Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study
Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting...
Ausführliche Beschreibung
Gespeichert in:
| Autor*in: |
Bouma, Grietje [verfasserIn] de Hosson, Lotte D. [verfasserIn] van Woerkom, Claudia E. [verfasserIn] van Essen, Hennie [verfasserIn] de Bock, Geertruida H. [verfasserIn] Admiraal, Jolien M. [verfasserIn] Reyners, Anna K. L. [verfasserIn] Walenkamp, Annemiek M. E. [verfasserIn] |
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| Format: |
E-Artikel |
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| Sprache: |
Englisch |
| Erschienen: |
2017 |
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| Schlagwörter: |
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| Übergeordnetes Werk: |
Enthalten in: Supportive care in cancer - Berlin : Springer, 1993, 25(2017), 7 vom: 09. Feb., Seite 2075-2083 |
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| Übergeordnetes Werk: |
volume:25 ; year:2017 ; number:7 ; day:09 ; month:02 ; pages:2075-2083 |
| Links: |
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| DOI / URN: |
10.1007/s00520-017-3598-7 |
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| Katalog-ID: |
SPR006613322 |
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| 245 | 1 | 0 | |a Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study |
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| 520 | |a Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 | ||
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| 700 | 1 | |a van Woerkom, Claudia E. |e verfasserin |4 aut | |
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| 700 | 1 | |a de Bock, Geertruida H. |e verfasserin |4 aut | |
| 700 | 1 | |a Admiraal, Jolien M. |e verfasserin |4 aut | |
| 700 | 1 | |a Reyners, Anna K. L. |e verfasserin |4 aut | |
| 700 | 1 | |a Walenkamp, Annemiek M. E. |e verfasserin |4 aut | |
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10.1007/s00520-017-3598-7 doi (DE-627)SPR006613322 (SPR)s00520-017-3598-7-e DE-627 ger DE-627 rakwb eng 610 ASE 44.81 bkl Bouma, Grietje verfasserin aut Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study 2017 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 Neuroendocrine tumor (dpeaa)DE-He213 Information (dpeaa)DE-He213 Support (dpeaa)DE-He213 Web-based (dpeaa)DE-He213 Internet (dpeaa)DE-He213 de Hosson, Lotte D. verfasserin aut van Woerkom, Claudia E. verfasserin aut van Essen, Hennie verfasserin aut de Bock, Geertruida H. verfasserin aut Admiraal, Jolien M. verfasserin aut Reyners, Anna K. L. verfasserin aut Walenkamp, Annemiek M. E. verfasserin aut Enthalten in Supportive care in cancer Berlin : Springer, 1993 25(2017), 7 vom: 09. Feb., Seite 2075-2083 (DE-627)254909574 (DE-600)1463166-0 1433-7339 nnns volume:25 year:2017 number:7 day:09 month:02 pages:2075-2083 https://dx.doi.org/10.1007/s00520-017-3598-7 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2070 GBV_ILN_2086 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2116 GBV_ILN_2118 GBV_ILN_2119 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.81 ASE AR 25 2017 7 09 02 2075-2083 |
| spelling |
10.1007/s00520-017-3598-7 doi (DE-627)SPR006613322 (SPR)s00520-017-3598-7-e DE-627 ger DE-627 rakwb eng 610 ASE 44.81 bkl Bouma, Grietje verfasserin aut Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study 2017 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 Neuroendocrine tumor (dpeaa)DE-He213 Information (dpeaa)DE-He213 Support (dpeaa)DE-He213 Web-based (dpeaa)DE-He213 Internet (dpeaa)DE-He213 de Hosson, Lotte D. verfasserin aut van Woerkom, Claudia E. verfasserin aut van Essen, Hennie verfasserin aut de Bock, Geertruida H. verfasserin aut Admiraal, Jolien M. verfasserin aut Reyners, Anna K. L. verfasserin aut Walenkamp, Annemiek M. E. verfasserin aut Enthalten in Supportive care in cancer Berlin : Springer, 1993 25(2017), 7 vom: 09. Feb., Seite 2075-2083 (DE-627)254909574 (DE-600)1463166-0 1433-7339 nnns volume:25 year:2017 number:7 day:09 month:02 pages:2075-2083 https://dx.doi.org/10.1007/s00520-017-3598-7 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2070 GBV_ILN_2086 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2116 GBV_ILN_2118 GBV_ILN_2119 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.81 ASE AR 25 2017 7 09 02 2075-2083 |
