The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity?

Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed. Ausführliche Beschreibung

Gespeichert in:

Autor*in:	Masanori Mori [verfasserIn] Tatsuya Morita [verfasserIn] Kengo Imai [verfasserIn] Naosuke Yokomichi [verfasserIn] Takashi Yamaguchi [verfasserIn] Kento Masukawa [verfasserIn] Yoshiyuki Kizawa [verfasserIn] Satoru Tsuneto [verfasserIn] Yasuo Shima [verfasserIn] Mitsunori Miyashita [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2020

Schlagwörter:	communication capacity dyspnea intensity goals of care terminal dyspnea

Übergeordnetes Werk:	In: Palliative Medicine Reports - Mary Ann Liebert, 2020, 1(2020), 1, Seite 42-49
Übergeordnetes Werk:	volume:1 ; year:2020 ; number:1 ; pages:42-49

Links:	Link aufrufen Link aufrufen Link aufrufen Journal toc

DOI / URN:	10.1089/PMR.2020.0035

Katalog-ID:	DOAJ096456728

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allfields	10.1089/PMR.2020.0035 doi (DE-627)DOAJ096456728 (DE-599)DOAJc1bfe35a1e814f7082fbe8120ed1a9c5 DE-627 ger DE-627 rakwb eng R5-920 Masanori Mori verfasserin aut The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity? 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed. communication capacity dyspnea intensity goals of care terminal dyspnea Medicine (General) Tatsuya Morita verfasserin aut Kengo Imai verfasserin aut Naosuke Yokomichi verfasserin aut Takashi Yamaguchi verfasserin aut Kento Masukawa verfasserin aut Yoshiyuki Kizawa verfasserin aut Satoru Tsuneto verfasserin aut Yasuo Shima verfasserin aut Mitsunori Miyashita verfasserin aut In Palliative Medicine Reports Mary Ann Liebert, 2020 1(2020), 1, Seite 42-49 (DE-627)169732049X 26892820 nnns volume:1 year:2020 number:1 pages:42-49 https://doi.org/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/article/c1bfe35a1e814f7082fbe8120ed1a9c5 kostenfrei https://www.liebertpub.com/doi/full/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/toc/2689-2820 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 1 2020 1 42-49
spelling	10.1089/PMR.2020.0035 doi (DE-627)DOAJ096456728 (DE-599)DOAJc1bfe35a1e814f7082fbe8120ed1a9c5 DE-627 ger DE-627 rakwb eng R5-920 Masanori Mori verfasserin aut The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity? 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed. communication capacity dyspnea intensity goals of care terminal dyspnea Medicine (General) Tatsuya Morita verfasserin aut Kengo Imai verfasserin aut Naosuke Yokomichi verfasserin aut Takashi Yamaguchi verfasserin aut Kento Masukawa verfasserin aut Yoshiyuki Kizawa verfasserin aut Satoru Tsuneto verfasserin aut Yasuo Shima verfasserin aut Mitsunori Miyashita verfasserin aut In Palliative Medicine Reports Mary Ann Liebert, 2020 1(2020), 1, Seite 42-49 (DE-627)169732049X 26892820 nnns volume:1 year:2020 number:1 pages:42-49 https://doi.org/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/article/c1bfe35a1e814f7082fbe8120ed1a9c5 kostenfrei https://www.liebertpub.com/doi/full/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/toc/2689-2820 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 1 2020 1 42-49
allfields_unstemmed	10.1089/PMR.2020.0035 doi (DE-627)DOAJ096456728 (DE-599)DOAJc1bfe35a1e814f7082fbe8120ed1a9c5 DE-627 ger DE-627 rakwb eng R5-920 Masanori Mori verfasserin aut The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity? 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed. communication capacity dyspnea intensity goals of care terminal dyspnea Medicine (General) Tatsuya Morita verfasserin aut Kengo Imai verfasserin aut Naosuke Yokomichi verfasserin aut Takashi Yamaguchi verfasserin aut Kento Masukawa verfasserin aut Yoshiyuki Kizawa verfasserin aut Satoru Tsuneto verfasserin aut Yasuo Shima verfasserin aut Mitsunori Miyashita verfasserin aut In Palliative Medicine Reports Mary Ann Liebert, 2020 1(2020), 1, Seite 42-49 (DE-627)169732049X 26892820 nnns volume:1 year:2020 number:1 pages:42-49 https://doi.org/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/article/c1bfe35a1e814f7082fbe8120ed1a9c5 kostenfrei https://www.liebertpub.com/doi/full/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/toc/2689-2820 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 1 2020 1 42-49
allfieldsGer	10.1089/PMR.2020.0035 doi (DE-627)DOAJ096456728 (DE-599)DOAJc1bfe35a1e814f7082fbe8120ed1a9c5 DE-627 ger DE-627 rakwb eng R5-920 Masanori Mori verfasserin aut The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity? 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed. communication capacity dyspnea intensity goals of care terminal dyspnea Medicine (General) Tatsuya Morita verfasserin aut Kengo Imai verfasserin aut Naosuke Yokomichi verfasserin aut Takashi Yamaguchi verfasserin aut Kento Masukawa verfasserin aut Yoshiyuki Kizawa verfasserin aut Satoru Tsuneto verfasserin aut Yasuo Shima verfasserin aut Mitsunori Miyashita verfasserin aut In Palliative Medicine Reports Mary Ann Liebert, 2020 1(2020), 1, Seite 42-49 (DE-627)169732049X 26892820 nnns volume:1 year:2020 number:1 pages:42-49 https://doi.org/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/article/c1bfe35a1e814f7082fbe8120ed1a9c5 kostenfrei https://www.liebertpub.com/doi/full/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/toc/2689-2820 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 1 2020 1 42-49
