Cancer symptom transition periods of children and families
Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children'...
Ausführliche Beschreibung
Autor*in: |
Woodgate, Roberta Lynn - PhD RN [verfasserIn] Degner, Lesley Faith - PhD RN [verfasserIn] |
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E-Artikel |
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Erschienen: |
Oxford, UK: Blackwell Science Ltd ; 2004 |
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Online-Ressource |
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Reproduktion: |
2004 ; Blackwell Publishing Journal Backfiles 1879-2005 |
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Übergeordnetes Werk: |
In: Journal of advanced nursing - Oxford [u.a.] : Wiley-Blackwell, 1976, 46(2004), 4, Seite 0 |
Übergeordnetes Werk: |
volume:46 ; year:2004 ; number:4 ; pages:0 |
Links: |
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DOI / URN: |
10.1111/j.1365-2648.2004.03002.x |
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Katalog-ID: |
NLEJ243400535 |
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520 | |a Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. | ||
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10.1111/j.1365-2648.2004.03002.x doi (DE-627)NLEJ243400535 DE-627 ger DE-627 rakwb Woodgate, Roberta Lynn PhD RN verfasserin aut Cancer symptom transition periods of children and families Oxford, UK Blackwell Science Ltd 2004 Online-Ressource nicht spezifiziert zzz rdacontent nicht spezifiziert z rdamedia nicht spezifiziert zu rdacarrier Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. 2004 Blackwell Publishing Journal Backfiles 1879-2005 |2004|||||||||| transition periods Degner, Lesley Faith PhD RN verfasserin aut In Journal of advanced nursing Oxford [u.a.] : Wiley-Blackwell, 1976 46(2004), 4, Seite 0 Online-Ressource (DE-627)NLEJ243927088 (DE-600)2009963-0 1365-2648 nnns volume:46 year:2004 number:4 pages:0 http://dx.doi.org/10.1111/j.1365-2648.2004.03002.x text/html Verlag Deutschlandweit zugänglich Volltext GBV_USEFLAG_U ZDB-1-DJB GBV_NL_ARTICLE AR 46 2004 4 0 |
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10.1111/j.1365-2648.2004.03002.x doi (DE-627)NLEJ243400535 DE-627 ger DE-627 rakwb Woodgate, Roberta Lynn PhD RN verfasserin aut Cancer symptom transition periods of children and families Oxford, UK Blackwell Science Ltd 2004 Online-Ressource nicht spezifiziert zzz rdacontent nicht spezifiziert z rdamedia nicht spezifiziert zu rdacarrier Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. 2004 Blackwell Publishing Journal Backfiles 1879-2005 |2004|||||||||| transition periods Degner, Lesley Faith PhD RN verfasserin aut In Journal of advanced nursing Oxford [u.a.] : Wiley-Blackwell, 1976 46(2004), 4, Seite 0 Online-Ressource (DE-627)NLEJ243927088 (DE-600)2009963-0 1365-2648 nnns volume:46 year:2004 number:4 pages:0 http://dx.doi.org/10.1111/j.1365-2648.2004.03002.x text/html Verlag Deutschlandweit zugänglich Volltext GBV_USEFLAG_U ZDB-1-DJB GBV_NL_ARTICLE AR 46 2004 4 0 |
allfields_unstemmed |
10.1111/j.1365-2648.2004.03002.x doi (DE-627)NLEJ243400535 DE-627 ger DE-627 rakwb Woodgate, Roberta Lynn PhD RN verfasserin aut Cancer symptom transition periods of children and families Oxford, UK Blackwell Science Ltd 2004 Online-Ressource nicht spezifiziert zzz rdacontent nicht spezifiziert z rdamedia nicht spezifiziert zu rdacarrier Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. 2004 Blackwell Publishing Journal Backfiles 1879-2005 |2004|||||||||| transition periods Degner, Lesley Faith PhD RN verfasserin aut In Journal of advanced nursing Oxford [u.a.] : Wiley-Blackwell, 1976 46(2004), 4, Seite 0 Online-Ressource (DE-627)NLEJ243927088 (DE-600)2009963-0 1365-2648 nnns volume:46 year:2004 number:4 pages:0 http://dx.doi.org/10.1111/j.1365-2648.2004.03002.x text/html Verlag Deutschlandweit zugänglich Volltext GBV_USEFLAG_U ZDB-1-DJB GBV_NL_ARTICLE AR 46 2004 4 0 |
allfieldsGer |
10.1111/j.1365-2648.2004.03002.x doi (DE-627)NLEJ243400535 DE-627 ger DE-627 rakwb Woodgate, Roberta Lynn PhD RN verfasserin aut Cancer symptom transition periods of children and families Oxford, UK Blackwell Science Ltd 2004 Online-Ressource nicht spezifiziert zzz rdacontent nicht spezifiziert z rdamedia nicht spezifiziert zu rdacarrier Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. 2004 Blackwell Publishing Journal Backfiles 1879-2005 |2004|||||||||| transition periods Degner, Lesley Faith PhD RN verfasserin aut In Journal of advanced nursing Oxford [u.a.] : Wiley-Blackwell, 1976 46(2004), 4, Seite 0 Online-Ressource (DE-627)NLEJ243927088 (DE-600)2009963-0 1365-2648 nnns volume:46 year:2004 number:4 pages:0 http://dx.doi.org/10.1111/j.1365-2648.2004.03002.x text/html Verlag Deutschlandweit zugänglich Volltext GBV_USEFLAG_U ZDB-1-DJB GBV_NL_ARTICLE AR 46 2004 4 0 |