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10.1007/s00520-017-3598-7 doi (DE-627)SPR006613322 (SPR)s00520-017-3598-7-e DE-627 ger DE-627 rakwb eng 610 ASE 44.81 bkl Bouma, Grietje verfasserin aut Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study 2017 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 Neuroendocrine tumor (dpeaa)DE-He213 Information (dpeaa)DE-He213 Support (dpeaa)DE-He213 Web-based (dpeaa)DE-He213 Internet (dpeaa)DE-He213 de Hosson, Lotte D. verfasserin aut van Woerkom, Claudia E. verfasserin aut van Essen, Hennie verfasserin aut de Bock, Geertruida H. verfasserin aut Admiraal, Jolien M. verfasserin aut Reyners, Anna K. L. verfasserin aut Walenkamp, Annemiek M. E. verfasserin aut Enthalten in Supportive care in cancer Berlin : Springer, 1993 25(2017), 7 vom: 09. Feb., Seite 2075-2083 (DE-627)254909574 (DE-600)1463166-0 1433-7339 nnns volume:25 year:2017 number:7 day:09 month:02 pages:2075-2083 https://dx.doi.org/10.1007/s00520-017-3598-7 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2070 GBV_ILN_2086 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2116 GBV_ILN_2118 GBV_ILN_2119 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.81 ASE AR 25 2017 7 09 02 2075-2083 |
| allfieldsGer |
10.1007/s00520-017-3598-7 doi (DE-627)SPR006613322 (SPR)s00520-017-3598-7-e DE-627 ger DE-627 rakwb eng 610 ASE 44.81 bkl Bouma, Grietje verfasserin aut Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study 2017 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 Neuroendocrine tumor (dpeaa)DE-He213 Information (dpeaa)DE-He213 Support (dpeaa)DE-He213 Web-based (dpeaa)DE-He213 Internet (dpeaa)DE-He213 de Hosson, Lotte D. verfasserin aut van Woerkom, Claudia E. verfasserin aut van Essen, Hennie verfasserin aut de Bock, Geertruida H. verfasserin aut Admiraal, Jolien M. verfasserin aut Reyners, Anna K. L. verfasserin aut Walenkamp, Annemiek M. E. verfasserin aut Enthalten in Supportive care in cancer Berlin : Springer, 1993 25(2017), 7 vom: 09. Feb., Seite 2075-2083 (DE-627)254909574 (DE-600)1463166-0 1433-7339 nnns volume:25 year:2017 number:7 day:09 month:02 pages:2075-2083 https://dx.doi.org/10.1007/s00520-017-3598-7 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2070 GBV_ILN_2086 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2116 GBV_ILN_2118 GBV_ILN_2119 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.81 ASE AR 25 2017 7 09 02 2075-2083 |
| allfieldsSound |
10.1007/s00520-017-3598-7 doi (DE-627)SPR006613322 (SPR)s00520-017-3598-7-e DE-627 ger DE-627 rakwb eng 610 ASE 44.81 bkl Bouma, Grietje verfasserin aut Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study 2017 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 Neuroendocrine tumor (dpeaa)DE-He213 Information (dpeaa)DE-He213 Support (dpeaa)DE-He213 Web-based (dpeaa)DE-He213 Internet (dpeaa)DE-He213 de Hosson, Lotte D. verfasserin aut van Woerkom, Claudia E. verfasserin aut van Essen, Hennie verfasserin aut de Bock, Geertruida H. verfasserin aut Admiraal, Jolien M. verfasserin aut Reyners, Anna K. L. verfasserin aut Walenkamp, Annemiek M. E. verfasserin aut Enthalten in Supportive care in cancer Berlin : Springer, 1993 25(2017), 7 vom: 09. Feb., Seite 2075-2083 (DE-627)254909574 (DE-600)1463166-0 1433-7339 nnns volume:25 year:2017 number:7 day:09 month:02 pages:2075-2083 https://dx.doi.org/10.1007/s00520-017-3598-7 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2070 GBV_ILN_2086 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2116 GBV_ILN_2118 GBV_ILN_2119 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4012 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.81 ASE AR 25 2017 7 09 02 2075-2083 |
