Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be?
Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported o...
Ausführliche Beschreibung
Gespeichert in:
| Autor*in: |
Beth Russell [verfasserIn] Katharina Beyer [verfasserIn] Ailbhe Lawlor [verfasserIn] Monique J. Roobol [verfasserIn] Lionne D.F. Venderbos [verfasserIn] Sebastiaan Remmers [verfasserIn] Erik Briers [verfasserIn] Sara J. MacLennan [verfasserIn] Steven MacLennan [verfasserIn] Muhammad Imran Omar [verfasserIn] Mieke Van Hemelrijck [verfasserIn] Emma Smith [verfasserIn] James N'Dow [verfasserIn] Karin Plass [verfasserIn] Maria Ribal [verfasserIn] Nicolas Mottet [verfasserIn] Robert Shepherd [verfasserIn] Tom Abbott [verfasserIn] Ken Mastris [verfasserIn] Lisa Moris [verfasserIn] Michael Lardas [verfasserIn] Thomas Van den Broeck [verfasserIn] Peter-Paul Willemse [verfasserIn] Nicola Fossati [verfasserIn] Karl Pang [verfasserIn] Riccardo Campi [verfasserIn] Isabella Greco [verfasserIn] Mauro Gacci [verfasserIn] Sergio Serni [verfasserIn] Anders Bjartell [verfasserIn] Ragnar Lonnerbro [verfasserIn] Alberto Briganti [verfasserIn] Daniele Crosti [verfasserIn] Roberto Garzonio [verfasserIn] Giorgio Gandaglia [verfasserIn] Martina Faticoni [verfasserIn] Grant office [verfasserIn] Chris Bangma [verfasserIn] Maria Jongerden [verfasserIn] Derya Tilki [verfasserIn] Anssi Auvinen [verfasserIn] Teemu Murtola [verfasserIn] Tapio Visakorpi [verfasserIn] Kirsi Talala [verfasserIn] Teuvo Tammela [verfasserIn] Aino Siltari [verfasserIn] Stephane Lejeune [verfasserIn] Laurence Colette [verfasserIn] Simona Caputova [verfasserIn] Delielena Poli [verfasserIn] Sophie Byrne [verfasserIn] Luz Fialho [verfasserIn] Ashley Rowland [verfasserIn] Neo Tapela [verfasserIn] Nicola Di Flora [verfasserIn] Kathi Apostolidis [verfasserIn] Valerie Lemair [verfasserIn] Bertrand De Meulder [verfasserIn] Charles Auffray [verfasserIn] Nesrine Taibi [verfasserIn] Ayman Hijazy [verfasserIn] Albert Saporta [verfasserIn] Kai Sun [verfasserIn] Shaun Power [verfasserIn] Nazanin Zounemat Kermani [verfasserIn] Kees van Bochove [verfasserIn] Azadeh Tafreshiha [verfasserIn] Chiara Bernini [verfasserIn] Denis Horgan [verfasserIn] Louise Fullwood [verfasserIn] Marc Holtorf [verfasserIn] Doron Lancet [verfasserIn] Gabi Bernstein [verfasserIn] Sheela Tripathee [verfasserIn] Manfred Wirth [verfasserIn] Michael Froehner [verfasserIn] Beate Brenner [verfasserIn] Angelika Borkowetz [verfasserIn] Christian Thomas [verfasserIn] Friedemann Horn [verfasserIn] Kristin Reiche [verfasserIn] Markus Kreuz [verfasserIn] Andreas Josefsson [verfasserIn] Delila Gasi Tandefelt [verfasserIn] Jonas Hugosson [verfasserIn] Jack Schalken [verfasserIn] Henkjan Huisman [verfasserIn] Thomas Hofmarcher [verfasserIn] Peter Lindgren [verfasserIn] Emelie Andersson [verfasserIn] Adam Fridhammar [verfasserIn] Monica Tames Grijalva [verfasserIn] Susan Evans-Axelsson [verfasserIn] Frank Verholen [verfasserIn] Jihong Zong [verfasserIn] John-Edward Butler-Ransohoff [verfasserIn] Todd Williamson [verfasserIn] Reg Waldeck [verfasserIn] Amanda Bruno [verfasserIn] Ekaterina Nevedomskaya [verfasserIn] Samuel Fatoba [verfasserIn] Niculae Constantinovici [verfasserIn] Carl Steinbeisser [verfasserIn] Monika Maass [verfasserIn] Patrizia Torremante [verfasserIn] Emmanuelle Dochy [verfasserIn] Federica Pisa [verfasserIn] Marc Dietrich Voss [verfasserIn] Kishore Papineni [verfasserIn] Jing Wang-silvanto [verfasserIn] Robert Snijder [verfasserIn] Xuewei Wang [verfasserIn] Mark Lambrecht [verfasserIn] Russ Wolfinger [verfasserIn] Sherinne Eid [verfasserIn] Soundarya Palanisamy [verfasserIn] Samiul Haque [verfasserIn] Laurent Antoni [verfasserIn] Angela Servan [verfasserIn] Katie Pascoe [verfasserIn] Paul Robinson [verfasserIn] Joana Lencart [verfasserIn] Bertrand Jaton [verfasserIn] Heidi Turunen [verfasserIn] Olavi Kilkku [verfasserIn] Pasi Pohjanjousi [verfasserIn] Olli Voima [verfasserIn] Liina Nevalaita [verfasserIn] Keijo Punakivi [verfasserIn] Sarah Seager [verfasserIn] Shilpa Ratwani [verfasserIn] Katarzyna Grzeslak [verfasserIn] James Brash [verfasserIn] Elaine Longden-Chapman [verfasserIn] Danny Burke [verfasserIn] Muriel Licour [verfasserIn] Sarah Payne [verfasserIn] Alan Yong [verfasserIn] Flavia Lujan [verfasserIn] Sophia Le Mare [verfasserIn] Jan Hendrich [verfasserIn] Michael Bussmann [verfasserIn] Juckeland [verfasserIn] Kotik [verfasserIn] Christian Reich [verfasserIn] |
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| Format: |
E-Artikel |
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| Sprache: |
Englisch |
| Erschienen: |
2024 |
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| Schlagwörter: |
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| Übergeordnetes Werk: |
In: European Urology Open Science - Elsevier, 2020, 59(2024), Seite 27-29 |
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| Übergeordnetes Werk: |
volume:59 ; year:2024 ; pages:27-29 |
| Links: |
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| DOI / URN: |
10.1016/j.euros.2023.11.004 |
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| Katalog-ID: |
DOAJ097493899 |
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| 100 | 0 | |a Beth Russell |e verfasserin |4 aut | |
| 245 | 1 | 0 | |a Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? |
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| 520 | |a Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. | ||
