Challenges to optimal rheumatology care: a patient-centered focus group study

Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting. Ausführliche Beschreibung

Gespeichert in:

Autor*in:	Dollinger, J. [verfasserIn] Neville, C. [verfasserIn] Pineau, C. A. [verfasserIn] Vinet, E. [verfasserIn] Hazel, E. [verfasserIn] Lee, J. L. F. [verfasserIn] Bernatsky, S. [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2020

Schlagwörter:	Focus group Inflammatory arthritis Optimal care Rheumatology

Übergeordnetes Werk:	Enthalten in: Clinical rheumatology - London : Springer, 1982, 39(2020), 10 vom: 25. Apr., Seite 3083-3090
Übergeordnetes Werk:	volume:39 ; year:2020 ; number:10 ; day:25 ; month:04 ; pages:3083-3090

Links:	Volltext

DOI / URN:	10.1007/s10067-020-05091-7

Katalog-ID:	SPR040952819

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520			\|a Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting.
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author_variant	j d jd c n cn c a p ca cap e v ev e h eh j l f l jlf jlfl s b sb
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allfields	10.1007/s10067-020-05091-7 doi (DE-627)SPR040952819 (SPR)s10067-020-05091-7-e DE-627 ger DE-627 rakwb eng 610 ASE 610 ASE 44.00 bkl 44.83 bkl Dollinger, J. verfasserin aut Challenges to optimal rheumatology care: a patient-centered focus group study 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting. Focus group (dpeaa)DE-He213 Inflammatory arthritis (dpeaa)DE-He213 Optimal care (dpeaa)DE-He213 Rheumatology (dpeaa)DE-He213 Neville, C. verfasserin aut Pineau, C. A. verfasserin aut Vinet, E. verfasserin aut Hazel, E. verfasserin aut Lee, J. L. F. verfasserin aut Bernatsky, S. verfasserin aut Enthalten in Clinical rheumatology London : Springer, 1982 39(2020), 10 vom: 25. Apr., Seite 3083-3090 (DE-627)27159909X (DE-600)1480901-1 1434-9949 nnns volume:39 year:2020 number:10 day:25 month:04 pages:3083-3090 https://dx.doi.org/10.1007/s10067-020-05091-7 lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_711 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4328 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.00 ASE 44.83 ASE AR 39 2020 10 25 04 3083-3090
spelling	10.1007/s10067-020-05091-7 doi (DE-627)SPR040952819 (SPR)s10067-020-05091-7-e DE-627 ger DE-627 rakwb eng 610 ASE 610 ASE 44.00 bkl 44.83 bkl Dollinger, J. verfasserin aut Challenges to optimal rheumatology care: a patient-centered focus group study 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting. Focus group (dpeaa)DE-He213 Inflammatory arthritis (dpeaa)DE-He213 Optimal care (dpeaa)DE-He213 Rheumatology (dpeaa)DE-He213 Neville, C. verfasserin aut Pineau, C. A. verfasserin aut Vinet, E. verfasserin aut Hazel, E. verfasserin aut Lee, J. L. F. verfasserin aut Bernatsky, S. verfasserin aut Enthalten in Clinical rheumatology London : Springer, 1982 39(2020), 10 vom: 25. Apr., Seite 3083-3090 (DE-627)27159909X (DE-600)1480901-1 1434-9949 nnns volume:39 year:2020 number:10 day:25 month:04 pages:3083-3090 https://dx.doi.org/10.1007/s10067-020-05091-7 lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_711 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4328 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.00 ASE 44.83 ASE AR 39 2020 10 25 04 3083-3090
allfields_unstemmed	10.1007/s10067-020-05091-7 doi (DE-627)SPR040952819 (SPR)s10067-020-05091-7-e DE-627 ger DE-627 rakwb eng 610 ASE 610 ASE 44.00 bkl 44.83 bkl Dollinger, J. verfasserin aut Challenges to optimal rheumatology care: a patient-centered focus group study 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting. Focus group (dpeaa)DE-He213 Inflammatory arthritis (dpeaa)DE-He213 Optimal care (dpeaa)DE-He213 Rheumatology (dpeaa)DE-He213 Neville, C. verfasserin aut Pineau, C. A. verfasserin aut Vinet, E. verfasserin aut Hazel, E. verfasserin aut Lee, J. L. F. verfasserin aut Bernatsky, S. verfasserin aut Enthalten in Clinical rheumatology London : Springer, 1982 39(2020), 10 vom: 25. Apr., Seite 3083-3090 (DE-627)27159909X (DE-600)1480901-1 1434-9949 nnns volume:39 year:2020 number:10 day:25 month:04 pages:3083-3090 https://dx.doi.org/10.1007/s10067-020-05091-7 lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_711 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4328 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.00 ASE 44.83 ASE AR 39 2020 10 25 04 3083-3090
