Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences

Background Self-monitoring has been shown to improve the self-management and treatment of patients with bipolar disorder. However, current self-monitoring methods are limited to once-daily retrospectively assessed mood, which may not suit the rapid mood fluctuations in bipolar disorder. The experience sampling method (ESM), which assesses mood in real-time several times a day, may overcome these limitations. This study set out to assess the experiences of patients and clinicians with the addition of ESM monitoring, real-time alerts, and personalized feedback to clinical care. Participants were twenty patients with bipolar disorder type I/II and their clinicians. For four months, patients completed five ESM assessments per day on mood, symptoms, and activities. Weekly symptom questionnaires alerted patients and clinicians to potential episodes. After the monitoring, a personalized feedback report based on the patient’s data was discussed between patient and clinician. Three months later, patient and clinician were both interviewed. Results Thematic analysis of the transcripts resulted in four themes: perceived effects of the monitoring, alerts, and feedback, and recommendations for implementation of ESM. ESM was perceived as helping patients to cope better with their disorder by increasing awareness, offering new insights, and encouraging life style adjustments. ESM was further believed to facilitate communication between patient and clinician and to lead to new treatment directions. However, high assessment burden and pre-occupation with negative mood and having a disorder were also described. Patients and clinicians advocated for increased personalization and embedding of ESM in care. Conclusions This study demonstrates that long-term ESM monitoring, alerts, and personalized feedback are perceived as beneficial to the treatment and self-management of patients with bipolar disorder. Future research should further test the clinical utility of ESM. Clinically relevant feedback and technology need to be developed to enable personalized integration of ESM in clinical care. Ausführliche Beschreibung

Gespeichert in:

Autor*in:	Bos, Fionneke M. [verfasserIn] Snippe, Evelien [verfasserIn] Bruggeman, Richard [verfasserIn] Doornbos, Bennard [verfasserIn] Wichers, Marieke [verfasserIn] van der Krieke, Lian [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2020

Schlagwörter:	Experience sampling method Ecological momentary assessment Bipolar disorder Self-monitoring Implementation Personalized feedback Qualitative research

Übergeordnetes Werk:	Enthalten in: International Journal of Bipolar Disorders - Berlin : Springer, 2013, 8(2020), 1 vom: 01. Dez.
Übergeordnetes Werk:	volume:8 ; year:2020 ; number:1 ; day:01 ; month:12