| 650 | 4 | |a Cancer survivorship | |
| 650 | 4 | |a Prostate cancer | |
| 650 | 4 | |a Quality of life | |
| 650 | 4 | |a Patient-reported outcome measures | |
| 653 | 0 | |a Diseases of the genitourinary system. Urology | |
| 653 | 0 | |a Neoplasms. Tumors. Oncology. Including cancer and carcinogens | |
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10.1016/j.euros.2023.11.004 doi (DE-627)DOAJ097493899 (DE-599)DOAJ0e8513a8ae754937a693cd11a79baf4a DE-627 ger DE-627 rakwb eng RC870-923 RC254-282 Beth Russell verfasserin aut Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. Cancer survivorship Prostate cancer Quality of life Patient-reported outcome measures Diseases of the genitourinary system. Urology Neoplasms. Tumors. Oncology. Including cancer and carcinogens Katharina Beyer verfasserin aut Ailbhe Lawlor verfasserin aut Monique J. Roobol verfasserin aut Lionne D.F. Venderbos verfasserin aut Sebastiaan Remmers verfasserin aut Erik Briers verfasserin aut Sara J. MacLennan verfasserin aut Steven MacLennan verfasserin aut Muhammad Imran Omar verfasserin aut Mieke Van Hemelrijck verfasserin aut Emma Smith verfasserin aut James N'Dow verfasserin aut Karin Plass verfasserin aut Maria Ribal verfasserin aut Nicolas Mottet verfasserin aut Robert Shepherd verfasserin aut Tom Abbott verfasserin aut Ken Mastris verfasserin aut Lisa Moris verfasserin aut Michael Lardas verfasserin aut Thomas Van den Broeck verfasserin aut Peter-Paul Willemse verfasserin aut Nicola Fossati verfasserin aut Karl Pang verfasserin aut Riccardo Campi verfasserin aut Isabella Greco verfasserin aut Mauro Gacci verfasserin aut Sergio Serni verfasserin aut Anders Bjartell verfasserin aut Ragnar Lonnerbro verfasserin aut Alberto Briganti verfasserin aut Daniele Crosti verfasserin aut Roberto Garzonio verfasserin aut Giorgio Gandaglia verfasserin aut Martina Faticoni verfasserin aut Grant office verfasserin aut Chris Bangma verfasserin aut Maria Jongerden verfasserin aut Derya Tilki verfasserin aut Anssi Auvinen verfasserin aut Teemu Murtola verfasserin aut Tapio Visakorpi verfasserin aut Kirsi Talala verfasserin aut Teuvo Tammela verfasserin aut Aino Siltari verfasserin aut Stephane Lejeune verfasserin aut Laurence Colette verfasserin aut Simona Caputova verfasserin aut Delielena Poli verfasserin aut Sophie Byrne verfasserin aut Luz Fialho verfasserin aut Ashley Rowland verfasserin aut Neo Tapela verfasserin aut Nicola Di Flora verfasserin aut Kathi Apostolidis verfasserin aut Valerie Lemair verfasserin aut Bertrand De Meulder verfasserin aut Charles Auffray verfasserin aut Nesrine Taibi verfasserin aut Ayman Hijazy verfasserin aut Albert Saporta verfasserin aut Kai Sun verfasserin aut Shaun Power verfasserin aut Nazanin Zounemat Kermani verfasserin aut Kees van Bochove verfasserin aut Azadeh Tafreshiha verfasserin aut Chiara Bernini verfasserin aut Denis Horgan verfasserin aut Louise Fullwood verfasserin aut Marc Holtorf verfasserin aut Doron Lancet verfasserin aut Gabi Bernstein verfasserin aut Sheela Tripathee verfasserin aut Manfred Wirth verfasserin aut Michael Froehner verfasserin aut Beate Brenner verfasserin aut Angelika Borkowetz verfasserin aut Christian Thomas verfasserin aut Friedemann Horn verfasserin aut Kristin Reiche verfasserin aut Markus Kreuz verfasserin aut Andreas Josefsson verfasserin aut Delila Gasi Tandefelt verfasserin aut Jonas Hugosson verfasserin aut Jack Schalken verfasserin aut Henkjan Huisman verfasserin aut Thomas Hofmarcher verfasserin aut Peter Lindgren verfasserin aut Emelie Andersson verfasserin aut Adam Fridhammar verfasserin aut Monica Tames Grijalva verfasserin aut Susan Evans-Axelsson verfasserin aut Frank Verholen verfasserin aut Jihong Zong verfasserin aut John-Edward Butler-Ransohoff verfasserin aut Todd Williamson verfasserin aut Reg Waldeck verfasserin aut Amanda Bruno verfasserin aut Ekaterina Nevedomskaya verfasserin aut Samuel Fatoba verfasserin aut Niculae Constantinovici verfasserin aut Carl Steinbeisser verfasserin aut Monika Maass verfasserin aut Patrizia Torremante verfasserin aut Emmanuelle Dochy verfasserin aut Federica Pisa verfasserin aut Marc Dietrich Voss verfasserin aut Kishore Papineni verfasserin aut Jing Wang-silvanto verfasserin aut Robert Snijder verfasserin aut Xuewei Wang verfasserin aut Mark Lambrecht verfasserin aut Russ Wolfinger verfasserin aut Sherinne Eid verfasserin aut Soundarya Palanisamy verfasserin aut Samiul Haque verfasserin aut Laurent Antoni verfasserin aut Angela Servan verfasserin aut Katie Pascoe verfasserin aut Paul Robinson verfasserin aut Joana Lencart verfasserin aut Bertrand Jaton verfasserin aut Heidi Turunen verfasserin aut Olavi Kilkku verfasserin aut Pasi Pohjanjousi verfasserin aut Olli Voima verfasserin aut Liina Nevalaita verfasserin aut Keijo Punakivi verfasserin aut Sarah Seager verfasserin aut Shilpa Ratwani verfasserin aut Katarzyna Grzeslak verfasserin aut James Brash verfasserin aut Elaine Longden-Chapman verfasserin aut Danny Burke verfasserin aut Muriel Licour verfasserin aut Sarah Payne verfasserin aut Alan Yong verfasserin aut Flavia Lujan verfasserin aut Sophia Le Mare verfasserin aut Jan Hendrich verfasserin aut Michael Bussmann verfasserin aut Juckeland verfasserin aut Kotik verfasserin aut Delielena Poli verfasserin aut Christian Reich verfasserin aut In European Urology Open Science Elsevier, 2020 59(2024), Seite 27-29 (DE-627)1734491795 26661683 nnns volume:59 year:2024 pages:27-29 