Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany

This study aimed to measure health-related quality of life (HRQOL) in children and adolescents with tuberous sclerosis complex (TSC) and quality of life (QOL) and depressive symptoms among caregivers.

Gespeichert in:

Autor*in:	Willems, Laurent M. [verfasserIn] Schubert-Bast, Susanne Grau, Janina Hertzberg, Christoph Kurlemann, Gerhard Wiemer-Kruel, Adelheid Bast, Thomas Bertsche, Astrid Bettendorf, Ulrich Fiedler, Barbara Hahn, Andreas Hartmann, Hans Hornemann, Frauke Immisch, Ilka Jacobs, Julia Kieslich, Matthias Klein, Karl Martin Klotz, Kerstin A. Kluger, Gerhard Knuf, Markus Mayer, Thomas Marquard, Klaus Meyer, Sascha Muhle, Hiltrud Müller-Schlüter, Karen Noda, Anna H. Ruf, Susanne Sauter, Matthias Schlump, Jan-Ulrich Syrbe, Steffen Thiels, Charlotte Trollmann, Regina Wilken, Bernd Zöllner, Johann Philipp Rosenow, Felix Strzelczyk, Adam

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2021

Schlagwörter:	TSC Epilepsy Depression Seizure Angiomyolipoma

Umfang:	12

Übergeordnetes Werk:	Enthalten in: Biologically active vallesamine, strychnan, and rhazinilam alkaloids from - Lim, Jun-Lee ELSEVIER, 2015, ejpn : official journal of the European Paediatric Neurology Society, Burlington, Mass
Übergeordnetes Werk:	volume:35 ; year:2021 ; pages:111-122 ; extent:12

