Supporting Relatives Prior to Caregiver Burden—Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study
Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for...
Ausführliche Beschreibung
Gespeichert in:
| Autor*in: |
Catharina Muente [verfasserIn] Ann-Kristin Folkerts [verfasserIn] Elke Kalbe [verfasserIn] Franziska Thieken [verfasserIn] Laura-Elisa Assmann [verfasserIn] Maria Widritzki [verfasserIn] Carsten Eggers [verfasserIn] David Pedrosa [verfasserIn] Marcel Wilhelm [verfasserIn] |
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| Format: |
E-Artikel |
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| Sprache: |
Englisch |
| Erschienen: |
2022 |
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| Schlagwörter: |
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| Übergeordnetes Werk: |
In: Brain Sciences - MDPI AG, 2012, 12(2022), 4, p 442 |
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| Übergeordnetes Werk: |
volume:12 ; year:2022 ; number:4, p 442 |
| Links: |
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| DOI / URN: |
10.3390/brainsci12040442 |
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| Katalog-ID: |
DOAJ044426453 |
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| 520 | |a Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. | ||
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10.3390/brainsci12040442 doi (DE-627)DOAJ044426453 (DE-599)DOAJ6999d85ebb6e434dbbad5e122744a0cc DE-627 ger DE-627 rakwb eng RC321-571 Catharina Muente verfasserin aut Supporting Relatives Prior to Caregiver Burden—Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. Parkinson’s disease early phase of Parkinsonism non-caregiving relatives burden stress quality of life Neurosciences. Biological psychiatry. Neuropsychiatry Ann-Kristin Folkerts verfasserin aut Elke Kalbe verfasserin aut Franziska Thieken verfasserin aut Laura-Elisa Assmann verfasserin aut Maria Widritzki verfasserin aut Carsten Eggers verfasserin aut David Pedrosa verfasserin aut Marcel Wilhelm verfasserin aut In Brain Sciences MDPI AG, 2012 12(2022), 4, p 442 (DE-627)687718139 (DE-600)2651993-8 20763425 nnns volume:12 year:2022 number:4, p 442 https://doi.org/10.3390/brainsci12040442 kostenfrei https://doaj.org/article/6999d85ebb6e434dbbad5e122744a0cc kostenfrei https://www.mdpi.com/2076-3425/12/4/442 kostenfrei https://doaj.org/toc/2076-3425 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2022 4, p 442 |
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10.3390/brainsci12040442 doi (DE-627)DOAJ044426453 (DE-599)DOAJ6999d85ebb6e434dbbad5e122744a0cc DE-627 ger DE-627 rakwb eng RC321-571 Catharina Muente verfasserin aut Supporting Relatives Prior to Caregiver Burden—Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. Parkinson’s disease early phase of Parkinsonism non-caregiving relatives burden stress quality of life Neurosciences. Biological psychiatry. Neuropsychiatry Ann-Kristin Folkerts verfasserin aut Elke Kalbe verfasserin aut Franziska Thieken verfasserin aut Laura-Elisa Assmann verfasserin aut Maria Widritzki verfasserin aut Carsten Eggers verfasserin aut David Pedrosa verfasserin aut Marcel Wilhelm verfasserin aut In Brain Sciences MDPI AG, 2012 12(2022), 4, p 442 (DE-627)687718139 (DE-600)2651993-8 20763425 nnns volume:12 year:2022 number:4, p 442 https://doi.org/10.3390/brainsci12040442 kostenfrei https://doaj.org/article/6999d85ebb6e434dbbad5e122744a0cc kostenfrei https://www.mdpi.com/2076-3425/12/4/442 kostenfrei https://doaj.org/toc/2076-3425 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2022 4, p 442 |
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10.3390/brainsci12040442 doi (DE-627)DOAJ044426453 (DE-599)DOAJ6999d85ebb6e434dbbad5e122744a0cc DE-627 ger DE-627 rakwb eng RC321-571 Catharina Muente verfasserin aut Supporting Relatives Prior to Caregiver Burden—Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. Parkinson’s disease early phase of Parkinsonism non-caregiving relatives burden stress quality of life Neurosciences. Biological psychiatry. Neuropsychiatry Ann-Kristin Folkerts verfasserin aut Elke Kalbe verfasserin aut Franziska Thieken verfasserin aut Laura-Elisa Assmann verfasserin aut Maria Widritzki verfasserin aut Carsten Eggers verfasserin aut David Pedrosa verfasserin aut Marcel Wilhelm verfasserin aut In Brain Sciences MDPI AG, 2012 12(2022), 4, p 442 (DE-627)687718139 (DE-600)2651993-8 20763425 nnns volume:12 year:2022 number:4, p 442 https://doi.org/10.3390/brainsci12040442 kostenfrei https://doaj.org/article/6999d85ebb6e434dbbad5e122744a0cc kostenfrei https://www.mdpi.com/2076-3425/12/4/442 kostenfrei https://doaj.org/toc/2076-3425 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2022 4, p 442 |
