Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services

Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen sta...
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Gespeichert in:

Autor*in:	Maini, Rishma [verfasserIn] Kirkpatrick, Martin [verfasserIn] McCafferty, Aileen [verfasserIn] Dunkley, Colin [verfasserIn] Ogston, Simon [verfasserIn] Williams, Fiona [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2018

Schlagwörter:	Epilepsy Children Patient reported experience measure Factor analysis Measurement tool

Übergeordnetes Werk:	Enthalten in: Seizure - Oxford [u.a.] : Elsevier, 1992, 63, Seite 71-78
Übergeordnetes Werk:	volume:63 ; pages:71-78

DOI / URN:	10.1016/j.seizure.2018.11.002

Katalog-ID:	ELV001219456

Internformat


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100	1		\|a Maini, Rishma \|e verfasserin \|4 aut
245	1	0	\|a Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services
264		1	\|c 2018
336			\|a nicht spezifiziert \|b zzz \|2 rdacontent
337			\|a Computermedien \|b c \|2 rdamedia
338			\|a Online-Ressource \|b cr \|2 rdacarrier
520			\|a Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs.
650		4	\|a Epilepsy
650		4	\|a Children
650		4	\|a Patient reported experience measure
650		4	\|a Factor analysis
650		4	\|a Measurement tool
700	1		\|a Kirkpatrick, Martin \|e verfasserin \|4 aut
700	1		\|a McCafferty, Aileen \|e verfasserin \|4 aut
700	1		\|a Dunkley, Colin \|e verfasserin \|4 aut
700	1		\|a Ogston, Simon \|e verfasserin \|4 aut
700	1		\|a Williams, Fiona \|e verfasserin \|4 aut
773	0	8	\|i Enthalten in \|t Seizure \|d Oxford [u.a.] : Elsevier, 1992 \|g 63, Seite 71-78 \|h Online-Ressource \|w (DE-627)320421228 \|w (DE-600)2002585-3 \|w (DE-576)264423720 \|x 1532-2688 \|7 nnns
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912			\|a GBV_ILN_213
912			\|a GBV_ILN_224
912			\|a GBV_ILN_230
912			\|a GBV_ILN_285
912			\|a GBV_ILN_293
912			\|a GBV_ILN_370
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912			\|a GBV_ILN_2031
912			\|a GBV_ILN_2034
912			\|a GBV_ILN_2044
912			\|a GBV_ILN_2048
912			\|a GBV_ILN_2055
912			\|a GBV_ILN_2056
912			\|a GBV_ILN_2064
912			\|a GBV_ILN_2068
912			\|a GBV_ILN_2088
912			\|a GBV_ILN_2106
912			\|a GBV_ILN_2110
912			\|a GBV_ILN_2111
912			\|a GBV_ILN_2113
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912			\|a GBV_ILN_2153
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912			\|a GBV_ILN_4322
912			\|a GBV_ILN_4323
912			\|a GBV_ILN_4324
912			\|a GBV_ILN_4325
912			\|a GBV_ILN_4334
912			\|a GBV_ILN_4335
912			\|a GBV_ILN_4338
912			\|a GBV_ILN_4367
912			\|a GBV_ILN_4700
936	b	k	\|a 44.90 \|j Neurologie
951			\|a AR
952			\|d 63 \|h 71-78