https://doi.org/10.1016/j.euros.2023.11.004 kostenfrei https://doaj.org/article/0e8513a8ae754937a693cd11a79baf4a kostenfrei http://www.sciencedirect.com/science/article/pii/S2666168323023157 kostenfrei https://doaj.org/toc/2666-1683 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 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10.1016/j.euros.2023.11.004 doi (DE-627)DOAJ097493899 (DE-599)DOAJ0e8513a8ae754937a693cd11a79baf4a DE-627 ger DE-627 rakwb eng RC870-923 RC254-282 Beth Russell verfasserin aut Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. Cancer survivorship Prostate cancer Quality of life Patient-reported outcome measures Diseases of the genitourinary system. Urology Neoplasms. Tumors. Oncology. Including cancer and carcinogens Katharina Beyer verfasserin aut Ailbhe Lawlor verfasserin aut Monique J. Roobol verfasserin aut Lionne D.F. Venderbos verfasserin aut Sebastiaan Remmers verfasserin aut Erik Briers verfasserin aut Sara J. MacLennan verfasserin aut Steven MacLennan verfasserin aut Muhammad Imran Omar verfasserin aut Mieke Van Hemelrijck verfasserin aut Emma Smith verfasserin aut James N'Dow verfasserin aut Karin Plass verfasserin aut Maria Ribal verfasserin aut Nicolas Mottet verfasserin aut Robert Shepherd verfasserin aut Tom Abbott verfasserin aut Ken Mastris verfasserin aut Lisa Moris verfasserin aut Michael Lardas verfasserin aut Thomas Van den Broeck verfasserin aut Peter-Paul Willemse verfasserin aut Nicola Fossati verfasserin aut Karl Pang verfasserin aut Riccardo Campi verfasserin aut Isabella Greco verfasserin aut Mauro Gacci verfasserin aut Sergio Serni verfasserin aut Anders Bjartell verfasserin aut Ragnar Lonnerbro verfasserin aut Alberto Briganti verfasserin aut Daniele Crosti verfasserin aut Roberto Garzonio verfasserin aut Giorgio Gandaglia verfasserin aut Martina Faticoni verfasserin aut Grant office verfasserin aut Chris Bangma verfasserin aut Maria Jongerden verfasserin aut Derya Tilki verfasserin aut Anssi Auvinen verfasserin aut Teemu Murtola verfasserin aut Tapio Visakorpi verfasserin aut Kirsi Talala verfasserin aut Teuvo Tammela verfasserin aut Aino Siltari verfasserin aut Stephane Lejeune verfasserin aut Laurence Colette verfasserin aut Simona Caputova verfasserin aut Delielena Poli verfasserin aut Sophie Byrne verfasserin aut Luz Fialho verfasserin aut Ashley Rowland verfasserin aut Neo Tapela verfasserin aut Nicola Di Flora verfasserin aut Kathi Apostolidis verfasserin aut Valerie Lemair verfasserin aut Bertrand De Meulder verfasserin aut Charles Auffray verfasserin aut Nesrine Taibi verfasserin aut Ayman Hijazy verfasserin aut Albert Saporta verfasserin aut Kai Sun verfasserin aut Shaun Power verfasserin aut Nazanin Zounemat Kermani verfasserin aut Kees van Bochove verfasserin aut Azadeh Tafreshiha verfasserin aut Chiara Bernini verfasserin aut Denis Horgan verfasserin aut Louise Fullwood verfasserin aut Marc Holtorf verfasserin aut Doron Lancet verfasserin aut Gabi Bernstein verfasserin aut Sheela Tripathee verfasserin aut Manfred Wirth verfasserin aut Michael Froehner verfasserin aut Beate Brenner verfasserin aut Angelika Borkowetz verfasserin aut Christian Thomas verfasserin aut Friedemann Horn verfasserin aut Kristin Reiche verfasserin aut Markus Kreuz verfasserin aut Andreas Josefsson verfasserin aut Delila Gasi Tandefelt verfasserin aut Jonas Hugosson verfasserin aut Jack Schalken verfasserin aut Henkjan Huisman verfasserin aut Thomas Hofmarcher verfasserin aut Peter Lindgren verfasserin aut Emelie Andersson verfasserin aut Adam Fridhammar verfasserin aut Monica Tames Grijalva verfasserin aut Susan Evans-Axelsson verfasserin aut Frank Verholen verfasserin aut Jihong Zong verfasserin aut John-Edward Butler-Ransohoff verfasserin aut Todd Williamson verfasserin aut Reg Waldeck verfasserin aut Amanda Bruno verfasserin aut Ekaterina Nevedomskaya verfasserin aut Samuel Fatoba verfasserin aut Niculae Constantinovici verfasserin aut Carl Steinbeisser verfasserin aut Monika Maass verfasserin aut Patrizia Torremante verfasserin aut Emmanuelle Dochy verfasserin aut Federica Pisa verfasserin aut Marc Dietrich Voss verfasserin aut Kishore Papineni verfasserin aut Jing Wang-silvanto verfasserin aut Robert Snijder verfasserin aut Xuewei Wang verfasserin aut Mark Lambrecht verfasserin aut Russ Wolfinger verfasserin aut Sherinne Eid verfasserin aut Soundarya Palanisamy verfasserin aut Samiul Haque verfasserin aut Laurent Antoni verfasserin aut Angela Servan verfasserin aut Katie Pascoe verfasserin aut Paul Robinson verfasserin aut Joana Lencart verfasserin aut Bertrand Jaton verfasserin aut Heidi Turunen verfasserin aut Olavi Kilkku verfasserin aut Pasi Pohjanjousi verfasserin aut Olli Voima verfasserin aut Liina Nevalaita verfasserin aut Keijo Punakivi verfasserin aut Sarah Seager verfasserin aut Shilpa Ratwani verfasserin aut Katarzyna Grzeslak verfasserin aut James Brash verfasserin aut Elaine Longden-Chapman verfasserin aut Danny Burke verfasserin aut Muriel Licour verfasserin aut Sarah Payne verfasserin aut Alan Yong verfasserin aut Flavia Lujan verfasserin aut Sophia Le Mare verfasserin aut Jan Hendrich verfasserin aut Michael Bussmann verfasserin aut Juckeland verfasserin aut Kotik verfasserin aut Delielena Poli verfasserin aut Christian Reich verfasserin aut In European Urology Open Science Elsevier, 2020 59(2024), Seite 27-29 (DE-627)1734491795 26661683 nnns volume:59 year:2024 pages:27-29 