Children with palliative care needs – the landscape of the nordic countries

Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. Ausführliche Beschreibung

Gespeichert in:

Autor*in:	Winger, Anette [verfasserIn] Holmen, Heidi [verfasserIn] Birgisdóttir, Dröfn [verfasserIn] Lykke, Camilla [verfasserIn] Lövgren, Malin [verfasserIn] Neergaard, Mette Asbjoern [verfasserIn] Grönroos, Marika [verfasserIn] Kero, Johanna [verfasserIn] Kristinsdóttir, Oddný [verfasserIn] Pétursdóttir, Ásta Bjarney [verfasserIn] Castor, Charlotte [verfasserIn]

Format:	E-Artikel
Sprache:	Englisch

Erschienen:	2024

Schlagwörter:	Nordic countries Pediatric palliative care Care models Research Pediatric palliative education Collaborative overview

Anmerkung:	© The Author(s) 2024

Übergeordnetes Werk:	Enthalten in: BMC palliative care - BioMed Central, 2002, 23(2024), 1 vom: 08. Mai
Übergeordnetes Werk:	volume:23 ; year:2024 ; number:1 ; day:08 ; month:05

Links:	Volltext

DOI / URN:	10.1186/s12904-024-01447-x

Katalog-ID:	SPR055785166

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allfields	10.1186/s12904-024-01447-x doi (DE-627)SPR055785166 (SPR)s12904-024-01447-x-e DE-627 ger DE-627 rakwb eng 610 VZ 44.00 bkl Winger, Anette verfasserin aut Children with palliative care needs – the landscape of the nordic countries 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2024 Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. Nordic countries (dpeaa)DE-He213 Pediatric palliative care (dpeaa)DE-He213 Care models (dpeaa)DE-He213 Research (dpeaa)DE-He213 Pediatric palliative education (dpeaa)DE-He213 Collaborative overview (dpeaa)DE-He213 Holmen, Heidi verfasserin aut Birgisdóttir, Dröfn verfasserin aut Lykke, Camilla verfasserin aut Lövgren, Malin verfasserin aut Neergaard, Mette Asbjoern verfasserin aut Grönroos, Marika verfasserin aut Kero, Johanna verfasserin aut Kristinsdóttir, Oddný verfasserin aut Pétursdóttir, Ásta Bjarney verfasserin aut Castor, Charlotte verfasserin aut Enthalten in BMC palliative care BioMed Central, 2002 23(2024), 1 vom: 08. Mai (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:23 year:2024 number:1 day:08 month:05 https://dx.doi.org/10.1186/s12904-024-01447-x X:SPRINGER Resolving-System kostenfrei Volltext SYSFLAG_0 GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.00 VZ AR 23 2024 1 08 05
spelling	10.1186/s12904-024-01447-x doi (DE-627)SPR055785166 (SPR)s12904-024-01447-x-e DE-627 ger DE-627 rakwb eng 610 VZ 44.00 bkl Winger, Anette verfasserin aut Children with palliative care needs – the landscape of the nordic countries 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2024 Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. Nordic countries (dpeaa)DE-He213 Pediatric palliative care (dpeaa)DE-He213 Care models (dpeaa)DE-He213 Research (dpeaa)DE-He213 Pediatric palliative education (dpeaa)DE-He213 Collaborative overview (dpeaa)DE-He213 Holmen, Heidi verfasserin aut Birgisdóttir, Dröfn verfasserin aut Lykke, Camilla verfasserin aut Lövgren, Malin verfasserin aut Neergaard, Mette Asbjoern verfasserin aut Grönroos, Marika verfasserin aut Kero, Johanna verfasserin aut Kristinsdóttir, Oddný verfasserin aut Pétursdóttir, Ásta Bjarney verfasserin aut Castor, Charlotte verfasserin aut Enthalten in BMC palliative care BioMed Central, 2002 23(2024), 1 vom: 08. Mai (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:23 year:2024 number:1 day:08 month:05 https://dx.doi.org/10.1186/s12904-024-01447-x X:SPRINGER Resolving-System kostenfrei Volltext SYSFLAG_0 GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.00 VZ AR 23 2024 1 08 05
