Providing Home-Based Support for Children with Chronic Conditions in an Urban Slum: Experiences from a Community-Based Palliative Care Program in Bangladesh

We describe the palliative care needs of children with chronic conditions and their caregivers in an urban slum in Bangladesh. In this cross-sectional study, we interviewed 25 caregivers whose children receive support from a community-based program lead by community health workers, that provides med...
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Autor*in:	Mostofa Kamal Chowdhury [verfasserIn] Khadija Shopna [verfasserIn] Anisha Lynch-Godrei [verfasserIn] Mehr Jain [verfasserIn] Nadia Farheen [verfasserIn] Noorjahan Begum [verfasserIn] Nezamuddin Ahmad [verfasserIn] Megan Doherty [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2021

Übergeordnetes Werk:	In: Global Pediatric Health - SAGE Publishing, 2015, 8(2021)
Übergeordnetes Werk:	volume:8 ; year:2021

Links:	Link aufrufen Link aufrufen Link aufrufen Journal toc

DOI / URN:	10.1177/2333794X21999155

Katalog-ID:	DOAJ069090610

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allfieldsSound	10.1177/2333794X21999155 doi (DE-627)DOAJ069090610 (DE-599)DOAJd80b8c747cdc493099e47550ed89ed58 DE-627 ger DE-627 rakwb eng RJ1-570 Mostofa Kamal Chowdhury verfasserin aut Providing Home-Based Support for Children with Chronic Conditions in an Urban Slum: Experiences from a Community-Based Palliative Care Program in Bangladesh 2021 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier We describe the palliative care needs of children with chronic conditions and their caregivers in an urban slum in Bangladesh. In this cross-sectional study, we interviewed 25 caregivers whose children receive support from a community-based program lead by community health workers, that provides medication, medical supplies, food, caregiver training, and psychological support free of charge. The chronic conditions of children in the program included cerebral palsy (80%), congenital heart disease (8%), neurodegenerative conditions (4%), cancer (4%), and intellectual disabilities (4%). Common symptoms included cough or breathing problems (64%), fever (56%), and pain (56%). Most caregivers (96%) reported they were unable to do any paid work due to their child’s needs and in all families, the child’s condition had a significant impact on their financial situation. Community-based palliative care programs can be developed to support children with chronic conditions who may not access care from acute care facilities. Pediatrics Khadija Shopna verfasserin aut Anisha Lynch-Godrei verfasserin aut Mehr Jain verfasserin aut Nadia Farheen verfasserin aut Noorjahan Begum verfasserin aut Nezamuddin Ahmad verfasserin aut Megan Doherty verfasserin aut In Global Pediatric Health SAGE Publishing, 2015 8(2021) (DE-627)797381996 (DE-600)2785531-4 2333794X nnns volume:8 year:2021 https://doi.org/10.1177/2333794X21999155 kostenfrei https://doaj.org/article/d80b8c747cdc493099e47550ed89ed58 kostenfrei https://doi.org/10.1177/2333794X21999155 kostenfrei https://doaj.org/toc/2333-794X Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_374 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_2034 GBV_ILN_2068 GBV_ILN_2704 GBV_ILN_2707 GBV_ILN_2890 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 8 2021
language	English
source	In Global Pediatric Health 8(2021) volume:8 year:2021
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authorswithroles_txt_mv	Mostofa Kamal Chowdhury @@aut@@ Khadija Shopna @@aut@@ Anisha Lynch-Godrei @@aut@@ Mehr Jain @@aut@@ Nadia Farheen @@aut@@ Noorjahan Begum @@aut@@ Nezamuddin Ahmad @@aut@@ Megan Doherty @@aut@@
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callnumber-first	R - Medicine
author	Mostofa Kamal Chowdhury
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topic_title	RJ1-570 Providing Home-Based Support for Children with Chronic Conditions in an Urban Slum: Experiences from a Community-Based Palliative Care Program in Bangladesh
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title	Providing Home-Based Support for Children with Chronic Conditions in an Urban Slum: Experiences from a Community-Based Palliative Care Program in Bangladesh
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title_full	Providing Home-Based Support for Children with Chronic Conditions in an Urban Slum: Experiences from a Community-Based Palliative Care Program in Bangladesh
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title_sort	providing home-based support for children with chronic conditions in an urban slum: experiences from a community-based palliative care program in bangladesh
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title_auth	Providing Home-Based Support for Children with Chronic Conditions in an Urban Slum: Experiences from a Community-Based Palliative Care Program in Bangladesh
abstract	We describe the palliative care needs of children with chronic conditions and their caregivers in an urban slum in Bangladesh. In this cross-sectional study, we interviewed 25 caregivers whose children receive support from a community-based program lead by community health workers, that provides medication, medical supplies, food, caregiver training, and psychological support free of charge. The chronic conditions of children in the program included cerebral palsy (80%), congenital heart disease (8%), neurodegenerative conditions (4%), cancer (4%), and intellectual disabilities (4%). Common symptoms included cough or breathing problems (64%), fever (56%), and pain (56%). Most caregivers (96%) reported they were unable to do any paid work due to their child’s needs and in all families, the child’s condition had a significant impact on their financial situation. Community-based palliative care programs can be developed to support children with chronic conditions who may not access care from acute care facilities.
abstractGer	We describe the palliative care needs of children with chronic conditions and their caregivers in an urban slum in Bangladesh. In this cross-sectional study, we interviewed 25 caregivers whose children receive support from a community-based program lead by community health workers, that provides medication, medical supplies, food, caregiver training, and psychological support free of charge. The chronic conditions of children in the program included cerebral palsy (80%), congenital heart disease (8%), neurodegenerative conditions (4%), cancer (4%), and intellectual disabilities (4%). Common symptoms included cough or breathing problems (64%), fever (56%), and pain (56%). Most caregivers (96%) reported they were unable to do any paid work due to their child’s needs and in all families, the child’s condition had a significant impact on their financial situation. Community-based palliative care programs can be developed to support children with chronic conditions who may not access care from acute care facilities.
abstract_unstemmed	We describe the palliative care needs of children with chronic conditions and their caregivers in an urban slum in Bangladesh. In this cross-sectional study, we interviewed 25 caregivers whose children receive support from a community-based program lead by community health workers, that provides medication, medical supplies, food, caregiver training, and psychological support free of charge. The chronic conditions of children in the program included cerebral palsy (80%), congenital heart disease (8%), neurodegenerative conditions (4%), cancer (4%), and intellectual disabilities (4%). Common symptoms included cough or breathing problems (64%), fever (56%), and pain (56%). Most caregivers (96%) reported they were unable to do any paid work due to their child’s needs and in all families, the child’s condition had a significant impact on their financial situation. Community-based palliative care programs can be developed to support children with chronic conditions who may not access care from acute care facilities.
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title_short	Providing Home-Based Support for Children with Chronic Conditions in an Urban Slum: Experiences from a Community-Based Palliative Care Program in Bangladesh
url	https://doi.org/10.1177/2333794X21999155 https://doaj.org/article/d80b8c747cdc493099e47550ed89ed58 https://doaj.org/toc/2333-794X
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up_date	2024-07-03T21:26:32.927Z
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