Quality of life in caregivers of young children with Prader–Willi syndrome
Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF)....
Ausführliche Beschreibung
Gespeichert in:
| Autor*in: |
Mao, Shu-Jiong [verfasserIn] Shen, Jian [verfasserIn] Xu, Fang [verfasserIn] Zou, Chao-Chun [verfasserIn] |
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| Format: |
E-Artikel |
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| Sprache: |
Englisch |
| Erschienen: |
2019 |
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| Schlagwörter: |
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| Übergeordnetes Werk: |
Enthalten in: World Journal of Pediatrics - Springer-Verlag, 2008, 15(2019), 5 vom: 13. Sept., Seite 506-510 |
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| Übergeordnetes Werk: |
volume:15 ; year:2019 ; number:5 ; day:13 ; month:09 ; pages:506-510 |
| Links: |
|---|
| DOI / URN: |
10.1007/s12519-019-00311-w |
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SPR025998269 |
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| 520 | |a Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. | ||
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10.1007/s12519-019-00311-w doi (DE-627)SPR025998269 (SPR)s12519-019-00311-w-e DE-627 ger DE-627 rakwb eng Mao, Shu-Jiong verfasserin aut Quality of life in caregivers of young children with Prader–Willi syndrome 2019 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. Caregiver Prader–Willi syndrome (PWS) (dpeaa)DE-He213 Quality of life (QOL) (dpeaa)DE-He213 Social adaption (dpeaa)DE-He213 WHOQOL-BREF (dpeaa)DE-He213 Shen, Jian verfasserin aut Xu, Fang verfasserin aut Zou, Chao-Chun verfasserin aut Enthalten in World Journal of Pediatrics Springer-Verlag, 2008 15(2019), 5 vom: 13. Sept., Seite 506-510 (DE-627)SPR02598876X nnns volume:15 year:2019 number:5 day:13 month:09 pages:506-510 https://dx.doi.org/10.1007/s12519-019-00311-w lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_21 GBV_ILN_31 GBV_ILN_40 GBV_ILN_61 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_66 GBV_ILN_69 GBV_ILN_92 GBV_ILN_135 GBV_ILN_181 GBV_ILN_192 GBV_ILN_211 GBV_ILN_252 AR 15 2019 5 13 09 506-510 |
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10.1007/s12519-019-00311-w doi (DE-627)SPR025998269 (SPR)s12519-019-00311-w-e DE-627 ger DE-627 rakwb eng Mao, Shu-Jiong verfasserin aut Quality of life in caregivers of young children with Prader–Willi syndrome 2019 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. Caregiver Prader–Willi syndrome (PWS) (dpeaa)DE-He213 Quality of life (QOL) (dpeaa)DE-He213 Social adaption (dpeaa)DE-He213 WHOQOL-BREF (dpeaa)DE-He213 Shen, Jian verfasserin aut Xu, Fang verfasserin aut Zou, Chao-Chun verfasserin aut Enthalten in World Journal of Pediatrics Springer-Verlag, 2008 15(2019), 5 vom: 13. Sept., Seite 506-510 (DE-627)SPR02598876X nnns volume:15 year:2019 number:5 day:13 month:09 pages:506-510 https://dx.doi.org/10.1007/s12519-019-00311-w lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_21 GBV_ILN_31 GBV_ILN_40 GBV_ILN_61 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_66 GBV_ILN_69 GBV_ILN_92 GBV_ILN_135 GBV_ILN_181 GBV_ILN_192 GBV_ILN_211 GBV_ILN_252 AR 15 2019 5 13 09 506-510 |
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10.1007/s12519-019-00311-w doi (DE-627)SPR025998269 (SPR)s12519-019-00311-w-e DE-627 ger DE-627 rakwb eng Mao, Shu-Jiong verfasserin aut Quality of life in caregivers of young children with Prader–Willi syndrome 2019 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. Caregiver Prader–Willi syndrome (PWS) (dpeaa)DE-He213 Quality of life (QOL) (dpeaa)DE-He213 Social adaption (dpeaa)DE-He213 WHOQOL-BREF (dpeaa)DE-He213 Shen, Jian verfasserin aut Xu, Fang verfasserin aut Zou, Chao-Chun verfasserin aut Enthalten in World Journal of Pediatrics Springer-Verlag, 2008 15(2019), 5 vom: 13. Sept., Seite 506-510 (DE-627)SPR02598876X nnns volume:15 year:2019 number:5 day:13 month:09 pages:506-510 https://dx.doi.org/10.1007/s12519-019-00311-w lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_21 GBV_ILN_31 GBV_ILN_40 GBV_ILN_61 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_66 GBV_ILN_69 GBV_ILN_92 GBV_ILN_135 GBV_ILN_181 GBV_ILN_192 GBV_ILN_211 GBV_ILN_252 AR 15 2019 5 13 09 506-510 |