allfieldsGer	10.1007/s10067-020-05091-7 doi (DE-627)SPR040952819 (SPR)s10067-020-05091-7-e DE-627 ger DE-627 rakwb eng 610 ASE 610 ASE 44.00 bkl 44.83 bkl Dollinger, J. verfasserin aut Challenges to optimal rheumatology care: a patient-centered focus group study 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting. Focus group (dpeaa)DE-He213 Inflammatory arthritis (dpeaa)DE-He213 Optimal care (dpeaa)DE-He213 Rheumatology (dpeaa)DE-He213 Neville, C. verfasserin aut Pineau, C. A. verfasserin aut Vinet, E. verfasserin aut Hazel, E. verfasserin aut Lee, J. L. F. verfasserin aut Bernatsky, S. verfasserin aut Enthalten in Clinical rheumatology London : Springer, 1982 39(2020), 10 vom: 25. Apr., Seite 3083-3090 (DE-627)27159909X (DE-600)1480901-1 1434-9949 nnns volume:39 year:2020 number:10 day:25 month:04 pages:3083-3090 https://dx.doi.org/10.1007/s10067-020-05091-7 lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_711 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4328 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.00 ASE 44.83 ASE AR 39 2020 10 25 04 3083-3090
allfieldsSound	10.1007/s10067-020-05091-7 doi (DE-627)SPR040952819 (SPR)s10067-020-05091-7-e DE-627 ger DE-627 rakwb eng 610 ASE 610 ASE 44.00 bkl 44.83 bkl Dollinger, J. verfasserin aut Challenges to optimal rheumatology care: a patient-centered focus group study 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting. Focus group (dpeaa)DE-He213 Inflammatory arthritis (dpeaa)DE-He213 Optimal care (dpeaa)DE-He213 Rheumatology (dpeaa)DE-He213 Neville, C. verfasserin aut Pineau, C. A. verfasserin aut Vinet, E. verfasserin aut Hazel, E. verfasserin aut Lee, J. L. F. verfasserin aut Bernatsky, S. verfasserin aut Enthalten in Clinical rheumatology London : Springer, 1982 39(2020), 10 vom: 25. Apr., Seite 3083-3090 (DE-627)27159909X (DE-600)1480901-1 1434-9949 nnns volume:39 year:2020 number:10 day:25 month:04 pages:3083-3090 https://dx.doi.org/10.1007/s10067-020-05091-7 lizenzpflichtig Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_32 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_69 GBV_ILN_70 GBV_ILN_73 GBV_ILN_74 GBV_ILN_90 GBV_ILN_95 GBV_ILN_100 GBV_ILN_101 GBV_ILN_105 GBV_ILN_110 GBV_ILN_120 GBV_ILN_138 GBV_ILN_150 GBV_ILN_151 GBV_ILN_152 GBV_ILN_161 GBV_ILN_170 GBV_ILN_171 GBV_ILN_187 GBV_ILN_213 GBV_ILN_224 GBV_ILN_230 GBV_ILN_250 GBV_ILN_267 GBV_ILN_281 GBV_ILN_285 GBV_ILN_293 GBV_ILN_370 GBV_ILN_602 GBV_ILN_636 GBV_ILN_702 GBV_ILN_711 GBV_ILN_2001 GBV_ILN_2003 GBV_ILN_2004 GBV_ILN_2005 GBV_ILN_2006 GBV_ILN_2007 GBV_ILN_2008 GBV_ILN_2009 GBV_ILN_2010 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2015 GBV_ILN_2020 GBV_ILN_2021 GBV_ILN_2025 GBV_ILN_2026 GBV_ILN_2027 GBV_ILN_2031 GBV_ILN_2034 GBV_ILN_2037 GBV_ILN_2038 GBV_ILN_2039 GBV_ILN_2044 GBV_ILN_2048 GBV_ILN_2049 GBV_ILN_2050 GBV_ILN_2055 GBV_ILN_2056 GBV_ILN_2057 GBV_ILN_2059 GBV_ILN_2061 GBV_ILN_2064 GBV_ILN_2065 GBV_ILN_2068 GBV_ILN_2088 GBV_ILN_2093 GBV_ILN_2106 GBV_ILN_2107 GBV_ILN_2108 GBV_ILN_2110 GBV_ILN_2111 GBV_ILN_2112 GBV_ILN_2113 GBV_ILN_2118 GBV_ILN_2122 GBV_ILN_2129 GBV_ILN_2143 GBV_ILN_2144 GBV_ILN_2147 GBV_ILN_2148 GBV_ILN_2152 GBV_ILN_2153 GBV_ILN_2188 GBV_ILN_2190 GBV_ILN_2232 GBV_ILN_2336 GBV_ILN_2446 GBV_ILN_2470 GBV_ILN_2472 GBV_ILN_2507 GBV_ILN_2522 GBV_ILN_2548 GBV_ILN_4035 GBV_ILN_4037 GBV_ILN_4046 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4242 GBV_ILN_4246 GBV_ILN_4249 GBV_ILN_4251 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4326 GBV_ILN_4328 GBV_ILN_4333 GBV_ILN_4334 GBV_ILN_4335 GBV_ILN_4336 GBV_ILN_4338 GBV_ILN_4393 GBV_ILN_4700 44.00 ASE 44.83 ASE AR 39 2020 10 25 04 3083-3090
language	English
source	Enthalten in Clinical rheumatology 39(2020), 10 vom: 25. Apr., Seite 3083-3090 volume:39 year:2020 number:10 day:25 month:04 pages:3083-3090
sourceStr	Enthalten in Clinical rheumatology 39(2020), 10 vom: 25. Apr., Seite 3083-3090 volume:39 year:2020 number:10 day:25 month:04 pages:3083-3090
format_phy_str_mv	Article
institution	findex.gbv.de
topic_facet	Focus group Inflammatory arthritis Optimal care Rheumatology
dewey-raw	610
isfreeaccess_bool	false
container_title	Clinical rheumatology
authorswithroles_txt_mv	Dollinger, J. @@aut@@ Neville, C. @@aut@@ Pineau, C. A. @@aut@@ Vinet, E. @@aut@@ Hazel, E. @@aut@@ Lee, J. L. F. @@aut@@ Bernatsky, S. @@aut@@
publishDateDaySort_date	2020-04-25T00:00:00Z
hierarchy_top_id	27159909X
dewey-sort	3610
id	SPR040952819
language_de	englisch