Links:	Volltext

DOI / URN:	10.1186/s40345-020-00201-5

Katalog-ID:	SPR042203279

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spelling	10.1186/s40345-020-00201-5 doi (DE-627)SPR042203279 (SPR)s40345-020-00201-5-e DE-627 ger DE-627 rakwb eng 610 ASE Bos, Fionneke M. verfasserin aut Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background Self-monitoring has been shown to improve the self-management and treatment of patients with bipolar disorder. However, current self-monitoring methods are limited to once-daily retrospectively assessed mood, which may not suit the rapid mood fluctuations in bipolar disorder. The experience sampling method (ESM), which assesses mood in real-time several times a day, may overcome these limitations. This study set out to assess the experiences of patients and clinicians with the addition of ESM monitoring, real-time alerts, and personalized feedback to clinical care. Participants were twenty patients with bipolar disorder type I/II and their clinicians. For four months, patients completed five ESM assessments per day on mood, symptoms, and activities. Weekly symptom questionnaires alerted patients and clinicians to potential episodes. After the monitoring, a personalized feedback report based on the patient’s data was discussed between patient and clinician. Three months later, patient and clinician were both interviewed. Results Thematic analysis of the transcripts resulted in four themes: perceived effects of the monitoring, alerts, and feedback, and recommendations for implementation of ESM. ESM was perceived as helping patients to cope better with their disorder by increasing awareness, offering new insights, and encouraging life style adjustments. ESM was further believed to facilitate communication between patient and clinician and to lead to new treatment directions. However, high assessment burden and pre-occupation with negative mood and having a disorder were also described. Patients and clinicians advocated for increased personalization and embedding of ESM in care. Conclusions This study demonstrates that long-term ESM monitoring, alerts, and personalized feedback are perceived as beneficial to the treatment and self-management of patients with bipolar disorder. Future research should further test the clinical utility of ESM. Clinically relevant feedback and technology need to be developed to enable personalized integration of ESM in clinical care. Experience sampling method (dpeaa)DE-He213 Ecological momentary assessment (dpeaa)DE-He213 Bipolar disorder (dpeaa)DE-He213 Self-monitoring (dpeaa)DE-He213 Implementation (dpeaa)DE-He213 Personalized feedback (dpeaa)DE-He213 Qualitative research (dpeaa)DE-He213 Snippe, Evelien verfasserin aut Bruggeman, Richard verfasserin aut Doornbos, Bennard verfasserin aut Wichers, Marieke verfasserin aut van der Krieke, Lian verfasserin aut Enthalten in International Journal of Bipolar Disorders Berlin : Springer, 2013 8(2020), 1 vom: 01. Dez. (DE-627)768094763 (DE-600)2732954-9 2194-7511 nnns volume:8 year:2020 number:1 day:01 month:12 https://dx.doi.org/10.1186/s40345-020-00201-5 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 8 2020 1 01 12
allfields_unstemmed	10.1186/s40345-020-00201-5 doi (DE-627)SPR042203279 (SPR)s40345-020-00201-5-e DE-627 ger DE-627 rakwb eng 610 ASE Bos, Fionneke M. verfasserin aut Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background Self-monitoring has been shown to improve the self-management and treatment of patients with bipolar disorder. However, current self-monitoring methods are limited to once-daily retrospectively assessed mood, which may not suit the rapid mood fluctuations in bipolar disorder. The experience sampling method (ESM), which assesses mood in real-time several times a day, may overcome these limitations. This study set out to assess the experiences of patients and clinicians with the addition of ESM monitoring, real-time alerts, and personalized feedback to clinical care. Participants were twenty patients with bipolar disorder type I/II and their clinicians. For four months, patients completed five ESM assessments per day on mood, symptoms, and activities. Weekly symptom questionnaires alerted patients and clinicians to potential episodes. After the monitoring, a personalized feedback report based on the patient’s data was discussed between patient and clinician. Three months later, patient and clinician were both interviewed. Results Thematic analysis of the transcripts resulted in four themes: perceived effects of the monitoring, alerts, and feedback, and recommendations for implementation of ESM. ESM was perceived as helping patients to cope better with their disorder by increasing awareness, offering new insights, and encouraging life style adjustments. ESM was further believed to facilitate communication between patient and clinician and to lead to new treatment directions. However, high assessment burden and pre-occupation with negative mood and having a disorder were also described. Patients and clinicians advocated for increased personalization and embedding of ESM in care. Conclusions This study demonstrates that long-term ESM monitoring, alerts, and personalized feedback are perceived as beneficial to the treatment and self-management of patients with bipolar disorder. Future research should further test the clinical utility of ESM. Clinically relevant feedback and technology need to be developed to enable personalized integration of ESM in clinical care. Experience sampling method (dpeaa)DE-He213 Ecological momentary assessment (dpeaa)DE-He213 Bipolar disorder (dpeaa)DE-He213 Self-monitoring (dpeaa)DE-He213 Implementation (dpeaa)DE-He213 Personalized feedback (dpeaa)DE-He213 Qualitative research (dpeaa)DE-He213 Snippe, Evelien verfasserin aut Bruggeman, Richard verfasserin aut Doornbos, Bennard verfasserin aut Wichers, Marieke verfasserin aut van der Krieke, Lian verfasserin aut Enthalten in International Journal of Bipolar Disorders Berlin : Springer, 2013 8(2020), 1 vom: 01. Dez. (DE-627)768094763 (DE-600)2732954-9 2194-7511 nnns volume:8 year:2020 number:1 day:01 month:12 https://dx.doi.org/10.1186/s40345-020-00201-5 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 8 2020 1 01 12
