Dying in honour: experiences of end-of-life palliative care during the 2013–2016 Ebola outbreak in Guinea

Abstract With no cure and a high mortality rate, Ebola virus disease (EVD) outbreaks require preparedness for the provision of end-of-life palliative care. This qualitative study is part of a larger project on palliative care in humanitarian contexts. Its goal was to document and deepen understandin...
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Gespeichert in:

Autor*in:	Elysée Nouvet [verfasserIn] Kevin Bezanson [verfasserIn] Matthew Hunt [verfasserIn] Sekou Kouyaté [verfasserIn] Lisa Schwartz [verfasserIn] Fatoumata Binta Diallo [verfasserIn] Sonya de Laat [verfasserIn] Oumou Younoussa Bah-Sow [verfasserIn] Alpha Ahmadou Diallo [verfasserIn] Pathé Diallo [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2021

Übergeordnetes Werk:	In: Journal of International Humanitarian Action - SpringerOpen, 2017, 6(2021), 1, Seite 17
Übergeordnetes Werk:	volume:6 ; year:2021 ; number:1 ; pages:17

Links:	Link aufrufen Link aufrufen Link aufrufen Journal toc Journal toc

DOI / URN:	10.1186/s41018-021-00099-3

Katalog-ID:	DOAJ055443699

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spelling	10.1186/s41018-021-00099-3 doi (DE-627)DOAJ055443699 (DE-599)DOAJ32ed948231854c088b477cfa0032e37c DE-627 ger DE-627 rakwb eng GN1-890 JZ2-6530 Elysée Nouvet verfasserin aut Dying in honour: experiences of end-of-life palliative care during the 2013–2016 Ebola outbreak in Guinea 2021 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Abstract With no cure and a high mortality rate, Ebola virus disease (EVD) outbreaks require preparedness for the provision of end-of-life palliative care. This qualitative study is part of a larger project on palliative care in humanitarian contexts. Its goal was to document and deepen understanding of experiences and expectations related to end-of-life palliative care for patients infected with Ebola virus disease (EVD) in West African Ebola treatment centres (ETCs) during the 2013–2016 epidemic. It consisted of 15 in-depth semi-structured interviews with individuals impacted by EVD in a Guinean ETC: either as patients in an ETC, healthcare providers, healthcare providers who were also EVD patients at one point, family relations who visited patients who died in an ETC, or providers of spiritual support to patients and family. Analysis was team based and applied an interpretive descriptive approach. Healthcare delivery in humanitarian emergencies must remain respectful of patient preferences but also local and contextual values and norms. Of key importance in the Guinean context is the culturally valued experience of “dying in honour”. This involves accompaniment to facilitate a peaceful death, the possibility of passing on final messages to family members, prayer, and particular practices to enact respect for the bodies of the deceased. Participants emphasized several challenges to such death in Ebola treatment centres (ETCs), as well as practices they deemed helpful to alleviating dying patients’ suffering. An overarching message in participants’ accounts was that ideally more would have been done for the dying in ETCs. Building on participants’ accounts, we outline a number of considerations for optimizing end-of-life palliative care during current and future public health emergencies, including for COVID-19. Anthropology International relations Kevin Bezanson verfasserin aut Matthew Hunt verfasserin aut Sekou Kouyaté verfasserin aut Lisa Schwartz verfasserin aut Fatoumata Binta Diallo verfasserin aut Sonya de Laat verfasserin aut Oumou Younoussa Bah-Sow verfasserin aut Alpha Ahmadou Diallo verfasserin aut Pathé Diallo verfasserin aut In Journal of International Humanitarian Action SpringerOpen, 2017 6(2021), 1, Seite 17 (DE-627)844073555 (DE-600)2842805-5 23643404 nnns volume:6 year:2021 number:1 pages:17 https://doi.org/10.1186/s41018-021-00099-3 kostenfrei https://doaj.org/article/32ed948231854c088b477cfa0032e37c kostenfrei https://doi.org/10.1186/s41018-021-00099-3 kostenfrei https://doaj.org/toc/2364-3412 Journal toc kostenfrei https://doaj.org/toc/2364-3404 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_95 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_184 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4335 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 GBV_ILN_4753 AR 6 2021 1 17
