What patients want to know, and what we actually tell them: The ABIDE project
Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory cl...
Ausführliche Beschreibung
Gespeichert in:
| Autor*in: |
Agnetha D. Fruijtier [verfasserIn] Leonie N.C. Visser [verfasserIn] Femke H. Bouwman [verfasserIn] Rogier Lutz [verfasserIn] Niki Schoonenboom [verfasserIn] Kees Kalisvaart [verfasserIn] Liesbeth Hempenius [verfasserIn] Gerwin Roks [verfasserIn] Leo Boelaarts [verfasserIn] Jules J. Claus [verfasserIn] Mariska Kleijer [verfasserIn] Marlijn deBeer [verfasserIn] Wiesje M. van derFlier [verfasserIn] Ellen M.A. Smets [verfasserIn] |
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| Format: |
E-Artikel |
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| Sprache: |
Englisch |
| Erschienen: |
2020 |
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| Schlagwörter: |
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| Übergeordnetes Werk: |
In: Alzheimer’s & Dementia: Translational Research & Clinical Interventions - Wiley, 2020, 6(2020), 1, Seite n/a-n/a |
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| Übergeordnetes Werk: |
volume:6 ; year:2020 ; number:1 ; pages:n/a-n/a |
| Links: |
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| DOI / URN: |
10.1002/trc2.12113 |
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| Katalog-ID: |
DOAJ069266336 |
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| 520 | |a Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. | ||
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10.1002/trc2.12113 doi (DE-627)DOAJ069266336 (DE-599)DOAJce6177bdd56e4b3eaee0972e1c08e172 DE-627 ger DE-627 rakwb eng RC346-429 RC952-954.6 Agnetha D. Fruijtier verfasserin aut What patients want to know, and what we actually tell them: The ABIDE project 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. diagnostic process informational needs information provision informative topics memory clinics Neurology. Diseases of the nervous system Geriatrics Leonie N.C. Visser verfasserin aut Femke H. Bouwman verfasserin aut Rogier Lutz verfasserin aut Niki Schoonenboom verfasserin aut Kees Kalisvaart verfasserin aut Liesbeth Hempenius verfasserin aut Gerwin Roks verfasserin aut Leo Boelaarts verfasserin aut Jules J. Claus verfasserin aut Mariska Kleijer verfasserin aut Marlijn deBeer verfasserin aut Wiesje M. van derFlier verfasserin aut Ellen M.A. Smets verfasserin aut In Alzheimer’s & Dementia: Translational Research & Clinical Interventions Wiley, 2020 6(2020), 1, Seite n/a-n/a (DE-627)834396823 (DE-600)2832891-7 23528737 nnns volume:6 year:2020 number:1 pages:n/a-n/a https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/article/ce6177bdd56e4b3eaee0972e1c08e172 kostenfrei https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/toc/2352-8737 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_636 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 6 2020 1 n/a-n/a |
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10.1002/trc2.12113 doi (DE-627)DOAJ069266336 (DE-599)DOAJce6177bdd56e4b3eaee0972e1c08e172 DE-627 ger DE-627 rakwb eng RC346-429 RC952-954.6 Agnetha D. Fruijtier verfasserin aut What patients want to know, and what we actually tell them: The ABIDE project 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. diagnostic process informational needs information provision informative topics memory clinics Neurology. Diseases of the nervous system Geriatrics Leonie N.C. Visser verfasserin aut Femke H. Bouwman verfasserin aut Rogier Lutz verfasserin aut Niki Schoonenboom verfasserin aut Kees Kalisvaart verfasserin aut Liesbeth Hempenius verfasserin aut Gerwin Roks verfasserin aut Leo Boelaarts verfasserin aut Jules J. Claus verfasserin aut Mariska Kleijer verfasserin aut Marlijn deBeer verfasserin aut Wiesje M. van derFlier verfasserin aut Ellen M.A. Smets verfasserin aut In Alzheimer’s & Dementia: Translational Research & Clinical Interventions Wiley, 2020 6(2020), 1, Seite n/a-n/a (DE-627)834396823 (DE-600)2832891-7 23528737 nnns volume:6 year:2020 number:1 pages:n/a-n/a https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/article/ce6177bdd56e4b3eaee0972e1c08e172 kostenfrei https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/toc/2352-8737 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_636 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 6 2020 1 n/a-n/a |
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10.1002/trc2.12113 doi (DE-627)DOAJ069266336 (DE-599)DOAJce6177bdd56e4b3eaee0972e1c08e172 DE-627 ger DE-627 rakwb eng RC346-429 RC952-954.6 Agnetha D. Fruijtier verfasserin aut What patients want to know, and what we actually tell them: The ABIDE project 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. diagnostic process informational needs information provision informative topics memory clinics Neurology. Diseases of the nervous system Geriatrics Leonie N.C. Visser verfasserin aut Femke H. Bouwman verfasserin aut Rogier Lutz verfasserin aut Niki Schoonenboom verfasserin aut Kees Kalisvaart verfasserin aut Liesbeth Hempenius verfasserin aut Gerwin Roks verfasserin aut Leo Boelaarts verfasserin aut Jules J. Claus verfasserin aut Mariska Kleijer verfasserin aut Marlijn deBeer verfasserin aut Wiesje M. van derFlier verfasserin aut Ellen M.A. Smets verfasserin aut In Alzheimer’s & Dementia: Translational Research & Clinical Interventions Wiley, 2020 6(2020), 1, Seite n/a-n/a (DE-627)834396823 (DE-600)2832891-7 23528737 nnns volume:6 year:2020 number:1 pages:n/a-n/a https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/article/ce6177bdd56e4b3eaee0972e1c08e172 kostenfrei https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/toc/2352-8737 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_636 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 6 2020 1 n/a-n/a |