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10.1007/s12519-019-00311-w doi (DE-627)SPR025998269 (SPR)s12519-019-00311-w-e DE-627 ger DE-627 rakwb eng Mao, Shu-Jiong verfasserin aut Quality of life in caregivers of young children with Prader–Willi syndrome 2019 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. Caregiver Prader–Willi syndrome (PWS) (dpeaa)DE-He213 Quality of life (QOL) (dpeaa)DE-He213 Social adaption (dpeaa)DE-He213 WHOQOL-BREF (dpeaa)DE-He213 Shen, Jian verfasserin aut Xu, Fang verfasserin aut Zou, Chao-Chun verfasserin aut Enthalten in World Journal of Pediatrics Springer-Verlag, 2008 15(2019), 5 vom: 13. Sept., Seite 506-510 (DE-627)SPR02598876X nnns volume:15 year:2019 number:5 day:13 month:09 pages:506-510 https://dx.doi.org/10.1007/s12519-019-00311-w lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_21 GBV_ILN_31 GBV_ILN_40 GBV_ILN_61 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_66 GBV_ILN_69 GBV_ILN_92 GBV_ILN_135 GBV_ILN_181 GBV_ILN_192 GBV_ILN_211 GBV_ILN_252 AR 15 2019 5 13 09 506-510 |
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10.1007/s12519-019-00311-w doi (DE-627)SPR025998269 (SPR)s12519-019-00311-w-e DE-627 ger DE-627 rakwb eng Mao, Shu-Jiong verfasserin aut Quality of life in caregivers of young children with Prader–Willi syndrome 2019 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. Caregiver Prader–Willi syndrome (PWS) (dpeaa)DE-He213 Quality of life (QOL) (dpeaa)DE-He213 Social adaption (dpeaa)DE-He213 WHOQOL-BREF (dpeaa)DE-He213 Shen, Jian verfasserin aut Xu, Fang verfasserin aut Zou, Chao-Chun verfasserin aut Enthalten in World Journal of Pediatrics Springer-Verlag, 2008 15(2019), 5 vom: 13. Sept., Seite 506-510 (DE-627)SPR02598876X nnns volume:15 year:2019 number:5 day:13 month:09 pages:506-510 https://dx.doi.org/10.1007/s12519-019-00311-w lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_21 GBV_ILN_31 GBV_ILN_40 GBV_ILN_61 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_66 GBV_ILN_69 GBV_ILN_92 GBV_ILN_135 GBV_ILN_181 GBV_ILN_192 GBV_ILN_211 GBV_ILN_252 AR 15 2019 5 13 09 506-510 |
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Quality of life in caregivers of young children with Prader–Willi syndrome |
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Quality of life in caregivers of young children with Prader–Willi syndrome |
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Mao, Shu-Jiong |
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Mao, Shu-Jiong Shen, Jian Xu, Fang Zou, Chao-Chun |
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quality of life in caregivers of young children with prader–willi syndrome |
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Quality of life in caregivers of young children with Prader–Willi syndrome |
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Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. |
| abstractGer |
Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. |
| abstract_unstemmed |
Background This study aimed to measure quality of life (QOL) in primary caregivers of young childrenwith Prader–Willi syndrome (PWS). Methods The caregivers of 32 children aged from 6.1 to 71.2 months completed the Chinese version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF). We also evaluated the social adaption capacity of these children with Infants-Junior Middle School Students’ Social-Life Abilities Scale. Correlation test was used to explore the related factors to caregivers’ QOL. Results Caregivers of young children with PWS had significantly lower QOL. The correlation analyses revealed that caregivers' QOL was lower in children with young age, combined diseases or symptoms or poor social adaption, or caregivers having concerns about the child. Conclusions Rearing a chilld with PWS may lead to decreased QOL. Psychological status of caregivers should be highlighted and social support should be given to families with PWS children. |
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Quality of life in caregivers of young children with Prader–Willi syndrome |
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