Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care

Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of...
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Autor*in:	Radtke HB [verfasserIn] Berger A [verfasserIn] Skelton T [verfasserIn] Goetsch Weisman A [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2023

Schlagwörter:	adolescents young adults neurofibromatosis transition healthcare

Übergeordnetes Werk:	In: Pediatric Health, Medicine and Therapeutics - Dove Medical Press, 2011, (2023), Seite 19-32
Übergeordnetes Werk:	year:2023 ; pages:19-32

Links:	Link aufrufen Link aufrufen Journal toc

Katalog-ID:	DOAJ080742947

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520			\|a Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare
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allfields	(DE-627)DOAJ080742947 (DE-599)DOAJ9724094b0c164ff8be722390e389a440 DE-627 ger DE-627 rakwb eng RJ1-570 Radtke HB verfasserin aut Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare adolescents young adults neurofibromatosis transition healthcare Pediatrics Berger A verfasserin aut Skelton T verfasserin aut Goetsch Weisman A verfasserin aut In Pediatric Health, Medicine and Therapeutics Dove Medical Press, 2011 (2023), Seite 19-32 (DE-627)663847729 (DE-600)2616891-1 11799927 nnns year:2023 pages:19-32 https://doaj.org/article/9724094b0c164ff8be722390e389a440 kostenfrei https://www.dovepress.com/neurofibromatosis-type-1-nf1-addressing-the-transition-from-pediatric--peer-reviewed-fulltext-article-PHMT kostenfrei https://doaj.org/toc/1179-9927 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2023 19-32
spelling	(DE-627)DOAJ080742947 (DE-599)DOAJ9724094b0c164ff8be722390e389a440 DE-627 ger DE-627 rakwb eng RJ1-570 Radtke HB verfasserin aut Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare adolescents young adults neurofibromatosis transition healthcare Pediatrics Berger A verfasserin aut Skelton T verfasserin aut Goetsch Weisman A verfasserin aut In Pediatric Health, Medicine and Therapeutics Dove Medical Press, 2011 (2023), Seite 19-32 (DE-627)663847729 (DE-600)2616891-1 11799927 nnns year:2023 pages:19-32 https://doaj.org/article/9724094b0c164ff8be722390e389a440 kostenfrei https://www.dovepress.com/neurofibromatosis-type-1-nf1-addressing-the-transition-from-pediatric--peer-reviewed-fulltext-article-PHMT kostenfrei https://doaj.org/toc/1179-9927 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2023 19-32
allfields_unstemmed	(DE-627)DOAJ080742947 (DE-599)DOAJ9724094b0c164ff8be722390e389a440 DE-627 ger DE-627 rakwb eng RJ1-570 Radtke HB verfasserin aut Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare adolescents young adults neurofibromatosis transition healthcare Pediatrics Berger A verfasserin aut Skelton T verfasserin aut Goetsch Weisman A verfasserin aut In Pediatric Health, Medicine and Therapeutics Dove Medical Press, 2011 (2023), Seite 19-32 (DE-627)663847729 (DE-600)2616891-1 11799927 nnns year:2023 pages:19-32 https://doaj.org/article/9724094b0c164ff8be722390e389a440 kostenfrei https://www.dovepress.com/neurofibromatosis-type-1-nf1-addressing-the-transition-from-pediatric--peer-reviewed-fulltext-article-PHMT kostenfrei https://doaj.org/toc/1179-9927 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2023 19-32
allfieldsGer	(DE-627)DOAJ080742947 (DE-599)DOAJ9724094b0c164ff8be722390e389a440 DE-627 ger DE-627 rakwb eng RJ1-570 Radtke HB verfasserin aut Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare adolescents young adults neurofibromatosis transition healthcare Pediatrics Berger A verfasserin aut Skelton T verfasserin aut Goetsch Weisman A verfasserin aut In Pediatric Health, Medicine and Therapeutics Dove Medical Press, 2011 (2023), Seite 19-32 (DE-627)663847729 (DE-600)2616891-1 11799927 nnns year:2023 pages:19-32 https://doaj.org/article/9724094b0c164ff8be722390e389a440 kostenfrei https://www.dovepress.com/neurofibromatosis-type-1-nf1-addressing-the-transition-from-pediatric--peer-reviewed-fulltext-article-PHMT kostenfrei https://doaj.org/toc/1179-9927 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2023 19-32
allfieldsSound	(DE-627)DOAJ080742947 (DE-599)DOAJ9724094b0c164ff8be722390e389a440 DE-627 ger DE-627 rakwb eng RJ1-570 Radtke HB verfasserin aut Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare adolescents young adults neurofibromatosis transition healthcare Pediatrics Berger A verfasserin aut Skelton T verfasserin aut Goetsch Weisman A verfasserin aut In Pediatric Health, Medicine and Therapeutics Dove Medical Press, 2011 (2023), Seite 19-32 (DE-627)663847729 (DE-600)2616891-1 11799927 nnns year:2023 pages:19-32 https://doaj.org/article/9724094b0c164ff8be722390e389a440 kostenfrei https://www.dovepress.com/neurofibromatosis-type-1-nf1-addressing-the-transition-from-pediatric--peer-reviewed-fulltext-article-PHMT kostenfrei https://doaj.org/toc/1179-9927 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 2023 19-32
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title	Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care
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title_full	Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care
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title_auth	Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care
abstract	Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare
abstractGer	Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare
abstract_unstemmed	Heather B Radtke,1,2,&ast; Angela Berger,3 Tammi Skelton,4 Allison Goetsch Weisman3,5,&ast; 1Medical College of Wisconsin, Milwaukee, WI, USA; 2Children’s Tumor Foundation, New York, NY, USA; 3Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4UAB Heersink School of Medicine, Birmingham, AL, USA; 5Northwestern University, Chicago, IL, USA&ast;These authors contributed equally to this workCorrespondence: Heather B Radtke, Email hradtkectf.orgAbstract: Health care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.Keywords: adolescents, young adults, neurofibromatosis, transition, healthcare
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title_short	Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care
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Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care

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