Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research
Canada's Assisted Human Reproduction Act is long overdue for Parliamentary review. We argue that the current regulation of research using human reproductive materials is not proportionate, not responsive to the uncertain threats posed to human and environmental health and safety, and is not con...
Ausführliche Beschreibung
Autor*in: |
Tania Bubela [verfasserIn] Erika Kleiderman [verfasserIn] Zubin Master [verfasserIn] Ubaka Ogbogu [verfasserIn] Vardit Ravitsky [verfasserIn] Amy Zarzeczny [verfasserIn] Bartha Maria Knoppers [verfasserIn] |
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E-Artikel |
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Sprache: |
Englisch |
Erschienen: |
2019 |
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Übergeordnetes Werk: |
In: Frontiers in Medicine - Frontiers Media S.A., 2014, 6(2019) |
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Übergeordnetes Werk: |
volume:6 ; year:2019 |
Links: |
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DOI / URN: |
10.3389/fmed.2019.00157 |
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Katalog-ID: |
DOAJ030585333 |
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10.3389/fmed.2019.00157 doi (DE-627)DOAJ030585333 (DE-599)DOAJe5b4ecad900240eeb5ee2ee69767e259 DE-627 ger DE-627 rakwb eng R5-920 Tania Bubela verfasserin aut Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research 2019 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Canada's Assisted Human Reproduction Act is long overdue for Parliamentary review. We argue that the current regulation of research using human reproductive materials is not proportionate, not responsive to the uncertain threats posed to human and environmental health and safety, and is not considerate of diverse values in a democratic society. We propose tailored regulatory carve-outs for in vitro research for currently prohibited activities, such as gene editing, and for the exercise of Ministerial Discretion for access by Canadians to experimental in vivo interventions that are currently prohibited, such as mitochondrial replacement therapy. Our recommendations are bounded by constitutional constraints that recognize political and practical challenges in keeping oversight of this research under Federal jurisdiction, whether conducted in academic or private sectors. The proposed nuanced regulatory scheme should be overseen by a new national Agency, modeled on a blend of the Canadian Stem Cell Oversight Committee and Assisted Human Reproduction Canada. assisted reproductive technologies regulation criminal law constitutional law in vitro research mitochondrial replacement therapy Medicine (General) Erika Kleiderman verfasserin aut Zubin Master verfasserin aut Zubin Master verfasserin aut Ubaka Ogbogu verfasserin aut Vardit Ravitsky verfasserin aut Amy Zarzeczny verfasserin aut Bartha Maria Knoppers verfasserin aut In Frontiers in Medicine Frontiers Media S.A., 2014 6(2019) (DE-627)789482991 (DE-600)2775999-4 2296858X nnns volume:6 year:2019 https://doi.org/10.3389/fmed.2019.00157 kostenfrei https://doaj.org/article/e5b4ecad900240eeb5ee2ee69767e259 kostenfrei https://www.frontiersin.org/article/10.3389/fmed.2019.00157/full kostenfrei https://doaj.org/toc/2296-858X Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 6 2019 |
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10.3389/fmed.2019.00157 doi (DE-627)DOAJ030585333 (DE-599)DOAJe5b4ecad900240eeb5ee2ee69767e259 DE-627 ger DE-627 rakwb eng R5-920 Tania Bubela verfasserin aut Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research 2019 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Canada's Assisted Human Reproduction Act is long overdue for Parliamentary review. We argue that the current regulation of research using human reproductive materials is not proportionate, not responsive to the uncertain threats posed to human and environmental health and safety, and is not considerate of diverse values in a democratic society. We propose tailored regulatory carve-outs for in vitro research for currently prohibited activities, such as gene editing, and for the exercise of Ministerial Discretion for access by Canadians to experimental in vivo interventions that are currently prohibited, such as mitochondrial replacement therapy. Our recommendations are bounded by constitutional constraints that recognize political and practical challenges in keeping oversight of this research under Federal jurisdiction, whether conducted in academic or private sectors. The proposed nuanced regulatory scheme should be overseen by a new national Agency, modeled on a blend of the Canadian Stem Cell Oversight Committee and Assisted Human Reproduction Canada. assisted reproductive technologies regulation criminal law constitutional law in vitro research mitochondrial replacement therapy Medicine (General) Erika Kleiderman verfasserin aut Zubin Master verfasserin aut Zubin Master verfasserin aut Ubaka Ogbogu verfasserin aut Vardit Ravitsky verfasserin aut Amy Zarzeczny verfasserin aut Bartha Maria Knoppers verfasserin aut In Frontiers in Medicine Frontiers Media S.A., 2014 6(2019) (DE-627)789482991 (DE-600)2775999-4 2296858X nnns volume:6 year:2019 https://doi.org/10.3389/fmed.2019.00157 kostenfrei https://doaj.org/article/e5b4ecad900240eeb5ee2ee69767e259 kostenfrei https://www.frontiersin.org/article/10.3389/fmed.2019.00157/full kostenfrei https://doaj.org/toc/2296-858X Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 6 2019 |