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author_variant	r m rm m k mk a m am c d cd s o so f w fw
matchkey_str	article:15322688:2018----::vlainfqetonieoesrprncrrncidonproepre
hierarchy_sort_str	2018
bklnumber	44.90
publishDate	2018
allfields	10.1016/j.seizure.2018.11.002 doi (DE-627)ELV001219456 (ELSEVIER)S1059-1311(18)30623-X DE-627 ger DE-627 rda eng 610 DE-600 44.90 bkl Maini, Rishma verfasserin aut Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services 2018 nicht spezifiziert zzz rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs. Epilepsy Children Patient reported experience measure Factor analysis Measurement tool Kirkpatrick, Martin verfasserin aut McCafferty, Aileen verfasserin aut Dunkley, Colin verfasserin aut Ogston, Simon verfasserin aut Williams, Fiona verfasserin aut Enthalten in Seizure Oxford [u.a.] : Elsevier, 1992 63, Seite 71-78 Online-Ressource (DE-627)320421228 (DE-600)2002585-3 (DE-576)264423720 1532-2688 nnns volume:63 pages:71-78 GBV_USEFLAG_U SYSFLAG_U GBV_ELV SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2014 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2113 GBV_ILN_2143 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.90 Neurologie AR 63 71-78
spelling	10.1016/j.seizure.2018.11.002 doi (DE-627)ELV001219456 (ELSEVIER)S1059-1311(18)30623-X DE-627 ger DE-627 rda eng 610 DE-600 44.90 bkl Maini, Rishma verfasserin aut Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services 2018 nicht spezifiziert zzz rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs. Epilepsy Children Patient reported experience measure Factor analysis Measurement tool Kirkpatrick, Martin verfasserin aut McCafferty, Aileen verfasserin aut Dunkley, Colin verfasserin aut Ogston, Simon verfasserin aut Williams, Fiona verfasserin aut Enthalten in Seizure Oxford [u.a.] : Elsevier, 1992 63, Seite 71-78 Online-Ressource (DE-627)320421228 (DE-600)2002585-3 (DE-576)264423720 1532-2688 nnns volume:63 pages:71-78 GBV_USEFLAG_U SYSFLAG_U GBV_ELV SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2014 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2113 GBV_ILN_2143 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.90 Neurologie AR 63 71-78
allfields_unstemmed	10.1016/j.seizure.2018.11.002 doi (DE-627)ELV001219456 (ELSEVIER)S1059-1311(18)30623-X DE-627 ger DE-627 rda eng 610 DE-600 44.90 bkl Maini, Rishma verfasserin aut Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services 2018 nicht spezifiziert zzz rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs. Epilepsy Children Patient reported experience measure Factor analysis Measurement tool Kirkpatrick, Martin verfasserin aut McCafferty, Aileen verfasserin aut Dunkley, Colin verfasserin aut Ogston, Simon verfasserin aut Williams, Fiona verfasserin aut Enthalten in Seizure Oxford [u.a.] : Elsevier, 1992 63, Seite 71-78 Online-Ressource (DE-627)320421228 (DE-600)2002585-3 (DE-576)264423720 1532-2688 nnns volume:63 pages:71-78 GBV_USEFLAG_U SYSFLAG_U GBV_ELV SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2014 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2113 GBV_ILN_2143 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.90 Neurologie AR 63 71-78
allfieldsGer	10.1016/j.seizure.2018.11.002 doi (DE-627)ELV001219456 (ELSEVIER)S1059-1311(18)30623-X DE-627 ger DE-627 rda eng 610 DE-600 44.90 bkl Maini, Rishma verfasserin aut Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services 2018 nicht spezifiziert zzz rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs. Epilepsy Children Patient reported experience measure Factor analysis Measurement tool Kirkpatrick, Martin verfasserin aut McCafferty, Aileen verfasserin aut Dunkley, Colin verfasserin aut Ogston, Simon verfasserin aut Williams, Fiona verfasserin aut Enthalten in Seizure Oxford [u.a.] : Elsevier, 1992 63, Seite 71-78 Online-Ressource (DE-627)320421228 (DE-600)2002585-3 (DE-576)264423720 1532-2688 nnns volume:63 pages:71-78 GBV_USEFLAG_U SYSFLAG_U GBV_ELV SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2014 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2113 GBV_ILN_2143 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.90 Neurologie AR 63 71-78
allfieldsSound	10.1016/j.seizure.2018.11.002 doi (DE-627)ELV001219456 (ELSEVIER)S1059-1311(18)30623-X DE-627 ger DE-627 rda eng 610 DE-600 44.90 bkl Maini, Rishma verfasserin aut Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services 2018 nicht spezifiziert zzz rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs. Epilepsy Children Patient reported experience measure Factor analysis Measurement tool Kirkpatrick, Martin verfasserin aut McCafferty, Aileen verfasserin aut Dunkley, Colin verfasserin aut Ogston, Simon verfasserin aut Williams, Fiona verfasserin aut Enthalten in Seizure Oxford [u.a.] : Elsevier, 1992 63, Seite 71-78 Online-Ressource (DE-627)320421228 (DE-600)2002585-3 (DE-576)264423720 1532-2688 nnns volume:63 pages:71-78 GBV_USEFLAG_U SYSFLAG_U GBV_ELV SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2014 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2064 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2106 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2113 GBV_ILN_2143 GBV_ILN_2153 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2470 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.90 Neurologie AR 63 71-78