allfields_unstemmed	10.1186/s12904-024-01447-x doi (DE-627)SPR055785166 (SPR)s12904-024-01447-x-e DE-627 ger DE-627 rakwb eng 610 VZ 44.00 bkl Winger, Anette verfasserin aut Children with palliative care needs – the landscape of the nordic countries 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2024 Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. Nordic countries (dpeaa)DE-He213 Pediatric palliative care (dpeaa)DE-He213 Care models (dpeaa)DE-He213 Research (dpeaa)DE-He213 Pediatric palliative education (dpeaa)DE-He213 Collaborative overview (dpeaa)DE-He213 Holmen, Heidi verfasserin aut Birgisdóttir, Dröfn verfasserin aut Lykke, Camilla verfasserin aut Lövgren, Malin verfasserin aut Neergaard, Mette Asbjoern verfasserin aut Grönroos, Marika verfasserin aut Kero, Johanna verfasserin aut Kristinsdóttir, Oddný verfasserin aut Pétursdóttir, Ásta Bjarney verfasserin aut Castor, Charlotte verfasserin aut Enthalten in BMC palliative care BioMed Central, 2002 23(2024), 1 vom: 08. Mai (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:23 year:2024 number:1 day:08 month:05 https://dx.doi.org/10.1186/s12904-024-01447-x X:SPRINGER Resolving-System kostenfrei Volltext SYSFLAG_0 GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.00 VZ AR 23 2024 1 08 05
allfieldsGer	10.1186/s12904-024-01447-x doi (DE-627)SPR055785166 (SPR)s12904-024-01447-x-e DE-627 ger DE-627 rakwb eng 610 VZ 44.00 bkl Winger, Anette verfasserin aut Children with palliative care needs – the landscape of the nordic countries 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2024 Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. Nordic countries (dpeaa)DE-He213 Pediatric palliative care (dpeaa)DE-He213 Care models (dpeaa)DE-He213 Research (dpeaa)DE-He213 Pediatric palliative education (dpeaa)DE-He213 Collaborative overview (dpeaa)DE-He213 Holmen, Heidi verfasserin aut Birgisdóttir, Dröfn verfasserin aut Lykke, Camilla verfasserin aut Lövgren, Malin verfasserin aut Neergaard, Mette Asbjoern verfasserin aut Grönroos, Marika verfasserin aut Kero, Johanna verfasserin aut Kristinsdóttir, Oddný verfasserin aut Pétursdóttir, Ásta Bjarney verfasserin aut Castor, Charlotte verfasserin aut Enthalten in BMC palliative care BioMed Central, 2002 23(2024), 1 vom: 08. Mai (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:23 year:2024 number:1 day:08 month:05 https://dx.doi.org/10.1186/s12904-024-01447-x X:SPRINGER Resolving-System kostenfrei Volltext SYSFLAG_0 GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.00 VZ AR 23 2024 1 08 05
allfieldsSound	10.1186/s12904-024-01447-x doi (DE-627)SPR055785166 (SPR)s12904-024-01447-x-e DE-627 ger DE-627 rakwb eng 610 VZ 44.00 bkl Winger, Anette verfasserin aut Children with palliative care needs – the landscape of the nordic countries 2024 Text txt rdacontent Computermedien c rdamedia Online-Ressource cr rdacarrier © The Author(s) 2024 Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. Nordic countries (dpeaa)DE-He213 Pediatric palliative care (dpeaa)DE-He213 Care models (dpeaa)DE-He213 Research (dpeaa)DE-He213 Pediatric palliative education (dpeaa)DE-He213 Collaborative overview (dpeaa)DE-He213 Holmen, Heidi verfasserin aut Birgisdóttir, Dröfn verfasserin aut Lykke, Camilla verfasserin aut Lövgren, Malin verfasserin aut Neergaard, Mette Asbjoern verfasserin aut Grönroos, Marika verfasserin aut Kero, Johanna verfasserin aut Kristinsdóttir, Oddný verfasserin aut Pétursdóttir, Ásta Bjarney verfasserin aut Castor, Charlotte verfasserin aut Enthalten in BMC palliative care BioMed Central, 2002 23(2024), 1 vom: 08. Mai (DE-627)355513005 (DE-600)2091556-1 1472-684X nnns volume:23 year:2024 number:1 day:08 month:05 https://dx.doi.org/10.1186/s12904-024-01447-x X:SPRINGER Resolving-System kostenfrei Volltext SYSFLAG_0 GBV_SPRINGER SSG-OLC-PHA GBV_ILN_11 GBV_ILN_20 GBV_ILN_22 