https://doi.org/10.1016/j.euros.2023.11.004 kostenfrei https://doaj.org/article/0e8513a8ae754937a693cd11a79baf4a kostenfrei http://www.sciencedirect.com/science/article/pii/S2666168323023157 kostenfrei https://doaj.org/toc/2666-1683 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 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10.1016/j.euros.2023.11.004 doi (DE-627)DOAJ097493899 (DE-599)DOAJ0e8513a8ae754937a693cd11a79baf4a DE-627 ger DE-627 rakwb eng RC870-923 RC254-282 Beth Russell verfasserin aut Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. Cancer survivorship Prostate cancer Quality of life Patient-reported outcome measures Diseases of the genitourinary system. Urology Neoplasms. Tumors. Oncology. Including cancer and carcinogens Katharina Beyer verfasserin aut Ailbhe Lawlor verfasserin aut Monique J. Roobol verfasserin aut Lionne D.F. Venderbos verfasserin aut Sebastiaan Remmers verfasserin aut Erik Briers verfasserin aut Sara J. MacLennan verfasserin aut Steven MacLennan verfasserin aut Muhammad Imran Omar verfasserin aut Mieke Van Hemelrijck verfasserin aut Emma Smith verfasserin aut James N'Dow verfasserin aut Karin Plass verfasserin aut Maria Ribal verfasserin aut Nicolas Mottet verfasserin aut Robert Shepherd verfasserin aut Tom Abbott verfasserin aut Ken Mastris verfasserin aut Lisa Moris verfasserin aut Michael Lardas verfasserin aut Thomas Van den Broeck verfasserin aut Peter-Paul Willemse verfasserin aut Nicola Fossati verfasserin aut Karl Pang verfasserin aut Riccardo Campi verfasserin aut Isabella Greco verfasserin aut Mauro Gacci verfasserin aut Sergio Serni verfasserin aut Anders Bjartell verfasserin aut Ragnar Lonnerbro verfasserin aut Alberto Briganti verfasserin aut Daniele Crosti verfasserin aut Roberto Garzonio verfasserin aut Giorgio Gandaglia verfasserin aut Martina Faticoni verfasserin aut Grant office verfasserin aut Chris Bangma verfasserin aut Maria Jongerden verfasserin aut Derya Tilki verfasserin aut Anssi Auvinen verfasserin aut Teemu Murtola verfasserin aut Tapio Visakorpi verfasserin aut Kirsi Talala verfasserin aut Teuvo Tammela verfasserin aut Aino Siltari verfasserin aut Stephane Lejeune verfasserin aut Laurence Colette verfasserin aut Simona Caputova verfasserin aut Delielena Poli verfasserin aut Sophie Byrne verfasserin aut Luz Fialho verfasserin aut Ashley Rowland verfasserin aut Neo Tapela verfasserin aut Nicola Di Flora verfasserin aut Kathi Apostolidis verfasserin aut Valerie Lemair verfasserin aut Bertrand De Meulder verfasserin aut Charles Auffray verfasserin aut Nesrine Taibi verfasserin aut Ayman Hijazy verfasserin aut Albert Saporta verfasserin aut Kai Sun verfasserin aut Shaun Power verfasserin aut Nazanin Zounemat Kermani verfasserin aut Kees van Bochove verfasserin aut Azadeh Tafreshiha verfasserin aut Chiara Bernini verfasserin aut Denis Horgan verfasserin aut Louise Fullwood verfasserin aut Marc Holtorf verfasserin aut Doron Lancet verfasserin aut Gabi Bernstein verfasserin aut Sheela Tripathee verfasserin aut Manfred Wirth verfasserin aut Michael Froehner verfasserin aut Beate Brenner verfasserin aut Angelika Borkowetz verfasserin aut Christian Thomas verfasserin aut Friedemann Horn verfasserin aut Kristin Reiche verfasserin aut Markus Kreuz verfasserin aut Andreas Josefsson verfasserin aut Delila Gasi Tandefelt verfasserin aut Jonas Hugosson verfasserin aut Jack Schalken verfasserin aut Henkjan Huisman verfasserin aut Thomas Hofmarcher verfasserin aut Peter Lindgren verfasserin aut Emelie Andersson verfasserin aut Adam Fridhammar verfasserin aut Monica Tames Grijalva verfasserin aut Susan Evans-Axelsson verfasserin aut Frank Verholen verfasserin aut Jihong Zong verfasserin aut John-Edward Butler-Ransohoff verfasserin aut Todd Williamson verfasserin aut Reg Waldeck verfasserin aut Amanda Bruno verfasserin aut Ekaterina Nevedomskaya verfasserin aut Samuel Fatoba verfasserin aut Niculae Constantinovici verfasserin aut Carl Steinbeisser verfasserin aut Monika Maass verfasserin aut Patrizia Torremante verfasserin aut Emmanuelle Dochy verfasserin aut Federica Pisa verfasserin aut Marc Dietrich Voss verfasserin aut Kishore Papineni verfasserin aut Jing Wang-silvanto verfasserin aut Robert Snijder verfasserin aut Xuewei Wang verfasserin aut Mark Lambrecht verfasserin aut Russ Wolfinger verfasserin aut Sherinne Eid verfasserin aut Soundarya Palanisamy verfasserin aut Samiul Haque verfasserin aut Laurent Antoni verfasserin aut Angela Servan verfasserin aut Katie Pascoe verfasserin aut Paul Robinson verfasserin aut Joana Lencart verfasserin aut Bertrand Jaton verfasserin aut Heidi Turunen verfasserin aut Olavi Kilkku verfasserin aut Pasi Pohjanjousi verfasserin aut Olli Voima verfasserin aut Liina Nevalaita verfasserin aut Keijo Punakivi verfasserin aut Sarah Seager verfasserin aut Shilpa Ratwani verfasserin aut Katarzyna Grzeslak verfasserin aut James Brash verfasserin aut Elaine Longden-Chapman verfasserin aut Danny Burke verfasserin aut Muriel Licour verfasserin aut Sarah Payne verfasserin aut Alan Yong verfasserin aut Flavia Lujan verfasserin aut Sophia Le Mare verfasserin aut Jan Hendrich verfasserin aut Michael Bussmann verfasserin aut Juckeland verfasserin aut Kotik verfasserin aut Delielena Poli verfasserin aut Christian Reich verfasserin aut In European Urology Open Science Elsevier, 2020 59(2024), Seite 27-29 (DE-627)1734491795 26661683 nnns volume:59 year:2024 pages:27-29 https://doi.org/10.1016/j.euros.2023.11.004 