allfieldsGer	10.1186/s40345-020-00201-5 doi (DE-627)SPR042203279 (SPR)s40345-020-00201-5-e DE-627 ger DE-627 rakwb eng 610 ASE Bos, Fionneke M. verfasserin aut Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background Self-monitoring has been shown to improve the self-management and treatment of patients with bipolar disorder. However, current self-monitoring methods are limited to once-daily retrospectively assessed mood, which may not suit the rapid mood fluctuations in bipolar disorder. The experience sampling method (ESM), which assesses mood in real-time several times a day, may overcome these limitations. This study set out to assess the experiences of patients and clinicians with the addition of ESM monitoring, real-time alerts, and personalized feedback to clinical care. Participants were twenty patients with bipolar disorder type I/II and their clinicians. For four months, patients completed five ESM assessments per day on mood, symptoms, and activities. Weekly symptom questionnaires alerted patients and clinicians to potential episodes. After the monitoring, a personalized feedback report based on the patient’s data was discussed between patient and clinician. Three months later, patient and clinician were both interviewed. Results Thematic analysis of the transcripts resulted in four themes: perceived effects of the monitoring, alerts, and feedback, and recommendations for implementation of ESM. ESM was perceived as helping patients to cope better with their disorder by increasing awareness, offering new insights, and encouraging life style adjustments. ESM was further believed to facilitate communication between patient and clinician and to lead to new treatment directions. However, high assessment burden and pre-occupation with negative mood and having a disorder were also described. Patients and clinicians advocated for increased personalization and embedding of ESM in care. Conclusions This study demonstrates that long-term ESM monitoring, alerts, and personalized feedback are perceived as beneficial to the treatment and self-management of patients with bipolar disorder. Future research should further test the clinical utility of ESM. Clinically relevant feedback and technology need to be developed to enable personalized integration of ESM in clinical care. Experience sampling method (dpeaa)DE-He213 Ecological momentary assessment (dpeaa)DE-He213 Bipolar disorder (dpeaa)DE-He213 Self-monitoring (dpeaa)DE-He213 Implementation (dpeaa)DE-He213 Personalized feedback (dpeaa)DE-He213 Qualitative research (dpeaa)DE-He213 Snippe, Evelien verfasserin aut Bruggeman, Richard verfasserin aut Doornbos, Bennard verfasserin aut Wichers, Marieke verfasserin aut van der Krieke, Lian verfasserin aut Enthalten in International Journal of Bipolar Disorders Berlin : Springer, 2013 8(2020), 1 vom: 01. Dez. (DE-627)768094763 (DE-600)2732954-9 2194-7511 nnns volume:8 year:2020 number:1 day:01 month:12 https://dx.doi.org/10.1186/s40345-020-00201-5 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 8 2020 1 01 12
allfieldsSound	10.1186/s40345-020-00201-5 doi (DE-627)SPR042203279 (SPR)s40345-020-00201-5-e DE-627 ger DE-627 rakwb eng 610 ASE Bos, Fionneke M. verfasserin aut Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences 2020 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier Background Self-monitoring has been shown to improve the self-management and treatment of patients with bipolar disorder. However, current self-monitoring methods are limited to once-daily retrospectively assessed mood, which may not suit the rapid mood fluctuations in bipolar disorder. The experience sampling method (ESM), which assesses mood in real-time several times a day, may overcome these limitations. This study set out to assess the experiences of patients and clinicians with the addition of ESM monitoring, real-time alerts, and personalized feedback to clinical care. Participants were twenty patients with bipolar disorder type I/II and their clinicians. For four months, patients completed five ESM assessments per day on mood, symptoms, and activities. Weekly symptom questionnaires alerted patients and clinicians to potential episodes. After the monitoring, a personalized feedback report based on the patient’s data was discussed between patient and clinician. Three months later, patient and clinician were both interviewed. Results Thematic analysis of the transcripts resulted in four themes: perceived effects of the monitoring, alerts, and feedback, and recommendations for implementation of ESM. ESM was perceived as helping patients to cope better with their disorder by increasing awareness, offering new insights, and encouraging life style adjustments. ESM was further believed to facilitate communication