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10.1002/trc2.12113 doi (DE-627)DOAJ069266336 (DE-599)DOAJce6177bdd56e4b3eaee0972e1c08e172 DE-627 ger DE-627 rakwb eng RC346-429 RC952-954.6 Agnetha D. Fruijtier verfasserin aut What patients want to know, and what we actually tell them: The ABIDE project 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. diagnostic process informational needs information provision informative topics memory clinics Neurology. Diseases of the nervous system Geriatrics Leonie N.C. Visser verfasserin aut Femke H. Bouwman verfasserin aut Rogier Lutz verfasserin aut Niki Schoonenboom verfasserin aut Kees Kalisvaart verfasserin aut Liesbeth Hempenius verfasserin aut Gerwin Roks verfasserin aut Leo Boelaarts verfasserin aut Jules J. Claus verfasserin aut Mariska Kleijer verfasserin aut Marlijn deBeer verfasserin aut Wiesje M. van derFlier verfasserin aut Ellen M.A. Smets verfasserin aut In Alzheimer’s & Dementia: Translational Research & Clinical Interventions Wiley, 2020 6(2020), 1, Seite n/a-n/a (DE-627)834396823 (DE-600)2832891-7 23528737 nnns volume:6 year:2020 number:1 pages:n/a-n/a https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/article/ce6177bdd56e4b3eaee0972e1c08e172 kostenfrei https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/toc/2352-8737 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_636 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 6 2020 1 n/a-n/a |
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10.1002/trc2.12113 doi (DE-627)DOAJ069266336 (DE-599)DOAJce6177bdd56e4b3eaee0972e1c08e172 DE-627 ger DE-627 rakwb eng RC346-429 RC952-954.6 Agnetha D. Fruijtier verfasserin aut What patients want to know, and what we actually tell them: The ABIDE project 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. diagnostic process informational needs information provision informative topics memory clinics Neurology. Diseases of the nervous system Geriatrics Leonie N.C. Visser verfasserin aut Femke H. Bouwman verfasserin aut Rogier Lutz verfasserin aut Niki Schoonenboom verfasserin aut Kees Kalisvaart verfasserin aut Liesbeth Hempenius verfasserin aut Gerwin Roks verfasserin aut Leo Boelaarts verfasserin aut Jules J. Claus verfasserin aut Mariska Kleijer verfasserin aut Marlijn deBeer verfasserin aut Wiesje M. van derFlier verfasserin aut Ellen M.A. Smets verfasserin aut In Alzheimer’s & Dementia: Translational Research & Clinical Interventions Wiley, 2020 6(2020), 1, Seite n/a-n/a (DE-627)834396823 (DE-600)2832891-7 23528737 nnns volume:6 year:2020 number:1 pages:n/a-n/a https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/article/ce6177bdd56e4b3eaee0972e1c08e172 kostenfrei https://doi.org/10.1002/trc2.12113 kostenfrei https://doaj.org/toc/2352-8737 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_636 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 6 2020 1 n/a-n/a |
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Agnetha D. Fruijtier @@aut@@ Leonie N.C. Visser @@aut@@ Femke H. Bouwman @@aut@@ Rogier Lutz @@aut@@ Niki Schoonenboom @@aut@@ Kees Kalisvaart @@aut@@ Liesbeth Hempenius @@aut@@ Gerwin Roks @@aut@@ Leo Boelaarts @@aut@@ Jules J. Claus @@aut@@ Mariska Kleijer @@aut@@ Marlijn deBeer @@aut@@ Wiesje M. van derFlier @@aut@@ Ellen M.A. Smets @@aut@@ |
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Agnetha D. Fruijtier Leonie N.C. Visser Femke H. Bouwman Rogier Lutz Niki Schoonenboom Kees Kalisvaart Liesbeth Hempenius Gerwin Roks Leo Boelaarts Jules J. Claus Mariska Kleijer Marlijn deBeer Wiesje M. van derFlier Ellen M.A. Smets |
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what patients want to know, and what we actually tell them: the abide project |
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What patients want to know, and what we actually tell them: The ABIDE project |
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Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. |
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Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. |
| abstract_unstemmed |
Abstract Background We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations. Methods Audio recordings of clinician–patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content‐coded by two coders. The coding scheme encompassed 25 informational topics. Results Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics. Conclusion Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation. |
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What patients want to know, and what we actually tell them: The ABIDE project |
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Leonie N.C. Visser Femke H. Bouwman Rogier Lutz Niki Schoonenboom Kees Kalisvaart Liesbeth Hempenius Gerwin Roks Leo Boelaarts Jules J. Claus Mariska Kleijer Marlijn deBeer Wiesje M. van derFlier Ellen M.A. Smets |
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Leonie N.C. Visser Femke H. Bouwman Rogier Lutz Niki Schoonenboom Kees Kalisvaart Liesbeth Hempenius Gerwin Roks Leo Boelaarts Jules J. Claus Mariska Kleijer Marlijn deBeer Wiesje M. van derFlier Ellen M.A. Smets |
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