kostenfrei https://doaj.org/article/0e8513a8ae754937a693cd11a79baf4a kostenfrei http://www.sciencedirect.com/science/article/pii/S2666168323023157 kostenfrei https://doaj.org/toc/2666-1683 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 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10.1016/j.euros.2023.11.004 doi (DE-627)DOAJ097493899 (DE-599)DOAJ0e8513a8ae754937a693cd11a79baf4a DE-627 ger DE-627 rakwb eng RC870-923 RC254-282 Beth Russell verfasserin aut Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. Cancer survivorship Prostate cancer Quality of life Patient-reported outcome measures Diseases of the genitourinary system. Urology Neoplasms. Tumors. Oncology. Including cancer and carcinogens Katharina Beyer verfasserin aut Ailbhe Lawlor verfasserin aut Monique J. Roobol verfasserin aut Lionne D.F. Venderbos verfasserin aut Sebastiaan Remmers verfasserin aut Erik Briers verfasserin aut Sara J. MacLennan verfasserin aut Steven MacLennan verfasserin aut Muhammad Imran Omar verfasserin aut Mieke Van Hemelrijck verfasserin aut Emma Smith verfasserin aut James N'Dow verfasserin aut Karin Plass verfasserin aut Maria Ribal verfasserin aut Nicolas Mottet verfasserin aut Robert Shepherd verfasserin aut Tom Abbott verfasserin aut Ken Mastris verfasserin aut Lisa Moris verfasserin aut Michael Lardas verfasserin aut Thomas Van den Broeck verfasserin aut Peter-Paul Willemse verfasserin aut Nicola Fossati verfasserin aut Karl Pang verfasserin aut Riccardo Campi verfasserin aut Isabella Greco verfasserin aut Mauro Gacci verfasserin aut Sergio Serni verfasserin aut Anders Bjartell verfasserin aut Ragnar Lonnerbro verfasserin aut Alberto Briganti verfasserin aut Daniele Crosti verfasserin aut Roberto Garzonio verfasserin aut Giorgio Gandaglia verfasserin aut Martina Faticoni verfasserin aut Grant office verfasserin aut Chris Bangma verfasserin aut Maria Jongerden verfasserin aut Derya Tilki verfasserin aut Anssi Auvinen verfasserin aut Teemu Murtola verfasserin aut Tapio Visakorpi verfasserin aut Kirsi Talala verfasserin aut Teuvo Tammela verfasserin aut Aino Siltari verfasserin aut Stephane Lejeune verfasserin aut Laurence Colette verfasserin aut Simona Caputova verfasserin aut Delielena Poli verfasserin aut Sophie Byrne verfasserin aut Luz Fialho verfasserin aut Ashley Rowland verfasserin aut Neo Tapela verfasserin aut Nicola Di Flora verfasserin aut Kathi Apostolidis verfasserin aut Valerie Lemair verfasserin aut Bertrand De Meulder verfasserin aut Charles Auffray verfasserin aut Nesrine Taibi verfasserin aut Ayman Hijazy verfasserin aut Albert Saporta verfasserin aut Kai Sun verfasserin aut Shaun Power verfasserin aut Nazanin Zounemat Kermani verfasserin aut Kees van Bochove verfasserin aut Azadeh Tafreshiha verfasserin aut Chiara Bernini verfasserin aut Denis Horgan verfasserin aut Louise Fullwood verfasserin aut Marc Holtorf verfasserin aut Doron Lancet verfasserin aut Gabi Bernstein verfasserin aut Sheela Tripathee verfasserin aut Manfred Wirth verfasserin aut Michael Froehner verfasserin aut Beate Brenner verfasserin aut Angelika Borkowetz verfasserin aut Christian Thomas verfasserin aut Friedemann Horn verfasserin aut Kristin Reiche verfasserin aut Markus Kreuz verfasserin aut Andreas Josefsson verfasserin aut Delila Gasi Tandefelt verfasserin aut Jonas Hugosson verfasserin aut Jack Schalken verfasserin aut Henkjan Huisman verfasserin aut Thomas Hofmarcher verfasserin aut Peter Lindgren verfasserin aut Emelie Andersson verfasserin aut Adam Fridhammar verfasserin aut Monica Tames Grijalva verfasserin aut Susan Evans-Axelsson verfasserin aut Frank Verholen verfasserin aut Jihong Zong verfasserin aut John-Edward Butler-Ransohoff verfasserin aut Todd Williamson verfasserin aut Reg Waldeck verfasserin aut Amanda Bruno verfasserin aut Ekaterina Nevedomskaya verfasserin aut Samuel Fatoba verfasserin aut Niculae Constantinovici verfasserin aut Carl Steinbeisser verfasserin aut Monika Maass verfasserin aut Patrizia Torremante verfasserin aut Emmanuelle Dochy verfasserin aut Federica Pisa verfasserin aut Marc Dietrich Voss verfasserin aut Kishore Papineni verfasserin aut Jing Wang-silvanto verfasserin aut Robert Snijder verfasserin aut Xuewei Wang verfasserin aut Mark Lambrecht verfasserin aut Russ Wolfinger verfasserin aut Sherinne Eid verfasserin aut Soundarya Palanisamy verfasserin aut Samiul Haque verfasserin aut Laurent Antoni verfasserin aut Angela Servan verfasserin aut Katie Pascoe verfasserin aut Paul Robinson verfasserin aut Joana Lencart verfasserin aut Bertrand Jaton verfasserin aut Heidi Turunen verfasserin aut Olavi Kilkku verfasserin aut Pasi Pohjanjousi verfasserin aut Olli Voima verfasserin aut Liina Nevalaita verfasserin aut Keijo Punakivi verfasserin aut Sarah Seager verfasserin aut Shilpa Ratwani verfasserin aut Katarzyna Grzeslak verfasserin aut James Brash verfasserin aut Elaine Longden-Chapman verfasserin aut Danny Burke verfasserin aut Muriel Licour verfasserin aut Sarah Payne verfasserin aut Alan Yong verfasserin aut Flavia Lujan verfasserin aut Sophia Le Mare verfasserin aut Jan Hendrich verfasserin aut Michael Bussmann verfasserin aut Juckeland verfasserin aut Kotik verfasserin aut Delielena Poli verfasserin aut Christian Reich verfasserin aut In European Urology Open Science Elsevier, 2020 59(2024), Seite 27-29 (DE-627)1734491795 26661683 nnns volume:59 year:2024 pages:27-29 https://doi.org/10.1016/j.euros.2023.11.004 