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allfieldsSound	10.1186/s41018-021-00099-3 doi (DE-627)DOAJ055443699 (DE-599)DOAJ32ed948231854c088b477cfa0032e37c DE-627 ger DE-627 rakwb eng GN1-890 JZ2-6530 Elysée Nouvet verfasserin aut Dying in honour: experiences of end-of-life palliative care during the 2013–2016 Ebola outbreak in Guinea 2021 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Abstract With no cure and a high mortality rate, Ebola virus disease (EVD) outbreaks require preparedness for the provision of end-of-life palliative care. This qualitative study is part of a larger project on palliative care in humanitarian contexts. Its goal was to document and deepen understanding of experiences and expectations related to end-of-life palliative care for patients infected with Ebola virus disease (EVD) in West African Ebola treatment centres (ETCs) during the 2013–2016 epidemic. It consisted of 15 in-depth semi-structured interviews with individuals impacted by EVD in a Guinean ETC: either as patients in an ETC, healthcare providers, healthcare providers who were also EVD patients at one point, family relations who visited patients who died in an ETC, or providers of spiritual support to patients and family. Analysis was team based and applied an interpretive descriptive approach. Healthcare delivery in humanitarian emergencies must remain respectful of patient preferences but also local and contextual values and norms. Of key importance in the Guinean context is the culturally valued experience of “dying in honour”. This involves accompaniment to facilitate a peaceful death, the possibility of passing on final messages to family members, prayer, and particular practices to enact respect for the bodies of the deceased. Participants emphasized several challenges to such death in Ebola treatment centres (ETCs), as well as practices they deemed helpful to alleviating dying patients’ suffering. An overarching message in participants’ accounts was that ideally more would have been done for the dying in ETCs. Building on participants’ accounts, we outline a number of considerations for optimizing end-of-life palliative care during current and future public health emergencies, including for COVID-19. Anthropology International relations Kevin Bezanson verfasserin aut Matthew Hunt verfasserin aut Sekou Kouyaté verfasserin aut Lisa Schwartz verfasserin aut Fatoumata Binta Diallo verfasserin aut Sonya de Laat verfasserin aut Oumou Younoussa Bah-Sow verfasserin aut Alpha Ahmadou Diallo verfasserin aut Pathé Diallo verfasserin aut In Journal of International Humanitarian Action SpringerOpen, 2017 6(2021), 1, Seite 17 (DE-627)844073555 (DE-600)2842805-5 23643404 nnns volume:6 year:2021 number:1 pages:17 https://doi.org/10.1186/s41018-021-00099-3 kostenfrei https://doaj.org/article/32ed948231854c088b477cfa0032e37c kostenfrei https://doi.org/10.1186/s41018-021-00099-3 kostenfrei https://doaj.org/toc/2364-3412 Journal toc kostenfrei https://doaj.org/toc/2364-3404 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_95 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_184 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4335 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 GBV_ILN_4753 AR 6 2021 1 17
language	English
source	In Journal of International Humanitarian Action 6(2021), 1, Seite 17 volume:6 year:2021 number:1 pages:17
sourceStr	In Journal of International Humanitarian Action 6(2021), 1, Seite 17 volume:6 year:2021 number:1 pages:17
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container_title	Journal of International Humanitarian Action
authorswithroles_txt_mv	Elysée Nouvet @@aut@@ Kevin Bezanson @@aut@@ Matthew Hunt @@aut@@ Sekou Kouyaté @@aut@@ Lisa Schwartz @@aut@@ Fatoumata Binta Diallo @@aut@@ Sonya de Laat @@aut@@ Oumou Younoussa Bah-Sow @@aut@@ Alpha Ahmadou Diallo @@aut@@ Pathé Diallo @@aut@@
publishDateDaySort_date	2021-01-01T00:00:00Z
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author	Elysée Nouvet
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topic_title	GN1-890 JZ2-6530 Dying in honour: experiences of end-of-life palliative care during the 2013–2016 Ebola outbreak in Guinea
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title	Dying in honour: experiences of end-of-life palliative care during the 2013–2016 Ebola outbreak in Guinea
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author_browse	Elysée Nouvet Kevin Bezanson Matthew Hunt Sekou Kouyaté Lisa Schwartz Fatoumata Binta Diallo Sonya de Laat Oumou Younoussa Bah-Sow Alpha Ahmadou Diallo Pathé Diallo
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title_sort	dying in honour: experiences of end-of-life palliative care during the 2013–2016 ebola outbreak in guinea
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title_auth	Dying in honour: experiences of end-of-life palliative care during the 2013–2016 Ebola outbreak in Guinea
abstract	Abstract With no cure and a high mortality rate, Ebola virus disease (EVD) outbreaks require preparedness for the provision of end-of-life palliative care. This qualitative study is part of a larger project on palliative care in humanitarian contexts. Its goal was to document and deepen understanding of experiences and expectations related to end-of-life palliative care for patients infected with Ebola virus disease (EVD) in West African Ebola treatment centres (ETCs) during the 2013–2016 epidemic. It consisted of 15 in-depth semi-structured interviews with individuals impacted by EVD in a Guinean ETC: either as patients in an ETC, healthcare providers, healthcare providers who were also EVD patients at one point, family relations who visited patients who died in an ETC, or providers of spiritual support to patients and family. Analysis was team based and applied an interpretive descriptive approach. Healthcare delivery in humanitarian