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10.3389/fmed.2019.00157 doi (DE-627)DOAJ030585333 (DE-599)DOAJe5b4ecad900240eeb5ee2ee69767e259 DE-627 ger DE-627 rakwb eng R5-920 Tania Bubela verfasserin aut Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research 2019 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Canada's Assisted Human Reproduction Act is long overdue for Parliamentary review. We argue that the current regulation of research using human reproductive materials is not proportionate, not responsive to the uncertain threats posed to human and environmental health and safety, and is not considerate of diverse values in a democratic society. We propose tailored regulatory carve-outs for in vitro research for currently prohibited activities, such as gene editing, and for the exercise of Ministerial Discretion for access by Canadians to experimental in vivo interventions that are currently prohibited, such as mitochondrial replacement therapy. Our recommendations are bounded by constitutional constraints that recognize political and practical challenges in keeping oversight of this research under Federal jurisdiction, whether conducted in academic or private sectors. The proposed nuanced regulatory scheme should be overseen by a new national Agency, modeled on a blend of the Canadian Stem Cell Oversight Committee and Assisted Human Reproduction Canada. assisted reproductive technologies regulation criminal law constitutional law in vitro research mitochondrial replacement therapy Medicine (General) Erika Kleiderman verfasserin aut Zubin Master verfasserin aut Zubin Master verfasserin aut Ubaka Ogbogu verfasserin aut Vardit Ravitsky verfasserin aut Amy Zarzeczny verfasserin aut Bartha Maria Knoppers verfasserin aut In Frontiers in Medicine Frontiers Media S.A., 2014 6(2019) (DE-627)789482991 (DE-600)2775999-4 2296858X nnns volume:6 year:2019 https://doi.org/10.3389/fmed.2019.00157 kostenfrei https://doaj.org/article/e5b4ecad900240eeb5ee2ee69767e259 kostenfrei https://www.frontiersin.org/article/10.3389/fmed.2019.00157/full kostenfrei https://doaj.org/toc/2296-858X Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 6 2019 |
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Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research |
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Canada's Assisted Human Reproduction Act is long overdue for Parliamentary review. We argue that the current regulation of research using human reproductive materials is not proportionate, not responsive to the uncertain threats posed to human and environmental health and safety, and is not considerate of diverse values in a democratic society. We propose tailored regulatory carve-outs for in vitro research for currently prohibited activities, such as gene editing, and for the exercise of Ministerial Discretion for access by Canadians to experimental in vivo interventions that are currently prohibited, such as mitochondrial replacement therapy. Our recommendations are bounded by constitutional constraints that recognize political and practical challenges in keeping oversight of this research under Federal jurisdiction, whether conducted in academic or private sectors. The proposed nuanced regulatory scheme should be overseen by a new national Agency, modeled on a blend of the Canadian Stem Cell Oversight Committee and Assisted Human Reproduction Canada. |
abstractGer |
Canada's Assisted Human Reproduction Act is long overdue for Parliamentary review. We argue that the current regulation of research using human reproductive materials is not proportionate, not responsive to the uncertain threats posed to human and environmental health and safety, and is not considerate of diverse values in a democratic society. We propose tailored regulatory carve-outs for in vitro research for currently prohibited activities, such as gene editing, and for the exercise of Ministerial Discretion for access by Canadians to experimental in vivo interventions that are currently prohibited, such as mitochondrial replacement therapy. Our recommendations are bounded by constitutional constraints that recognize political and practical challenges in keeping oversight of this research under Federal jurisdiction, whether conducted in academic or private sectors. The proposed nuanced regulatory scheme should be overseen by a new national Agency, modeled on a blend of the Canadian Stem Cell Oversight Committee and Assisted Human Reproduction Canada. |
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Canada's Assisted Human Reproduction Act is long overdue for Parliamentary review. We argue that the current regulation of research using human reproductive materials is not proportionate, not responsive to the uncertain threats posed to human and environmental health and safety, and is not considerate of diverse values in a democratic society. We propose tailored regulatory carve-outs for in vitro research for currently prohibited activities, such as gene editing, and for the exercise of Ministerial Discretion for access by Canadians to experimental in vivo interventions that are currently prohibited, such as mitochondrial replacement therapy. Our recommendations are bounded by constitutional constraints that recognize political and practical challenges in keeping oversight of this research under Federal jurisdiction, whether conducted in academic or private sectors. The proposed nuanced regulatory scheme should be overseen by a new national Agency, modeled on a blend of the Canadian Stem Cell Oversight Committee and Assisted Human Reproduction Canada. |
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