 year:2012 number:1, p 51 https://doi.org/10.1186/1471-2431-12-51 kostenfrei https://doaj.org/article/849b39b15b9c4146a52b8c3fb3643e3b kostenfrei http://www.biomedcentral.com/1471-2431/12/51 kostenfrei https://doaj.org/toc/1471-2431 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2012 1, p 51
allfieldsGer	10.1186/1471-2431-12-51 doi (DE-627)DOAJ023896396 (DE-599)DOAJ849b39b15b9c4146a52b8c3fb3643e3b DE-627 ger DE-627 rakwb eng RJ1-570 Tsybina Irina verfasserin aut Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation 2012 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier <p<Abstract</p< <p<Background</p< <p<Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre.</p< <p<Method</p< <p<This project will include a process and an outcome evaluation of the LIFEspan Model. The <it<process evaluation</it< will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative interviews with LIFEspan staff. The <it<outcome evaluation</it< will measure the effect of the model on: 1) maintaining continuity within the health care system from pediatric to adult care; and 2) secondary outcomes related to health, well-being, social participation, transition readiness, and health care utilization of youth with cerebral palsy and acquired brain injury. Standardized instruments will include Health Utilities Inventory, Assessment of Life Habits, Arc’s Self-Determination, Assessment of Health-Related Quality of Life, Partners in Health Questionnaire, Social Support Questionnaire, and Self-Efficacy for Managing Chronic Disease.</p< <p<Discussion</p< <p<The LETS study will be original in its undertaking of a prospective examination of outcomes 1-year post-transition, use of multiple comparison groups, and absence of disability-related exclusion criteria ensuring that the transition experiences of varied populations of young people and their families will be represented.</p< <p<Trial registration</p< <p<<url<http://www.clinicaltrials.gov</url<, ID NCT00975338</p< Transitions Youth Complex chronic conditions Disability Rehabilitation Study protocol Research methods Pediatrics Kingsnorth Shauna verfasserin aut Maxwell Joanne verfasserin aut Bayley Mark verfasserin aut Lindsay Sally verfasserin aut McKeever Patricia verfasserin aut Colantonio Angela verfasserin aut Hamdani Yani verfasserin aut Healy Helen verfasserin aut Macarthur Colin verfasserin aut In BMC Pediatrics BMC, 2003 12(2012), 1, p 51 (DE-627)326643621 (DE-600)2041342-7 14712431 nnns volume:12 year:2012 number:1, p 51 https://doi.org/10.1186/1471-2431-12-51 kostenfrei https://doaj.org/article/849b39b15b9c4146a52b8c3fb3643e3b kostenfrei http://www.biomedcentral.com/1471-2431/12/51 kostenfrei https://doaj.org/toc/1471-2431 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2012 1, p 51
allfieldsSound	10.1186/1471-2431-12-51 doi (DE-627)DOAJ023896396 (DE-599)DOAJ849b39b15b9c4146a52b8c3fb3643e3b DE-627 ger DE-627 rakwb eng RJ1-570 Tsybina Irina verfasserin aut Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation 2012 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier <p<Abstract</p< <p<Background</p< <p<Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre.</p< <p<Method</p< <p<This project will include a process and an outcome evaluation of the LIFEspan Model. The <it<process evaluation</it< will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative interviews with LIFEspan staff. The <it<outcome evaluation</it< will measure the effect of the model on: 1) maintaining continuity within the health care system from pediatric to adult care; and 2) secondary outcomes related to health, well-being, social participation, transition readiness, and health care utilization of youth with cerebral palsy and acquired brain injury. Standardized instruments will include Health Utilities Inventory, Assessment of Life Habits, Arc’s Self-Determination, Assessment of Health-Related Quality of Life, Partners in Health Questionnaire, Social Support Questionnaire, and Self-Efficacy for Managing Chronic Disease.</p< <p<Discussion</p< <p<The LETS study will be original in its undertaking of a prospective examination of outcomes 1-year post-transition, use of multiple comparison groups, and absence of disability-related exclusion criteria ensuring that the transition experiences of varied populations of young people and their families will be represented.</p< <p<Trial registration</p< <p<<url<http://www.clinicaltrials.gov</url<, ID NCT00975338</p< Transitions Youth Complex chronic conditions Disability Rehabilitation Study protocol Research methods Pediatrics Kingsnorth Shauna verfasserin aut Maxwell Joanne verfasserin aut Bayley Mark verfasserin aut Lindsay Sally verfasserin aut McKeever Patricia verfasserin aut Colantonio Angela verfasserin aut Hamdani Yani verfasserin aut Healy Helen verfasserin aut Macarthur Colin verfasserin aut In BMC Pediatrics BMC, 2003 12(2012), 1, p 51 (DE-627)326643621 (DE-600)2041342-7 14712431 nnns volume:12 year:2012 number:1, p 51 https://doi.org/10.1186/1471-2431-12-51 kostenfrei https://doaj.org/article/849b39b15b9c4146a52b8c3fb3643e3b kostenfrei http://www.biomedcentral.com/1471-2431/12/51 kostenfrei https://doaj.org/toc/1471-2431 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2012 1, p 51
language	English
source	In BMC Pediatrics 12(2012), 1, p 51 volume:12 year:2012 number:1, p 51
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topic_facet	Transitions Youth Complex chronic conditions Disability Rehabilitation Study protocol Research methods Pediatrics
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authorswithroles_txt_mv	Tsybina Irina @@aut@@ Kingsnorth Shauna @@aut@@ Maxwell Joanne @@aut@@ Bayley Mark @@aut@@ Lindsay Sally @@aut@@ McKeever Patricia @@aut@@ Colantonio Angela @@aut@@ Hamdani Yani @@aut@@ Healy Helen @@aut@@ Macarthur Colin @@aut@@
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topic_title	RJ1-570 Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation Transitions Youth Complex chronic conditions Disability Rehabilitation Study protocol Research methods
topic	misc RJ1-570 misc Transitions misc Youth misc Complex chronic conditions misc Disability misc Rehabilitation misc Study protocol misc Research methods misc Pediatrics
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title	Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation
ctrlnum	(DE-627)DOAJ023896396 (DE-599)DOAJ849b39b15b9c4146a52b8c3fb3643e3b
title_full	Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation
author_sort	Tsybina Irina
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author_browse	Tsybina Irina Kingsnorth Shauna Maxwell Joanne Bayley Mark Lindsay Sally McKeever Patricia Colantonio Angela Hamdani Yani Healy Helen Macarthur Colin
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title_sort	longitudinal evaluation of transition services (“lets study”): protocol for outcome evaluation
callnumber	RJ1-570
title_auth	Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation
abstract	<p<Abstract</p< <p<Background</p< <p<Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre.</p< <p<Method</p< <p<This project will include a process and an outcome evaluation of the LIFEspan Model. The <it<process evaluation</it< will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative interviews with LIFEspan staff. The <it<outcome evaluation</it< will measure the effect of the model on: 1) maintaining continuity within the health care system from pediatric to adult care; and 2) secondary outcomes related to health, well-being, social participation, transition readiness, and health care utilization of youth with cerebral palsy and acquired brain injury. Standardized instruments will include Health Utilities Inventory, Assessment of Life Habits, Arc’s Self-Determination, Assessment of Health-Related Quality of Life, Partners in Health Questionnaire, Social Support Questionnaire, and Self-Efficacy for Managing Chronic Disease.</p< <p<Discussion</p< <p<The LETS study will be original in its undertaking of a prospective examination of outcomes 1-year post-transition, use of multiple comparison groups, and absence of disability-related exclusion criteria ensuring that the transition experiences of varied populations of young people and their families will be represented.</p< <p<Trial registration</p< <p<<url<http://www.clinicaltrials.gov</url<, ID NCT00975338</p<
abstractGer	<p<Abstract</p< <p<Background</p< <p<Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre.</p< <p<Method</p< <p<This project will include a process and an outcome evaluation of the LIFEspan Model. The <it<process evaluation</it< will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative interviews with LIFEspan staff. The <it<outcome evaluation</it< will measure the effect of the model on: 1) maintaining continuity within the health care system from pediatric to adult care; and 2) secondary outcomes related to health, well-being, social participation, transition readiness, and health care utilization of youth with cerebral palsy and acquired brain injury. Standardized instruments will include Health Utilities Inventory, Assessment of Life Habits, Arc’s Self-Determination, Assessment of Health-Related Quality of Life, Partners in Health Questionnaire, Social Support Questionnaire, and Self-Efficacy for Managing Chronic Disease.</p< <p<Discussion</p< <p<The LETS study will be original in its undertaking of a prospective examination of outcomes 1-year post-transition, use of multiple comparison groups, and absence of disability-related exclusion criteria ensuring that the transition experiences of varied populations of young people and their families will be represented.</p< <p<Trial registration</p< <p<<url<http://www.clinicaltrials.gov</url<, ID NCT00975338</p<
abstract_unstemmed	<p<Abstract</p< <p<Background</p< <p<Because of advances in medical treatment, most children with physical disabilities can expect to achieve near normal life spans. Typically, coordinated teams of health care providers in specialized pediatric settings care for these children. As these children reach adulthood, however, the availability of services and expertise changes because the adult health care system has different processes designed to meet their specialized needs. Gaps in continuity of care during the transition from pediatric to adult services, and associated poor health outcomes are well documented. In response, new models of care are being introduced to address the complex process of health care transition. This paper describes a study protocol of a client-centred, prospective, longitudinal, mixed-method evaluation of linked model of health care across the lifespan (the LIFEspan Model), offered by a pediatric rehabilitation centre and an adult rehabilitation centre.</p< <p<Method</p< <p<This project will include a process and an outcome evaluation of the LIFEspan Model. The <it<process evaluation</it< will detail the specific service delivery that occurs with respect to preparation for transition and transfer of care through chart audits of pediatric medical records and qualitative interviews with LIFEspan staff. The <it<outcome evaluation</it< will measure the effect of the model on: 1) maintaining continuity within the health care system from pediatric to adult care; and 2) secondary outcomes related to health, well-being, social participation, transition readiness, and health care utilization of youth with cerebral palsy and acquired brain injury. Standardized instruments will include Health Utilities Inventory, Assessment of Life Habits, Arc’s Self-Determination, Assessment of Health-Related Quality of Life, Partners in Health Questionnaire, Social Support Questionnaire, and Self-Efficacy for Managing Chronic Disease.</p< <p<Discussion</p< <p<The LETS study will be original in its undertaking of a prospective examination of outcomes 1-year post-transition, use of multiple comparison groups, and absence of disability-related exclusion criteria ensuring that the transition experiences of varied populations of young people and their families will be represented.</p< <p<Trial registration</p< <p<<url<http://www.clinicaltrials.gov</url<, ID NCT00975338</p<
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title_short	Longitudinal Evaluation of Transition Services (“LETS Study”): Protocol for outcome evaluation
url	https://doi.org/10.1186/1471-2431-12-51 https://doaj.org/article/849b39b15b9c4146a52b8c3fb3643e3b http://www.biomedcentral.com/1471-2431/12/51 https://doaj.org/toc/1471-2431
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