Links:	Volltext

DOI / URN:	10.1016/j.ejpn.2021.10.003

Katalog-ID:	ELV056182872

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spelling	10.1016/j.ejpn.2021.10.003 doi /cbs_pica/cbs_olc/import_discovery/elsevier/einzuspielen/GBV00000000001607.pica (DE-627)ELV056182872 (ELSEVIER)S1090-3798(21)00185-9 DE-627 ger DE-627 rakwb eng 580 540 VZ BIODIV DE-30 fid 42.00 bkl Willems, Laurent M. verfasserin aut Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany 2021 12 nicht spezifiziert zzz rdacontent nicht spezifiziert z rdamedia nicht spezifiziert zu rdacarrier This study aimed to measure health-related quality of life (HRQOL) in children and adolescents with tuberous sclerosis complex (TSC) and quality of life (QOL) and depressive symptoms among caregivers. TSC Elsevier Epilepsy Elsevier Depression Elsevier Seizure Elsevier Angiomyolipoma Elsevier Schubert-Bast, Susanne oth Grau, Janina oth Hertzberg, Christoph oth Kurlemann, Gerhard oth Wiemer-Kruel, Adelheid oth Bast, Thomas oth Bertsche, Astrid oth Bettendorf, Ulrich oth Fiedler, Barbara oth Hahn, Andreas oth Hartmann, Hans oth Hornemann, Frauke oth Immisch, Ilka oth Jacobs, Julia oth Kieslich, Matthias oth Klein, Karl Martin oth Klotz, Kerstin A. oth Kluger, Gerhard oth Knuf, Markus oth Mayer, Thomas oth Marquard, Klaus oth Meyer, Sascha oth Muhle, Hiltrud oth Müller-Schlüter, Karen oth Noda, Anna H. oth Ruf, Susanne oth Sauter, Matthias oth Schlump, Jan-Ulrich oth Syrbe, Steffen oth Thiels, Charlotte oth Trollmann, Regina oth Wilken, Bernd oth Zöllner, Johann Philipp oth Rosenow, Felix oth Strzelczyk, Adam oth Enthalten in Harcourt Lim, Jun-Lee ELSEVIER Biologically active vallesamine, strychnan, and rhazinilam alkaloids from 2015 ejpn : official journal of the European Paediatric Neurology Society Burlington, Mass (DE-627)ELV001176439 volume:35 year:2021 pages:111-122 extent:12 https://doi.org/10.1016/j.ejpn.2021.10.003 Volltext GBV_USEFLAG_U GBV_ELV SYSFLAG_U FID-BIODIV SSG-OLC-PHA 42.00 Biologie: Allgemeines VZ AR 35 2021 111-122 12
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allfieldsSound	10.1016/j.ejpn.2021.10.003 doi /cbs_pica/cbs_olc/import_discovery/elsevier/einzuspielen/GBV00000000001607.pica (DE-627)ELV056182872 (ELSEVIER)S1090-3798(21)00185-9 DE-627 ger DE-627 rakwb eng 580 540 VZ BIODIV DE-30 fid 42.00 bkl Willems, Laurent M. verfasserin aut Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany 2021 12 nicht spezifiziert zzz rdacontent nicht spezifiziert z rdamedia nicht spezifiziert zu rdacarrier This study aimed to measure health-related quality of life (HRQOL) in children and adolescents with tuberous sclerosis complex (TSC) and quality of life (QOL) and depressive symptoms among caregivers. TSC Elsevier Epilepsy Elsevier Depression Elsevier Seizure Elsevier Angiomyolipoma Elsevier Schubert-Bast, Susanne oth Grau, Janina oth Hertzberg, Christoph oth Kurlemann, Gerhard oth Wiemer-Kruel, Adelheid oth Bast, Thomas oth Bertsche, Astrid oth Bettendorf, Ulrich oth Fiedler, Barbara oth Hahn, Andreas oth Hartmann, Hans oth Hornemann, Frauke oth Immisch, Ilka oth Jacobs, Julia oth Kieslich, Matthias oth Klein, Karl Martin oth Klotz, Kerstin A. oth Kluger, Gerhard oth Knuf, Markus oth Mayer, Thomas oth Marquard, Klaus oth Meyer, Sascha oth Muhle, Hiltrud oth Müller-Schlüter, Karen oth Noda, Anna H. oth Ruf, Susanne oth Sauter, Matthias oth Schlump, Jan-Ulrich oth Syrbe, Steffen oth Thiels, Charlotte oth Trollmann, Regina oth Wilken, Bernd oth Zöllner, Johann Philipp oth Rosenow, Felix oth Strzelczyk, Adam oth Enthalten in Harcourt Lim, Jun-Lee ELSEVIER Biologically active vallesamine, strychnan, and rhazinilam alkaloids from 2015 ejpn : official journal of the European Paediatric Neurology Society Burlington, Mass (DE-627)ELV001176439 volume:35 year:2021 pages:111-122 extent:12 https://doi.org/10.1016/j.ejpn.2021.10.003 Volltext GBV_USEFLAG_U GBV_ELV SYSFLAG_U FID-BIODIV SSG-OLC-PHA 42.00 Biologie: Allgemeines VZ AR 35 2021 111-122 12
language	English
source	Enthalten in Biologically active vallesamine, strychnan, and rhazinilam alkaloids from Burlington, Mass volume:35 year:2021 pages:111-122 extent:12