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Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. 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author	Dollinger, J.
spellingShingle	Dollinger, J. ddc 610 bkl 44.00 bkl 44.83 misc Focus group misc Inflammatory arthritis misc Optimal care misc Rheumatology Challenges to optimal rheumatology care: a patient-centered focus group study
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topic_title	610 ASE 44.00 bkl 44.83 bkl Challenges to optimal rheumatology care: a patient-centered focus group study Focus group (dpeaa)DE-He213 Inflammatory arthritis (dpeaa)DE-He213 Optimal care (dpeaa)DE-He213 Rheumatology (dpeaa)DE-He213
topic	ddc 610 bkl 44.00 bkl 44.83 misc Focus group misc Inflammatory arthritis misc Optimal care misc Rheumatology
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title	Challenges to optimal rheumatology care: a patient-centered focus group study
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title_full	Challenges to optimal rheumatology care: a patient-centered focus group study
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author_browse	Dollinger, J. Neville, C. Pineau, C. A. Vinet, E. Hazel, E. Lee, J. L. F. Bernatsky, S.
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title_sort	challenges to optimal rheumatology care: a patient-centered focus group study
title_auth	Challenges to optimal rheumatology care: a patient-centered focus group study
abstract	Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting.
abstractGer	Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting.
abstract_unstemmed	Objective To assess challenges to optimal rheumatology care from the perspective of patients served by our institution’s rheumatology division. Design setting and participants Focus group study of adult rheumatic disease patients who attend clinics at a university teaching hospital in Montreal, Canada. Interventions Individuals participated in 1-h focus group discussions concerning their experiences and beliefs regarding rheumatology care. Sessions were recorded and transcripts generated. A thematic analysis approach was used by two individual analyzers. Main outcome measures and results Eighteen patients participated in three focus groups (group one = 8 patients; group two = 5; group three = 5). Eleven patients had systemic lupus erythematosus, 6 had rheumatoid arthritis, and 1 patient had psoriatic arthritis. The average age (standard deviation) was 51.2 (14.0) years, disease duration 23.5 (14.5) years, and in the majority had at least a high school education. All participants were female and 72.2% were Caucasian. Three main themes emerged: theme 1 identified patients’ needs for information and support, at diagnosis and throughout the disease trajectory; theme 2 identified barriers to accessing health care: theme 3 identified patients’ beliefs regarding improvements needed to optimize their experiences throughout the disease course. Conclusions Our focus group study not only clarified the needs of rheumatology patients with chronic inflammatory disease, and identified barriers to optimal rheumatology care, but also was a source of recommendations that might improve patient experiences in seeking health care in a rheumatology setting. Limitations include the fact that our participants were all female, and mostly were middle aged, Caucasian and well educated. Regardless, the findings can help inform efforts to improve rheumatology care.Key Points• Our focus group study clarified the needs of chronic inflammatory rheumatic disease, and identified barriers to optimal rheumatology care.• Despite some potential limitations, our work provides recommendations that could improve patient experiences when seeking health care in a rheumatology setting.
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container_issue	10
title_short	Challenges to optimal rheumatology care: a patient-centered focus group study
url	https://dx.doi.org/10.1007/s10067-020-05091-7
remote_bool	true
author2	Neville, C. Pineau, C. A. Vinet, E. Hazel, E. Lee, J. L. F. Bernatsky, S.
author2Str	Neville, C. Pineau, C. A. Vinet, E. Hazel, E. Lee, J. L. F. Bernatsky, S.
ppnlink	27159909X
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doi_str	10.1007/s10067-020-05091-7
up_date	2024-07-03T19:19:14.041Z
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Challenges to optimal rheumatology care: a patient-centered focus group study

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