GBV_ILN_23 GBV_ILN_24 GBV_ILN_39 GBV_ILN_40 GBV_ILN_60 GBV_ILN_62 GBV_ILN_63 GBV_ILN_65 GBV_ILN_69 GBV_ILN_73 GBV_ILN_74 GBV_ILN_95 GBV_ILN_105 GBV_ILN_110 GBV_ILN_151 GBV_ILN_161 GBV_ILN_170 GBV_ILN_206 GBV_ILN_213 GBV_ILN_230 GBV_ILN_285 GBV_ILN_293 GBV_ILN_375 GBV_ILN_602 GBV_ILN_2003 GBV_ILN_2005 GBV_ILN_2009 GBV_ILN_2011 GBV_ILN_2014 GBV_ILN_2055 GBV_ILN_2111 GBV_ILN_4012 GBV_ILN_4037 GBV_ILN_4112 GBV_ILN_4125 GBV_ILN_4126 GBV_ILN_4249 GBV_ILN_4305 GBV_ILN_4306 GBV_ILN_4307 GBV_ILN_4313 GBV_ILN_4322 GBV_ILN_4323 GBV_ILN_4324 GBV_ILN_4325 GBV_ILN_4338 GBV_ILN_4367 GBV_ILN_4700 44.00 VZ AR 23 2024 1 08 05
language	English
source	Enthalten in BMC palliative care 23(2024), 1 vom: 08. Mai volume:23 year:2024 number:1 day:08 month:05
sourceStr	Enthalten in BMC palliative care 23(2024), 1 vom: 08. Mai volume:23 year:2024 number:1 day:08 month:05
format_phy_str_mv	Article
institution	findex.gbv.de
topic_facet	Nordic countries Pediatric palliative care Care models Research Pediatric palliative education Collaborative overview
dewey-raw	610
isfreeaccess_bool	true
container_title	BMC palliative care
authorswithroles_txt_mv	Winger, Anette @@aut@@ Holmen, Heidi @@aut@@ Birgisdóttir, Dröfn @@aut@@ Lykke, Camilla @@aut@@ Lövgren, Malin @@aut@@ Neergaard, Mette Asbjoern @@aut@@ Grönroos, Marika @@aut@@ Kero, Johanna @@aut@@ Kristinsdóttir, Oddný @@aut@@ Pétursdóttir, Ásta Bjarney @@aut@@ Castor, Charlotte @@aut@@
publishDateDaySort_date	2024-05-08T00:00:00Z
hierarchy_top_id	355513005
dewey-sort	3610
id	SPR055785166
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A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. 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author	Winger, Anette
spellingShingle	Winger, Anette ddc 610 bkl 44.00 misc Nordic countries misc Pediatric palliative care misc Care models misc Research misc Pediatric palliative education misc Collaborative overview Children with palliative care needs – the landscape of the nordic countries
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topic_title	610 VZ 44.00 bkl Children with palliative care needs – the landscape of the nordic countries Nordic countries (dpeaa)DE-He213 Pediatric palliative care (dpeaa)DE-He213 Care models (dpeaa)DE-He213 Research (dpeaa)DE-He213 Pediatric palliative education (dpeaa)DE-He213 Collaborative overview (dpeaa)DE-He213
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title	Children with palliative care needs – the landscape of the nordic countries
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title_full	Children with palliative care needs – the landscape of the nordic countries
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author_browse	Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte
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title_sort	children with palliative care needs – the landscape of the nordic countries
title_auth	Children with palliative care needs – the landscape of the nordic countries
abstract	Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. © The Author(s) 2024
abstractGer	Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. © The Author(s) 2024
abstract_unstemmed	Background To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. Methods The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. Conclusion This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context. © The Author(s) 2024
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title_short	Children with palliative care needs – the landscape of the nordic countries
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Children with palliative care needs – the landscape of the nordic countries

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