kostenfrei https://doaj.org/article/0e8513a8ae754937a693cd11a79baf4a kostenfrei http://www.sciencedirect.com/science/article/pii/S2666168323023157 kostenfrei https://doaj.org/toc/2666-1683 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 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10.1016/j.euros.2023.11.004 doi (DE-627)DOAJ097493899 (DE-599)DOAJ0e8513a8ae754937a693cd11a79baf4a DE-627 ger DE-627 rakwb eng RC870-923 RC254-282 Beth Russell verfasserin aut Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. Cancer survivorship Prostate cancer Quality of life Patient-reported outcome measures Diseases of the genitourinary system. Urology Neoplasms. Tumors. Oncology. Including cancer and carcinogens Katharina Beyer verfasserin aut Ailbhe Lawlor verfasserin aut Monique J. Roobol verfasserin aut Lionne D.F. Venderbos verfasserin aut Sebastiaan Remmers verfasserin aut Erik Briers verfasserin aut Sara J. MacLennan verfasserin aut Steven MacLennan verfasserin aut Muhammad Imran Omar verfasserin aut Mieke Van Hemelrijck verfasserin aut Emma Smith verfasserin aut James N'Dow verfasserin aut Karin Plass verfasserin aut Maria Ribal verfasserin aut Nicolas Mottet verfasserin aut Robert Shepherd verfasserin aut Tom Abbott verfasserin aut Ken Mastris verfasserin aut Lisa Moris verfasserin aut Michael Lardas verfasserin aut Thomas Van den Broeck verfasserin aut Peter-Paul Willemse verfasserin aut Nicola Fossati verfasserin aut Karl Pang verfasserin aut Riccardo Campi verfasserin aut Isabella Greco verfasserin aut Mauro Gacci verfasserin aut Sergio Serni verfasserin aut Anders Bjartell verfasserin aut Ragnar Lonnerbro verfasserin aut Alberto Briganti verfasserin aut Daniele Crosti verfasserin aut Roberto Garzonio verfasserin aut Giorgio Gandaglia verfasserin aut Martina Faticoni verfasserin aut Grant office verfasserin aut Chris Bangma verfasserin aut Maria Jongerden verfasserin aut Derya Tilki verfasserin aut Anssi Auvinen verfasserin aut Teemu Murtola verfasserin aut Tapio Visakorpi verfasserin aut Kirsi Talala verfasserin aut Teuvo Tammela verfasserin aut Aino Siltari verfasserin aut Stephane Lejeune verfasserin aut Laurence Colette verfasserin aut Simona Caputova verfasserin aut Delielena Poli verfasserin aut Sophie Byrne verfasserin aut Luz Fialho verfasserin aut Ashley Rowland verfasserin aut Neo Tapela verfasserin aut Nicola Di Flora verfasserin aut Kathi Apostolidis verfasserin aut Valerie Lemair verfasserin aut Bertrand De Meulder verfasserin aut Charles Auffray verfasserin aut Nesrine Taibi verfasserin aut Ayman Hijazy verfasserin aut Albert Saporta verfasserin aut Kai Sun verfasserin aut Shaun Power verfasserin aut Nazanin Zounemat Kermani verfasserin aut Kees van Bochove verfasserin aut Azadeh Tafreshiha verfasserin aut Chiara Bernini verfasserin aut Denis Horgan verfasserin aut Louise Fullwood verfasserin aut Marc Holtorf verfasserin aut Doron Lancet verfasserin aut Gabi Bernstein verfasserin aut Sheela Tripathee verfasserin aut Manfred Wirth verfasserin aut Michael Froehner verfasserin aut Beate Brenner verfasserin aut Angelika Borkowetz verfasserin aut Christian Thomas verfasserin aut Friedemann Horn verfasserin aut Kristin Reiche verfasserin aut Markus Kreuz verfasserin aut Andreas Josefsson verfasserin aut Delila Gasi Tandefelt verfasserin aut Jonas Hugosson verfasserin aut Jack Schalken verfasserin aut Henkjan Huisman verfasserin aut Thomas Hofmarcher verfasserin aut Peter Lindgren verfasserin aut Emelie Andersson verfasserin aut Adam Fridhammar verfasserin aut Monica Tames Grijalva verfasserin aut Susan Evans-Axelsson verfasserin aut Frank Verholen verfasserin aut Jihong Zong verfasserin aut John-Edward Butler-Ransohoff verfasserin aut Todd Williamson verfasserin aut Reg Waldeck verfasserin aut Amanda Bruno verfasserin aut Ekaterina Nevedomskaya verfasserin aut Samuel Fatoba verfasserin aut Niculae Constantinovici verfasserin aut Carl Steinbeisser verfasserin aut Monika Maass verfasserin aut Patrizia Torremante verfasserin aut Emmanuelle Dochy verfasserin aut Federica Pisa verfasserin aut Marc Dietrich Voss verfasserin aut Kishore Papineni verfasserin aut Jing Wang-silvanto verfasserin aut Robert Snijder verfasserin aut Xuewei Wang verfasserin aut Mark Lambrecht verfasserin aut Russ Wolfinger verfasserin aut Sherinne Eid verfasserin aut Soundarya Palanisamy verfasserin aut Samiul Haque verfasserin aut Laurent Antoni verfasserin aut Angela Servan verfasserin aut Katie Pascoe verfasserin aut Paul Robinson verfasserin aut Joana Lencart verfasserin aut Bertrand Jaton verfasserin aut Heidi Turunen verfasserin aut Olavi Kilkku verfasserin aut Pasi Pohjanjousi verfasserin aut Olli Voima verfasserin aut Liina Nevalaita verfasserin aut Keijo Punakivi verfasserin aut Sarah Seager verfasserin aut Shilpa Ratwani verfasserin aut Katarzyna Grzeslak verfasserin aut James Brash verfasserin aut Elaine Longden-Chapman verfasserin aut Danny Burke verfasserin aut Muriel Licour verfasserin aut Sarah Payne verfasserin aut Alan Yong verfasserin aut Flavia Lujan verfasserin aut Sophia Le Mare verfasserin aut Jan Hendrich verfasserin aut Michael Bussmann verfasserin aut Juckeland verfasserin aut Kotik verfasserin aut Delielena Poli verfasserin aut Christian Reich verfasserin aut In European Urology Open Science Elsevier, 2020 59(2024), Seite 27-29 (DE-627)1734491795 26661683 nnns volume:59 year:2024 pages:27-29 https://doi.org/10.1016/j.euros.2023.11.004 kostenfrei https://doaj.org/article/0e8513a8ae754937a693cd11a79baf4a kostenfrei http://www.sciencedirect.com/science/article/pii/S2666168323023157 kostenfrei https://doaj.org/toc/2666-1683 Journal toc kostenfrei GBV_USEFLAG_A SYSFLAG_A GBV_DOAJ GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 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European Urology Open Science |