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10.3390/brainsci12040442 doi (DE-627)DOAJ044426453 (DE-599)DOAJ6999d85ebb6e434dbbad5e122744a0cc DE-627 ger DE-627 rakwb eng RC321-571 Catharina Muente verfasserin aut Supporting Relatives Prior to Caregiver Burden—Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. Parkinson’s disease early phase of Parkinsonism non-caregiving relatives burden stress quality of life Neurosciences. Biological psychiatry. Neuropsychiatry Ann-Kristin Folkerts verfasserin aut Elke Kalbe verfasserin aut Franziska Thieken verfasserin aut Laura-Elisa Assmann verfasserin aut Maria Widritzki verfasserin aut Carsten Eggers verfasserin aut David Pedrosa verfasserin aut Marcel Wilhelm verfasserin aut In Brain Sciences MDPI AG, 2012 12(2022), 4, p 442 (DE-627)687718139 (DE-600)2651993-8 20763425 nnns volume:12 year:2022 number:4, p 442 https://doi.org/10.3390/brainsci12040442 kostenfrei https://doaj.org/article/6999d85ebb6e434dbbad5e122744a0cc kostenfrei https://www.mdpi.com/2076-3425/12/4/442 kostenfrei https://doaj.org/toc/2076-3425 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2022 4, p 442 |
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10.3390/brainsci12040442 doi (DE-627)DOAJ044426453 (DE-599)DOAJ6999d85ebb6e434dbbad5e122744a0cc DE-627 ger DE-627 rakwb eng RC321-571 Catharina Muente verfasserin aut Supporting Relatives Prior to Caregiver Burden—Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study 2022 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. Parkinson’s disease early phase of Parkinsonism non-caregiving relatives burden stress quality of life Neurosciences. Biological psychiatry. Neuropsychiatry Ann-Kristin Folkerts verfasserin aut Elke Kalbe verfasserin aut Franziska Thieken verfasserin aut Laura-Elisa Assmann verfasserin aut Maria Widritzki verfasserin aut Carsten Eggers verfasserin aut David Pedrosa verfasserin aut Marcel Wilhelm verfasserin aut In Brain Sciences MDPI AG, 2012 12(2022), 4, p 442 (DE-627)687718139 (DE-600)2651993-8 20763425 nnns volume:12 year:2022 number:4, p 442 https://doi.org/10.3390/brainsci12040442 kostenfrei https://doaj.org/article/6999d85ebb6e434dbbad5e122744a0cc kostenfrei https://www.mdpi.com/2076-3425/12/4/442 kostenfrei https://doaj.org/toc/2076-3425 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 12 2022 4, p 442 |
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Supporting Relatives Prior to Caregiver Burden—Preventive E-Mental Health Short Intervention for Family Members of Individuals with Parkinsonism in an Early Phase of the Disease: Protocol for a Feasibility Study |
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Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. |
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Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. |
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Research on support for relatives of patients with Parkinsonism has mainly focused on caregivers, while preventive offers for non-caregiving relatives are lacking. Thus, the aim of this multicenter pilot study is to develop and assess the feasibility of a preventive psychosocial support program for relatives of patients with Parkinsonism. It specifically focuses on family members of patients who are in an early phase of the disease, are not currently caregiving, and have not yet developed distress symptoms. It includes a telemedicine-based, 6-week preventive psychological short intervention (PPSI). The main objective of this feasibility mixed-methods study is to specify the demand for an early, low-threshold, and low-cost short intervention and to collect feedback based on qualitative and quantitative data of <i<N</i< = 20 relatives. Secondary objectives are an evaluation of the effects of the intervention and an analysis of the study design. Future directions are to further develop the PPSI using these data. This study can serve as a basis for future randomized controlled studies on this intervention, which might fill an important gap in clinical supply. |
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