between patient and clinician and to lead to new treatment directions. However, high assessment burden and pre-occupation with negative mood and having a disorder were also described. Patients and clinicians advocated for increased personalization and embedding of ESM in care. Conclusions This study demonstrates that long-term ESM monitoring, alerts, and personalized feedback are perceived as beneficial to the treatment and self-management of patients with bipolar disorder. Future research should further test the clinical utility of ESM. Clinically relevant feedback and technology need to be developed to enable personalized integration of ESM in clinical care. Experience sampling method (dpeaa)DE-He213 Ecological momentary assessment (dpeaa)DE-He213 Bipolar disorder (dpeaa)DE-He213 Self-monitoring (dpeaa)DE-He213 Implementation (dpeaa)DE-He213 Personalized feedback (dpeaa)DE-He213 Qualitative research (dpeaa)DE-He213 Snippe, Evelien verfasserin aut Bruggeman, Richard verfasserin aut Doornbos, Bennard verfasserin aut Wichers, Marieke verfasserin aut van der Krieke, Lian verfasserin aut Enthalten in International Journal of Bipolar Disorders Berlin : Springer, 2013 8(2020), 1 vom: 01. Dez. (DE-627)768094763 (DE-600)2732954-9 2194-7511 nnns volume:8 year:2020 number:1 day:01 month:12 https://dx.doi.org/10.1186/s40345-020-00201-5 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER SSG-OLC-PHA GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_31 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_602 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 8 2020 1 01 12
language	English
source	Enthalten in International Journal of Bipolar Disorders 8(2020), 1 vom: 01. Dez. volume:8 year:2020 number:1 day:01 month:12
sourceStr	Enthalten in International Journal of Bipolar Disorders 8(2020), 1 vom: 01. Dez. volume:8 year:2020 number:1 day:01 month:12
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topic_facet	Experience sampling method Ecological momentary assessment Bipolar disorder Self-monitoring Implementation Personalized feedback Qualitative research
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author	Bos, Fionneke M.
spellingShingle	Bos, Fionneke M. ddc 610 misc Experience sampling method misc Ecological momentary assessment misc Bipolar disorder misc Self-monitoring misc Implementation misc Personalized feedback misc Qualitative research Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences
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topic_title	610 ASE Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences Experience sampling method (dpeaa)DE-He213 Ecological momentary assessment (dpeaa)DE-He213 Bipolar disorder (dpeaa)DE-He213 Self-monitoring (dpeaa)DE-He213 Implementation (dpeaa)DE-He213 Personalized feedback (dpeaa)DE-He213 Qualitative research (dpeaa)DE-He213
topic	ddc 610 misc Experience sampling method misc Ecological momentary assessment misc Bipolar disorder misc Self-monitoring misc Implementation misc Personalized feedback misc Qualitative research
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topic_browse	ddc 610 misc Experience sampling method misc Ecological momentary assessment misc Bipolar disorder misc Self-monitoring misc Implementation misc Personalized feedback misc Qualitative research
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hierarchy_parent_title	International Journal of Bipolar Disorders
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title	Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences
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title_full	Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences
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journal	International Journal of Bipolar Disorders
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author_browse	Bos, Fionneke M. Snippe, Evelien Bruggeman, Richard Doornbos, Bennard Wichers, Marieke van der Krieke, Lian
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doi_str_mv	10.1186/s40345-020-00201-5
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title_sort	recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences
title_auth	Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences
abstract	Background Self-monitoring has been shown to improve the self-management and treatment of patients with bipolar disorder. However, current self-monitoring methods are limited to once-daily retrospectively assessed mood, which may not suit the rapid mood fluctuations in bipolar disorder. The experience sampling method (ESM), which assesses mood in real-time several times a day, may overcome these limitations. This study set out to assess the experiences of patients and clinicians with the addition of ESM monitoring, real-time alerts, and personalized feedback to clinical care. Participants were twenty patients with bipolar disorder type I/II and their clinicians. For four months, patients completed five ESM assessments per day on mood, symptoms, and activities. Weekly symptom questionnaires alerted patients and clinicians to potential episodes. After the monitoring, a personalized feedback report based on the patient’s data was discussed between patient and clinician. Three months later, patient and clinician were both interviewed. Results Thematic analysis of the transcripts resulted in four themes: perceived effects of the monitoring, alerts, and feedback, and recommendations for implementation of ESM. ESM was perceived as helping patients to cope better with their disorder by increasing awareness, offering new insights, and encouraging life style adjustments. ESM was further believed to facilitate communication between patient and clinician and to lead to new treatment directions. However, high assessment burden and pre-occupation with negative mood and having a disorder were also described. Patients and clinicians advocated for increased personalization and embedding of ESM in care. Conclusions This study demonstrates that long-term ESM monitoring, alerts, and personalized feedback are perceived as beneficial to the treatment and self-management of patients with bipolar disorder. Future research should further test the clinical utility of ESM. Clinically relevant feedback and technology need to be developed to enable personalized integration of ESM in clinical care.