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Beth Russell @@aut@@ Katharina Beyer @@aut@@ Ailbhe Lawlor @@aut@@ Monique J. Roobol @@aut@@ Lionne D.F. Venderbos @@aut@@ Sebastiaan Remmers @@aut@@ Erik Briers @@aut@@ Sara J. MacLennan @@aut@@ Steven MacLennan @@aut@@ Muhammad Imran Omar @@aut@@ Mieke Van Hemelrijck @@aut@@ Emma Smith @@aut@@ James N'Dow @@aut@@ Karin Plass @@aut@@ Maria Ribal @@aut@@ Nicolas Mottet @@aut@@ Robert Shepherd @@aut@@ Tom Abbott @@aut@@ Ken Mastris @@aut@@ Lisa Moris @@aut@@ Michael Lardas @@aut@@ Thomas Van den Broeck @@aut@@ Peter-Paul Willemse @@aut@@ Nicola Fossati @@aut@@ Karl Pang @@aut@@ Riccardo Campi @@aut@@ Isabella Greco @@aut@@ Mauro Gacci @@aut@@ Sergio Serni @@aut@@ Anders Bjartell @@aut@@ Ragnar Lonnerbro @@aut@@ Alberto Briganti @@aut@@ Daniele Crosti @@aut@@ Roberto Garzonio @@aut@@ Giorgio Gandaglia @@aut@@ Martina Faticoni @@aut@@ Grant office @@aut@@ Chris Bangma @@aut@@ Maria Jongerden @@aut@@ Derya Tilki @@aut@@ Anssi Auvinen @@aut@@ Teemu Murtola @@aut@@ Tapio Visakorpi @@aut@@ Kirsi Talala @@aut@@ Teuvo Tammela @@aut@@ Aino Siltari @@aut@@ Stephane Lejeune @@aut@@ Laurence Colette @@aut@@ Simona Caputova @@aut@@ Delielena Poli @@aut@@ Sophie Byrne @@aut@@ Luz Fialho @@aut@@ Ashley Rowland @@aut@@ Neo Tapela @@aut@@ Nicola Di Flora @@aut@@ Kathi Apostolidis @@aut@@ Valerie Lemair @@aut@@ Bertrand De Meulder @@aut@@ Charles Auffray @@aut@@ Nesrine Taibi @@aut@@ Ayman Hijazy @@aut@@ Albert Saporta @@aut@@ Kai Sun @@aut@@ Shaun Power @@aut@@ Nazanin Zounemat Kermani @@aut@@ Kees van Bochove @@aut@@ Azadeh Tafreshiha @@aut@@ Chiara Bernini @@aut@@ Denis Horgan @@aut@@ Louise Fullwood @@aut@@ Marc Holtorf @@aut@@ Doron Lancet @@aut@@ Gabi Bernstein @@aut@@ Sheela Tripathee @@aut@@ Manfred Wirth @@aut@@ Michael Froehner @@aut@@ Beate Brenner @@aut@@ Angelika Borkowetz @@aut@@ Christian Thomas @@aut@@ Friedemann Horn @@aut@@ Kristin Reiche @@aut@@ Markus Kreuz @@aut@@ Andreas Josefsson @@aut@@ Delila Gasi Tandefelt @@aut@@ Jonas Hugosson @@aut@@ Jack Schalken @@aut@@ Henkjan Huisman @@aut@@ Thomas Hofmarcher @@aut@@ Peter Lindgren @@aut@@ Emelie Andersson @@aut@@ Adam Fridhammar @@aut@@ Monica Tames Grijalva @@aut@@ Susan Evans-Axelsson @@aut@@ Frank Verholen @@aut@@ Jihong Zong @@aut@@ John-Edward Butler-Ransohoff @@aut@@ Todd Williamson @@aut@@ Reg Waldeck @@aut@@ Amanda Bruno @@aut@@ Ekaterina Nevedomskaya @@aut@@ Samuel Fatoba @@aut@@ Niculae Constantinovici @@aut@@ Carl Steinbeisser @@aut@@ Monika Maass @@aut@@ Patrizia Torremante @@aut@@ Emmanuelle Dochy @@aut@@ Federica Pisa @@aut@@ Marc Dietrich Voss @@aut@@ Kishore Papineni @@aut@@ Jing Wang-silvanto @@aut@@ Robert Snijder @@aut@@ Xuewei Wang @@aut@@ Mark Lambrecht @@aut@@ Russ Wolfinger @@aut@@ Sherinne Eid @@aut@@ Soundarya Palanisamy @@aut@@ Samiul Haque @@aut@@ Laurent Antoni @@aut@@ Angela Servan @@aut@@ Katie Pascoe @@aut@@ Paul Robinson @@aut@@ Joana Lencart @@aut@@ Bertrand Jaton @@aut@@ Heidi Turunen @@aut@@ Olavi Kilkku @@aut@@ Pasi Pohjanjousi @@aut@@ Olli Voima @@aut@@ Liina Nevalaita @@aut@@ Keijo Punakivi @@aut@@ Sarah Seager @@aut@@ Shilpa Ratwani @@aut@@ Katarzyna Grzeslak @@aut@@ James Brash @@aut@@ Elaine Longden-Chapman @@aut@@ Danny Burke @@aut@@ Muriel Licour @@aut@@ Sarah Payne @@aut@@ Alan Yong @@aut@@ Flavia Lujan @@aut@@ Sophia Le Mare @@aut@@ Jan Hendrich @@aut@@ Michael Bussmann @@aut@@ Juckeland @@aut@@ Kotik @@aut@@ Christian Reich @@aut@@ |
| publishDateDaySort_date |
2024-01-01T00:00:00Z |
| hierarchy_top_id |
1734491795 |
| id |
DOAJ097493899 |
| language_de |
englisch |
| fullrecord |
<?xml version="1.0" encoding="UTF-8"?><collection xmlns="http://www.loc.gov/MARC21/slim"><record><leader>01000naa a22002652 4500</leader><controlfield tag="001">DOAJ097493899</controlfield><controlfield tag="003">DE-627</controlfield><controlfield tag="005">20240413184218.0</controlfield><controlfield tag="007">cr uuu---uuuuu</controlfield><controlfield tag="008">240413s2024 xx |||||o 00| ||eng c</controlfield><datafield tag="024" ind1="7" ind2=" "><subfield code="a">10.1016/j.euros.2023.11.004</subfield><subfield code="2">doi</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(DE-627)DOAJ097493899</subfield></datafield><datafield tag="035" ind1=" " ind2=" "><subfield code="a">(DE-599)DOAJ0e8513a8ae754937a693cd11a79baf4a</subfield></datafield><datafield tag="040" ind1=" " ind2=" "><subfield code="a">DE-627</subfield><subfield code="b">ger</subfield><subfield code="c">DE-627</subfield><subfield code="e">rakwb</subfield></datafield><datafield tag="041" ind1=" " ind2=" "><subfield code="a">eng</subfield></datafield><datafield tag="050" ind1=" " ind2="0"><subfield code="a">RC870-923</subfield></datafield><datafield tag="050" ind1=" " ind2="0"><subfield code="a">RC254-282</subfield></datafield><datafield tag="100" ind1="0" ind2=" "><subfield code="a">Beth Russell</subfield><subfield code="e">verfasserin</subfield><subfield code="4">aut</subfield></datafield><datafield tag="245" ind1="1" ind2="0"><subfield code="a">Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be?</subfield></datafield><datafield tag="264" ind1=" " ind2="1"><subfield code="c">2024</subfield></datafield><datafield tag="336" ind1=" " ind2=" "><subfield code="a">Text</subfield><subfield code="b">txt</subfield><subfield code="2">rdacontent</subfield></datafield><datafield tag="337" ind1=" " ind2=" "><subfield code="a">Computermedien</subfield><subfield code="b">c</subfield><subfield code="2">rdamedia</subfield></datafield><datafield tag="338" ind1=" " ind2=" "><subfield code="a">Online-Ressource</subfield><subfield code="b">cr</subfield><subfield code="2">rdacarrier</subfield></datafield><datafield tag="520" ind1=" " ind2=" "><subfield code="a">Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. 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R - Medicine |