allfieldsSound |
10.1111/j.1365-2648.2004.03002.x doi (DE-627)NLEJ243400535 DE-627 ger DE-627 rakwb Woodgate, Roberta Lynn PhD RN verfasserin aut Cancer symptom transition periods of children and families Oxford, UK Blackwell Science Ltd 2004 Online-Ressource nicht spezifiziert zzz rdacontent nicht spezifiziert z rdamedia nicht spezifiziert zu rdacarrier Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. 2004 Blackwell Publishing Journal Backfiles 1879-2005 |2004|||||||||| transition periods Degner, Lesley Faith PhD RN verfasserin aut In Journal of advanced nursing Oxford [u.a.] : Wiley-Blackwell, 1976 46(2004), 4, Seite 0 Online-Ressource (DE-627)NLEJ243927088 (DE-600)2009963-0 1365-2648 nnns volume:46 year:2004 number:4 pages:0 http://dx.doi.org/10.1111/j.1365-2648.2004.03002.x text/html Verlag Deutschlandweit zugänglich Volltext GBV_USEFLAG_U ZDB-1-DJB GBV_NL_ARTICLE AR 46 2004 4 0 |
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Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. 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Cancer symptom transition periods of children and families |
abstract |
Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. |
abstractGer |
Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. |
abstract_unstemmed |
Background. Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. Data were analysed by the constant comparative method. Development of illness narratives added to an understanding of children's and families’ experiences.Findings. A substantive theory entitled ‘Children's and Families’ Lived Experience of Childhood Cancer Symptoms’ emerged from the findings. This depicts the experience of cancer in relation to children's changing symptom trajectory. A core category of the theory, ‘passage through the transition periods’, shows how changing symptom experiences affected children's and families’ ways of being in the world. These were reflected in six transition periods: (1) it is just the flu; (2) it is more than the flu; (3) it hits home; (4) it is nasty; (5) it is not so bad, it is pretty good; and (6) it is ‘dragsville’. The changing roles and responsibilities of family members, and how the family existed in the cancer world, varied depending on the transition period through which they were passing.Conclusions. Transition periods not only reinforce the dynamic nature of the experience of childhood cancer but, more importantly, show how symptoms can greatly affect the quality of children's and families’ day-to-day living. Interpreting cancer in the context of the symptom trajectory provides nurses with a new perspective for understanding childhood cancer, and will assist in the development of symptom relief strategies that will help to contain symptoms and improve overall quality of life for children and families. |
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title_short |
Cancer symptom transition periods of children and families |
url |
http://dx.doi.org/10.1111/j.1365-2648.2004.03002.x |
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Degner, Lesley Faith PhD RN |
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Degner, Lesley Faith PhD RN |
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10.1111/j.1365-2648.2004.03002.x |
up_date |
2024-07-06T05:20:34.195Z |
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Children with cancer are reported to experience many symptoms during the cancer trajectory. However, minimal qualitative research has been conducted that explores children's and families’ experiences of symptoms. An understanding of the symptom trajectory, grounded in children's and families’ experiences, is essential to providing comprehensive and sensitive care to children with cancer and their families.Aim. This paper reports a study designed to explore and describe the symptom course in childhood cancer as experienced by children and their families.Design. Guided by the philosophy of interpretive interactionism, a longitudinal qualitative study was undertaken. A purposive sample of 39 families of children with cancer who resided in Western Canada participated. The children ranged in age from 4·5 to 18 years and varied in their cancer diagnoses.Methods. Multiple data collection methods included formal and informal interviewing and participant observation. 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