The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers

Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods...
Ausführliche Beschreibung

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Autor*in:	Cai, Siyu [verfasserIn] Guo, Qiaohong Lin, Junyi Deng, Chanjuan Li, Huijun Zhou, Xuan

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2023

Schlagwörter:	Dignity Pediatric Palliative care Terminally ill children Mainland China

Anmerkung:	© The Author(s) 2023

Übergeordnetes Werk:	Enthalten in: BMC palliative care - London : BioMed Central, 2002, 22(2023), 1 vom: 05. Juli
Übergeordnetes Werk:	volume:22 ; year:2023 ; number:1 ; day:05 ; month:07

Links:	Volltext

DOI / URN:	10.1186/s12904-023-01206-4

Katalog-ID:	SPR052161218

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520			\|a Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life.
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allfields	10.1186/s12904-023-01206-4 doi (DE-627)SPR052161218 (SPR)s12904-023-01206-4-e DE-627 ger DE-627 rakwb eng Cai, Siyu verfasserin aut The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2023 Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life. Dignity (dpeaa)DE-He213 Pediatric Palliative care (dpeaa)DE-He213 Terminally ill children (dpeaa)DE-He213 Mainland China (dpeaa)DE-He213 Guo, Qiaohong aut Lin, Junyi aut Deng, Chanjuan aut Li, Huijun aut Zhou, Xuan aut Enthalten in BMC palliative care London : BioMed Central, 2002 22(2023), 1 vom: 05. Juli (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:22 year:2023 number:1 day:05 month:07 https://dx.doi.org/10.1186/s12904-023-01206-4 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 22 2023 1 05 07
spelling	10.1186/s12904-023-01206-4 doi (DE-627)SPR052161218 (SPR)s12904-023-01206-4-e DE-627 ger DE-627 rakwb eng Cai, Siyu verfasserin aut The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2023 Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life. Dignity (dpeaa)DE-He213 Pediatric Palliative care (dpeaa)DE-He213 Terminally ill children (dpeaa)DE-He213 Mainland China (dpeaa)DE-He213 Guo, Qiaohong aut Lin, Junyi aut Deng, Chanjuan aut Li, Huijun aut Zhou, Xuan aut Enthalten in BMC palliative care London : BioMed Central, 2002 22(2023), 1 vom: 05. Juli (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:22 year:2023 number:1 day:05 month:07 https://dx.doi.org/10.1186/s12904-023-01206-4 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 22 2023 1 05 07
allfields_unstemmed	10.1186/s12904-023-01206-4 doi (DE-627)SPR052161218 (SPR)s12904-023-01206-4-e DE-627 ger DE-627 rakwb eng Cai, Siyu verfasserin aut The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2023 Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life. Dignity (dpeaa)DE-He213 Pediatric Palliative care (dpeaa)DE-He213 Terminally ill children (dpeaa)DE-He213 Mainland China (dpeaa)DE-He213 Guo, Qiaohong aut Lin, Junyi aut Deng, Chanjuan aut Li, Huijun aut Zhou, Xuan aut Enthalten in BMC palliative care London : BioMed Central, 2002 22(2023), 1 vom: 05. Juli (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:22 year:2023 number:1 day:05 month:07 https://dx.doi.org/10.1186/s12904-023-01206-4 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 22 2023 1 05 07
allfieldsGer	10.1186/s12904-023-01206-4 doi (DE-627)SPR052161218 (SPR)s12904-023-01206-4-e DE-627 ger DE-627 rakwb eng Cai, Siyu verfasserin aut The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2023 Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life. Dignity (dpeaa)DE-He213 Pediatric Palliative care (dpeaa)DE-He213 Terminally ill children (dpeaa)DE-He213 Mainland China (dpeaa)DE-He213 Guo, Qiaohong aut Lin, Junyi aut Deng, Chanjuan aut Li, Huijun aut Zhou, Xuan aut Enthalten in BMC palliative care London : BioMed Central, 2002 22(2023), 1 vom: 05. Juli (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:22 year:2023 number:1 day:05 month:07 https://dx.doi.org/10.1186/s12904-023-01206-4 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 22 2023 1 05 07
allfieldsSound	10.1186/s12904-023-01206-4 doi (DE-627)SPR052161218 (SPR)s12904-023-01206-4-e DE-627 ger DE-627 rakwb eng Cai, Siyu verfasserin aut The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers 2023 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2023 Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life. Dignity (dpeaa)DE-He213 Pediatric Palliative care (dpeaa)DE-He213 Terminally ill children (dpeaa)DE-He213 Mainland China (dpeaa)DE-He213 Guo, Qiaohong aut Lin, Junyi aut Deng, Chanjuan aut Li, Huijun aut Zhou, Xuan aut Enthalten in BMC palliative care London : BioMed Central, 2002 22(2023), 1 vom: 05. Juli (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:22 year:2023 number:1 day:05 month:07 https://dx.doi.org/10.1186/s12904-023-01206-4 kostenfrei Volltext GBV_USEFLAG_A SYSFLAG_A GBV_SPRINGER GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 AR 22 2023 1 05 07
language	English
source	Enthalten in BMC palliative care 22(2023), 1 vom: 05. Juli volume:22 year:2023 number:1 day:05 month:07
sourceStr	Enthalten in BMC palliative care 22(2023), 1 vom: 05. Juli volume:22 year:2023 number:1 day:05 month:07
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institution	findex.gbv.de
topic_facet	Dignity Pediatric Palliative care Terminally ill children Mainland China
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container_title	BMC palliative care
authorswithroles_txt_mv	Cai, Siyu @@aut@@ Guo, Qiaohong @@aut@@ Lin, Junyi @@aut@@ Deng, Chanjuan @@aut@@ Li, Huijun @@aut@@ Zhou, Xuan @@aut@@
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This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. 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author	Cai, Siyu
spellingShingle	Cai, Siyu misc Dignity misc Pediatric Palliative care misc Terminally ill children misc Mainland China The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
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topic_title	The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers Dignity (dpeaa)DE-He213 Pediatric Palliative care (dpeaa)DE-He213 Terminally ill children (dpeaa)DE-He213 Mainland China (dpeaa)DE-He213
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title	The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
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title_full	The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
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author_browse	Cai, Siyu Guo, Qiaohong Lin, Junyi Deng, Chanjuan Li, Huijun Zhou, Xuan
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title_sort	dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
title_auth	The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
abstract	Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life. © The Author(s) 2023
abstractGer	Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life. © The Author(s) 2023
abstract_unstemmed	Background The Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model. Methods This is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children’s hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data. Results The themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness. Conclusions This is the first study on Dignity Model for terminal children. Knowledge of children’s dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families’ sense of dignity at end of life. © The Author(s) 2023
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title_short	The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
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author2	Guo, Qiaohong Lin, Junyi Deng, Chanjuan Li, Huijun Zhou, Xuan
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The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers

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