allfieldsSound	10.1089/PMR.2020.0035 doi (DE-627)DOAJ096456728 (DE-599)DOAJc1bfe35a1e814f7082fbe8120ed1a9c5 DE-627 ger DE-627 rakwb eng R5-920 Masanori Mori verfasserin aut The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity? 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed. communication capacity dyspnea intensity goals of care terminal dyspnea Medicine (General) Tatsuya Morita verfasserin aut Kengo Imai verfasserin aut Naosuke Yokomichi verfasserin aut Takashi Yamaguchi verfasserin aut Kento Masukawa verfasserin aut Yoshiyuki Kizawa verfasserin aut Satoru Tsuneto verfasserin aut Yasuo Shima verfasserin aut Mitsunori Miyashita verfasserin aut In Palliative Medicine Reports Mary Ann Liebert, 2020 1(2020), 1, Seite 42-49 (DE-627)169732049X 26892820 nnns volume:1 year:2020 number:1 pages:42-49 https://doi.org/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/article/c1bfe35a1e814f7082fbe8120ed1a9c5 kostenfrei https://www.liebertpub.com/doi/full/10.1089/PMR.2020.0035 kostenfrei https://doaj.org/toc/2689-2820 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2014 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 1 2020 1 42-49
language	English
source	In Palliative Medicine Reports 1(2020), 1, Seite 42-49 volume:1 year:2020 number:1 pages:42-49
sourceStr	In Palliative Medicine Reports 1(2020), 1, Seite 42-49 volume:1 year:2020 number:1 pages:42-49
format_phy_str_mv	Article
institution	findex.gbv.de
topic_facet	communication capacity dyspnea intensity goals of care terminal dyspnea Medicine (General)
isfreeaccess_bool	true
container_title	Palliative Medicine Reports
authorswithroles_txt_mv	Masanori Mori @@aut@@ Tatsuya Morita @@aut@@ Kengo Imai @@aut@@ Naosuke Yokomichi @@aut@@ Takashi Yamaguchi @@aut@@ Kento Masukawa @@aut@@ Yoshiyuki Kizawa @@aut@@ Satoru Tsuneto @@aut@@ Yasuo Shima @@aut@@ Mitsunori Miyashita @@aut@@
publishDateDaySort_date	2020-01-01T00:00:00Z
hierarchy_top_id	169732049X
id	DOAJ096456728
language_de	englisch
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Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?&lt;?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. 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callnumber-first	R - Medicine
author	Masanori Mori
spellingShingle	Masanori Mori misc R5-920 misc communication capacity misc dyspnea intensity misc goals of care misc terminal dyspnea misc Medicine (General) The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity?
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topic_title	R5-920 The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity? communication capacity dyspnea intensity goals of care terminal dyspnea
topic	misc R5-920 misc communication capacity misc dyspnea intensity misc goals of care misc terminal dyspnea misc Medicine (General)
topic_unstemmed	misc R5-920 misc communication capacity misc dyspnea intensity misc goals of care misc terminal dyspnea misc Medicine (General)
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title	The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity?
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title_full	The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity?
author_sort	Masanori Mori
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author_browse	Masanori Mori Tatsuya Morita Kengo Imai Naosuke Yokomichi Takashi Yamaguchi Kento Masukawa Yoshiyuki Kizawa Satoru Tsuneto Yasuo Shima Mitsunori Miyashita
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title_sort	bereaved families' preferences for individualized goals of care for terminal dyspnea: what is an acceptable balance between dyspnea intensity and communication capacity?
callnumber	R5-920
title_auth	The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity?
abstract	Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed.
abstractGer	Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed.
abstract_unstemmed	Background: Toward the individualized care of terminally ill patients with dyspnea (?terminal dyspnea?), it is essential to identify individualized goals of care (GOC) to achieve an acceptable balance between dyspnea intensity and communication capacity. Objective: To explore preferences for individualized GOC for terminal dyspnea, and factors associated with the preferences. Design: A nationwide cross-sectional survey. Setting/Subjects: In total, 1055 bereaved families of cancer patients admitted to 167 inpatient hospices in Japan. Measurements: Preferences for individualized GOC for terminal dyspnea to achieve an acceptable balance between dyspnea intensity and communication capacity, should individuals experience continuous moderate or severe/overwhelming dyspnea despite optimal palliative care, and perceptions about a good death. Results: Among 548 participants (response rate?=?52%), we analyzed responses of 477 families whose loved one suffered dyspnea in the last week of life. In total, 167 (45%; 95% confidence interval [CI]?=?40%?50%) and 272 (80%; 95% CI?=?75%?84%) participants would prioritize dyspnea relief over communication capacity, should they continuously suffer moderate or severe/overwhelming dyspnea, respectively. In multivariate analyses, the determinants of the prioritization of dyspnea relief were perceiving physical comfort as important for a good death (odds ratio [OR]?=?1.389; 95% CI?=?1.062?1.818; p?=?0.017) in moderate dyspnea, and perceiving physical comfort (OR?=?2.505; 95% CI?=?1.718?3.651; p?<?0.001) and not perceiving mental awareness (OR?=?0.695; 95% CI?=?0.529?0.913; p?=?0.009) as important in severe/overwhelming dyspnea. Conclusions: Preferences for individualized GOC for terminal dyspnea can vary among individuals and with different symptom intensity, and may be influenced by perceptions about a good death. Outcome measurements incorporating an acceptable balance between dyspnea intensity and communication capacity should be developed.
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title_short	The Bereaved Families' Preferences for Individualized Goals of Care for Terminal Dyspnea: What Is an Acceptable Balance between Dyspnea Intensity and Communication Capacity?
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