| author |
Beth Russell |
| spellingShingle |
Beth Russell misc RC870-923 misc RC254-282 misc Cancer survivorship misc Prostate cancer misc Quality of life misc Patient-reported outcome measures misc Diseases of the genitourinary system. Urology misc Neoplasms. Tumors. Oncology. Including cancer and carcinogens Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? |
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Beth Russell |
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electronic Article |
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keep |
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aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut aut |
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DOAJ |
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true |
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RC870-923 |
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Not Illustrated |
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26661683 |
| topic_title |
RC870-923 RC254-282 Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? Cancer survivorship Prostate cancer Quality of life Patient-reported outcome measures |
| topic |
misc RC870-923 misc RC254-282 misc Cancer survivorship misc Prostate cancer misc Quality of life misc Patient-reported outcome measures misc Diseases of the genitourinary system. Urology misc Neoplasms. Tumors. Oncology. Including cancer and carcinogens |
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Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? |
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Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? |
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Beth Russell Katharina Beyer Ailbhe Lawlor Monique J. Roobol Lionne D.F. Venderbos Sebastiaan Remmers Erik Briers Sara J. MacLennan Steven MacLennan Muhammad Imran Omar Mieke Van Hemelrijck Emma Smith James N'Dow Karin Plass Maria Ribal Nicolas Mottet Robert Shepherd Tom Abbott Ken Mastris Lisa Moris Michael Lardas Thomas Van den Broeck Peter-Paul Willemse Nicola Fossati Karl Pang Riccardo Campi Isabella Greco Mauro Gacci Sergio Serni Anders Bjartell Ragnar Lonnerbro Alberto Briganti Daniele Crosti Roberto Garzonio Giorgio Gandaglia Martina Faticoni Grant office Chris Bangma Maria Jongerden Derya Tilki Anssi Auvinen Teemu Murtola Tapio Visakorpi Kirsi Talala Teuvo Tammela Aino Siltari Stephane Lejeune Laurence Colette Simona Caputova Delielena Poli Sophie Byrne Luz Fialho Ashley Rowland Neo Tapela Nicola Di Flora Kathi Apostolidis Valerie Lemair Bertrand De Meulder Charles Auffray Nesrine Taibi Ayman Hijazy Albert Saporta Kai Sun Shaun Power Nazanin Zounemat Kermani Kees van Bochove Azadeh Tafreshiha Chiara Bernini Denis Horgan Louise Fullwood Marc Holtorf Doron Lancet Gabi Bernstein Sheela Tripathee Manfred Wirth Michael Froehner Beate Brenner Angelika Borkowetz Christian Thomas Friedemann Horn Kristin Reiche Markus Kreuz Andreas Josefsson Delila Gasi Tandefelt Jonas Hugosson Jack Schalken Henkjan Huisman Thomas Hofmarcher Peter Lindgren Emelie Andersson Adam Fridhammar Monica Tames Grijalva Susan Evans-Axelsson Frank Verholen Jihong Zong John-Edward Butler-Ransohoff Todd Williamson Reg Waldeck Amanda Bruno Ekaterina Nevedomskaya Samuel Fatoba Niculae Constantinovici Carl Steinbeisser Monika Maass Patrizia Torremante Emmanuelle Dochy Federica Pisa Marc Dietrich Voss Kishore Papineni Jing Wang-silvanto Robert Snijder Xuewei Wang Mark Lambrecht Russ Wolfinger Sherinne Eid Soundarya Palanisamy Samiul Haque Laurent Antoni Angela Servan Katie Pascoe Paul Robinson Joana Lencart Bertrand Jaton Heidi Turunen Olavi Kilkku Pasi Pohjanjousi Olli Voima Liina Nevalaita Keijo Punakivi Sarah Seager Shilpa Ratwani Katarzyna Grzeslak James Brash Elaine Longden-Chapman Danny Burke Muriel Licour Sarah Payne Alan Yong Flavia Lujan Sophia Le Mare Jan Hendrich Michael Bussmann Juckeland Kotik Christian Reich |
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survivorship data in prostate cancer: where are we and where do we need to be? |
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Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? |
| abstract |
Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. |
| abstractGer |
Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. |
| abstract_unstemmed |
Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life. Patient summary: As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data. |
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Survivorship Data in Prostate Cancer: Where Are We and Where Do We Need To Be? |
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