sourceStr	Enthalten in Biologically active vallesamine, strychnan, and rhazinilam alkaloids from Burlington, Mass volume:35 year:2021 pages:111-122 extent:12
format_phy_str_mv	Article
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container_title	Biologically active vallesamine, strychnan, and rhazinilam alkaloids from
authorswithroles_txt_mv	Willems, Laurent M. @@aut@@ Schubert-Bast, Susanne @@oth@@ Grau, Janina @@oth@@ Hertzberg, Christoph @@oth@@ Kurlemann, Gerhard @@oth@@ Wiemer-Kruel, Adelheid @@oth@@ Bast, Thomas @@oth@@ Bertsche, Astrid @@oth@@ Bettendorf, Ulrich @@oth@@ Fiedler, Barbara @@oth@@ Hahn, Andreas @@oth@@ Hartmann, Hans @@oth@@ Hornemann, Frauke @@oth@@ Immisch, Ilka @@oth@@ Jacobs, Julia @@oth@@ Kieslich, Matthias @@oth@@ Klein, Karl Martin @@oth@@ Klotz, Kerstin A. @@oth@@ Kluger, Gerhard @@oth@@ Knuf, Markus @@oth@@ Mayer, Thomas @@oth@@ Marquard, Klaus @@oth@@ Meyer, Sascha @@oth@@ Muhle, Hiltrud @@oth@@ Müller-Schlüter, Karen @@oth@@ Noda, Anna H. @@oth@@ Ruf, Susanne @@oth@@ Sauter, Matthias @@oth@@ Schlump, Jan-Ulrich @@oth@@ Syrbe, Steffen @@oth@@ Thiels, Charlotte @@oth@@ Trollmann, Regina @@oth@@ Wilken, Bernd @@oth@@ Zöllner, Johann Philipp @@oth@@ Rosenow, Felix @@oth@@ Strzelczyk, Adam @@oth@@
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topic_title	580 540 VZ BIODIV DE-30 fid 42.00 bkl Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany TSC Elsevier Epilepsy Elsevier Depression Elsevier Seizure Elsevier Angiomyolipoma Elsevier
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title	Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany
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title_full	Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany
author_sort	Willems, Laurent M.
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title_sort	health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: a multicentre cohort study from germany
title_auth	Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany
abstract	This study aimed to measure health-related quality of life (HRQOL) in children and adolescents with tuberous sclerosis complex (TSC) and quality of life (QOL) and depressive symptoms among caregivers.
abstractGer	This study aimed to measure health-related quality of life (HRQOL) in children and adolescents with tuberous sclerosis complex (TSC) and quality of life (QOL) and depressive symptoms among caregivers.
abstract_unstemmed	This study aimed to measure health-related quality of life (HRQOL) in children and adolescents with tuberous sclerosis complex (TSC) and quality of life (QOL) and depressive symptoms among caregivers.
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title_short	Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany
url	https://doi.org/10.1016/j.ejpn.2021.10.003
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author2	Schubert-Bast, Susanne Grau, Janina Hertzberg, Christoph Kurlemann, Gerhard Wiemer-Kruel, Adelheid Bast, Thomas Bertsche, Astrid Bettendorf, Ulrich Fiedler, Barbara Hahn, Andreas Hartmann, Hans Hornemann, Frauke Immisch, Ilka Jacobs, Julia Kieslich, Matthias Klein, Karl Martin Klotz, Kerstin A. Kluger, Gerhard Knuf, Markus Mayer, Thomas Marquard, Klaus Meyer, Sascha Muhle, Hiltrud Müller-Schlüter, Karen Noda, Anna H. Ruf, Susanne Sauter, Matthias Schlump, Jan-Ulrich Syrbe, Steffen Thiels, Charlotte Trollmann, Regina Wilken, Bernd Zöllner, Johann Philipp Rosenow, Felix Strzelczyk, Adam
author2Str	Schubert-Bast, Susanne Grau, Janina Hertzberg, Christoph Kurlemann, Gerhard Wiemer-Kruel, Adelheid Bast, Thomas Bertsche, Astrid Bettendorf, Ulrich Fiedler, Barbara Hahn, Andreas Hartmann, Hans Hornemann, Frauke Immisch, Ilka Jacobs, Julia Kieslich, Matthias Klein, Karl Martin Klotz, Kerstin A. Kluger, Gerhard Knuf, Markus Mayer, Thomas Marquard, Klaus Meyer, Sascha Muhle, Hiltrud Müller-Schlüter, Karen Noda, Anna H. Ruf, Susanne Sauter, Matthias Schlump, Jan-Ulrich Syrbe, Steffen Thiels, Charlotte Trollmann, Regina Wilken, Bernd Zöllner, Johann Philipp Rosenow, Felix Strzelczyk, Adam
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doi_str	10.1016/j.ejpn.2021.10.003
up_date	2024-07-06T19:40:08.449Z
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