abstractGer	Background Self-monitoring has been shown to improve the self-management and treatment of patients with bipolar disorder. However, current self-monitoring methods are limited to once-daily retrospectively assessed mood, which may not suit the rapid mood fluctuations in bipolar disorder. The experience sampling method (ESM), which assesses mood in real-time several times a day, may overcome these limitations. This study set out to assess the experiences of patients and clinicians with the addition of ESM monitoring, real-time alerts, and personalized feedback to clinical care. Participants were twenty patients with bipolar disorder type I/II and their clinicians. For four months, patients completed five ESM assessments per day on mood, symptoms, and activities. Weekly symptom questionnaires alerted patients and clinicians to potential episodes. After the monitoring, a personalized feedback report based on the patient’s data was discussed between patient and clinician. Three months later, patient and clinician were both interviewed. Results Thematic analysis of the transcripts resulted in four themes: perceived effects of the monitoring, alerts, and feedback, and recommendations for implementation of ESM. ESM was perceived as helping patients to cope better with their disorder by increasing awareness, offering new insights, and encouraging life style adjustments. ESM was further believed to facilitate communication between patient and clinician and to lead to new treatment directions. However, high assessment burden and pre-occupation with negative mood and having a disorder were also described. Patients and clinicians advocated for increased personalization and embedding of ESM in care. Conclusions This study demonstrates that long-term ESM monitoring, alerts, and personalized feedback are perceived as beneficial to the treatment and self-management of patients with bipolar disorder. Future research should further test the clinical utility of ESM. Clinically relevant feedback and technology need to be developed to enable personalized integration of ESM in clinical care.
abstract_unstemmed	Background Self-monitoring has been shown to improve the self-management and treatment of patients with bipolar disorder. However, current self-monitoring methods are limited to once-daily retrospectively assessed mood, which may not suit the rapid mood fluctuations in bipolar disorder. The experience sampling method (ESM), which assesses mood in real-time several times a day, may overcome these limitations. This study set out to assess the experiences of patients and clinicians with the addition of ESM monitoring, real-time alerts, and personalized feedback to clinical care. Participants were twenty patients with bipolar disorder type I/II and their clinicians. For four months, patients completed five ESM assessments per day on mood, symptoms, and activities. Weekly symptom questionnaires alerted patients and clinicians to potential episodes. After the monitoring, a personalized feedback report based on the patient’s data was discussed between patient and clinician. Three months later, patient and clinician were both interviewed. Results Thematic analysis of the transcripts resulted in four themes: perceived effects of the monitoring, alerts, and feedback, and recommendations for implementation of ESM. ESM was perceived as helping patients to cope better with their disorder by increasing awareness, offering new insights, and encouraging life style adjustments. ESM was further believed to facilitate communication between patient and clinician and to lead to new treatment directions. However, high assessment burden and pre-occupation with negative mood and having a disorder were also described. Patients and clinicians advocated for increased personalization and embedding of ESM in care. Conclusions This study demonstrates that long-term ESM monitoring, alerts, and personalized feedback are perceived as beneficial to the treatment and self-management of patients with bipolar disorder. Future research should further test the clinical utility of ESM. Clinically relevant feedback and technology need to be developed to enable personalized integration of ESM in clinical care.
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title_short	Recommendations for the use of long-term experience sampling in bipolar disorder care: a qualitative study of patient and clinician experiences
url	https://dx.doi.org/10.1186/s40345-020-00201-5
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author2	Snippe, Evelien Bruggeman, Richard Doornbos, Bennard Wichers, Marieke van der Krieke, Lian
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