emergencies must remain respectful of patient preferences but also local and contextual values and norms. Of key importance in the Guinean context is the culturally valued experience of “dying in honour”. This involves accompaniment to facilitate a peaceful death, the possibility of passing on final messages to family members, prayer, and particular practices to enact respect for the bodies of the deceased. Participants emphasized several challenges to such death in Ebola treatment centres (ETCs), as well as practices they deemed helpful to alleviating dying patients’ suffering. An overarching message in participants’ accounts was that ideally more would have been done for the dying in ETCs. Building on participants’ accounts, we outline a number of considerations for optimizing end-of-life palliative care during current and future public health emergencies, including for COVID-19.
abstractGer	Abstract With no cure and a high mortality rate, Ebola virus disease (EVD) outbreaks require preparedness for the provision of end-of-life palliative care. This qualitative study is part of a larger project on palliative care in humanitarian contexts. Its goal was to document and deepen understanding of experiences and expectations related to end-of-life palliative care for patients infected with Ebola virus disease (EVD) in West African Ebola treatment centres (ETCs) during the 2013–2016 epidemic. It consisted of 15 in-depth semi-structured interviews with individuals impacted by EVD in a Guinean ETC: either as patients in an ETC, healthcare providers, healthcare providers who were also EVD patients at one point, family relations who visited patients who died in an ETC, or providers of spiritual support to patients and family. Analysis was team based and applied an interpretive descriptive approach. Healthcare delivery in humanitarian emergencies must remain respectful of patient preferences but also local and contextual values and norms. Of key importance in the Guinean context is the culturally valued experience of “dying in honour”. This involves accompaniment to facilitate a peaceful death, the possibility of passing on final messages to family members, prayer, and particular practices to enact respect for the bodies of the deceased. Participants emphasized several challenges to such death in Ebola treatment centres (ETCs), as well as practices they deemed helpful to alleviating dying patients’ suffering. An overarching message in participants’ accounts was that ideally more would have been done for the dying in ETCs. Building on participants’ accounts, we outline a number of considerations for optimizing end-of-life palliative care during current and future public health emergencies, including for COVID-19.
abstract_unstemmed	Abstract With no cure and a high mortality rate, Ebola virus disease (EVD) outbreaks require preparedness for the provision of end-of-life palliative care. This qualitative study is part of a larger project on palliative care in humanitarian contexts. Its goal was to document and deepen understanding of experiences and expectations related to end-of-life palliative care for patients infected with Ebola virus disease (EVD) in West African Ebola treatment centres (ETCs) during the 2013–2016 epidemic. It consisted of 15 in-depth semi-structured interviews with individuals impacted by EVD in a Guinean ETC: either as patients in an ETC, healthcare providers, healthcare providers who were also EVD patients at one point, family relations who visited patients who died in an ETC, or providers of spiritual support to patients and family. Analysis was team based and applied an interpretive descriptive approach. Healthcare delivery in humanitarian emergencies must remain respectful of patient preferences but also local and contextual values and norms. Of key importance in the Guinean context is the culturally valued experience of “dying in honour”. This involves accompaniment to facilitate a peaceful death, the possibility of passing on final messages to family members, prayer, and particular practices to enact respect for the bodies of the deceased. Participants emphasized several challenges to such death in Ebola treatment centres (ETCs), as well as practices they deemed helpful to alleviating dying patients’ suffering. An overarching message in participants’ accounts was that ideally more would have been done for the dying in ETCs. Building on participants’ accounts, we outline a number of considerations for optimizing end-of-life palliative care during current and future public health emergencies, including for COVID-19.
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title_short	Dying in honour: experiences of end-of-life palliative care during the 2013–2016 Ebola outbreak in Guinea
url	https://doi.org/10.1186/s41018-021-00099-3 https://doaj.org/article/32ed948231854c088b477cfa0032e37c https://doaj.org/toc/2364-3412 https://doaj.org/toc/2364-3404
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Dying in honour: experiences of end-of-life palliative care during the 2013–2016 Ebola outbreak in Guinea

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