language	English
source	Enthalten in Seizure 63, Seite 71-78 volume:63 pages:71-78
sourceStr	Enthalten in Seizure 63, Seite 71-78 volume:63 pages:71-78
format_phy_str_mv	Article
bklname	Neurologie
institution	findex.gbv.de
topic_facet	Epilepsy Children Patient reported experience measure Factor analysis Measurement tool
dewey-raw	610
isfreeaccess_bool	false
container_title	Seizure
authorswithroles_txt_mv	Maini, Rishma @@aut@@ Kirkpatrick, Martin @@aut@@ McCafferty, Aileen @@aut@@ Dunkley, Colin @@aut@@ Ogston, Simon @@aut@@ Williams, Fiona @@aut@@
publishDateDaySort_date	2018-01-01T00:00:00Z
hierarchy_top_id	320421228
dewey-sort	3610
id	ELV001219456
language_de	englisch
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author	Maini, Rishma
spellingShingle	Maini, Rishma ddc 610 bkl 44.90 misc Epilepsy misc Children misc Patient reported experience measure misc Factor analysis misc Measurement tool Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services
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topic_title	610 DE-600 44.90 bkl Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services Epilepsy Children Patient reported experience measure Factor analysis Measurement tool
topic	ddc 610 bkl 44.90 misc Epilepsy misc Children misc Patient reported experience measure misc Factor analysis misc Measurement tool
topic_unstemmed	ddc 610 bkl 44.90 misc Epilepsy misc Children misc Patient reported experience measure misc Factor analysis misc Measurement tool
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title	Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services
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title_full	Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services
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author_browse	Maini, Rishma Kirkpatrick, Martin McCafferty, Aileen Dunkley, Colin Ogston, Simon Williams, Fiona
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title_sort	evaluation of a questionnaire to measure parent/carer and child/young person experience of nhs epilepsy services
title_auth	Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services
abstract	Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs.
abstractGer	Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs.
abstract_unstemmed	Purpose: To validate a patient-reported-experience-measure, PREM, of the NHS paediatric epilepsy service.Methods: Section 1 of the PREM recorded demographic and clinical characteristics, and Section 2 collected information about the users’ experience with the service. Section 2 included eighteen statements around three constructs: communication and provision of information to service users, interpersonal skills of staff, and clinic visits and accessibility to the services. Face validity, construct validity, internal reliability, and internal consistency were used to examine the robustness of these statements. The PREM was completed by parents/carers and also children/young people.Results: PREMs were received from 145 of the 192 audit units; 2335 completed forms were returned; the attitude statements were completed by 750 children/young people and 1550 parents/carers. Face validity of the PREM was good. Construct validity was indecisive; confirmatory factor analysis of the hypothesised construct was weak. Exploratory factor analysis identified a four factor solution for the parent/carers dataset and a five factor solution for the children/young people’s dataset. Internal reliability was good for the parent/carers dataset but less good for the children/young people. Internal consistency was moderately good for both datasets.Conclusions: These findings indicate that the PREM is likely to be a valid tool with the potential to elicit a wide variety of reliable views from parents/carers of children with epilepsy. The construct validity for the PREM should be reassessed with confirmatory factor analysis in a new dataset. More work needs to be undertaken with children/young people to design statements that capture their specific needs.
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title_short	Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services
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up_date	2024-07-06T20:37:48.812Z
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Evaluation of a questionnaire to measure parent/carer and child/young person experience of NHS epilepsy services

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