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English |
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Enthalten in Supportive care in cancer 25(2017), 7 vom: 09. Feb., Seite 2075-2083 volume:25 year:2017 number:7 day:09 month:02 pages:2075-2083 |
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Enthalten in Supportive care in cancer 25(2017), 7 vom: 09. Feb., Seite 2075-2083 volume:25 year:2017 number:7 day:09 month:02 pages:2075-2083 |
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Supportive care in cancer |
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Bouma, Grietje @@aut@@ de Hosson, Lotte D. @@aut@@ van Woerkom, Claudia E. @@aut@@ van Essen, Hennie @@aut@@ de Bock, Geertruida H. @@aut@@ Admiraal, Jolien M. @@aut@@ Reyners, Anna K. L. @@aut@@ Walenkamp, Annemiek M. E. @@aut@@ |
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Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. 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Bouma, Grietje |
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610 ASE 44.81 bkl Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study Neuroendocrine tumor (dpeaa)DE-He213 Information (dpeaa)DE-He213 Support (dpeaa)DE-He213 Web-based (dpeaa)DE-He213 Internet (dpeaa)DE-He213 |
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Bouma, Grietje de Hosson, Lotte D. van Woerkom, Claudia E. van Essen, Hennie de Bock, Geertruida H. Admiraal, Jolien M. Reyners, Anna K. L. Walenkamp, Annemiek M. E. |
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web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study |
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Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study |
| abstract |
Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 |
| abstractGer |
Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 |
| abstract_unstemmed |
Purpose Patients with a neuroendocrine tumor (NET) frequently experience physical and psychosocial complaints. Novel strategies to provide information to optimize supportive care in these patients are of interest. The aim of this study was to examine whether the use of a web-based system consisting of self-screening of problems and care needs, patient education, and self-referral to professional health care is feasible in NET patients and to evaluate their opinion on this. Methods Newly diagnosed NET patients were randomized between standard care (n = 10) or intervention with additional access to the web-based system (n = 10) during 12 weeks. Patients completed questionnaires regarding received information, distress, quality of life (QoL), and empowerment. The intervention group completed a semi-structured interview to assess patients’ opinion on the web-based system. Results The participation rate was 77% (20/26 invited patients) with no dropouts. The use of the web-based system had a negative effect on patients’ perception and satisfaction of received information (range Cohen’s d −0.88 to 0.13). Positive effects were found for distress (Cohen’s d 0.75), global QoL (subscale European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, Cohen’s d 0.46), resolving problems with social functioning and finding information (subscales EORTC QLQ-GINET 21, Cohen’s d 0.69, respectively, 1.04), and feeling informed (subscale empowerment questionnaire, Cohen’s d 0.51). The interview indicated that the web-based system was of additional value to standard care. Conclusions Use of this web-based system is feasible. Contradictory effects on informing and supporting NET patients were found and should be subject of further research. Trial registration NCT01849523 |
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Web-based information and support for patients with a newly diagnosed neuroendocrine tumor: a feasibility study |
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| score |
7.399946 |